Home Forums Main Forum Patient Stories Debs going on Cipla generics……

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  • #7676
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Hi! Been meaning to do this for awhile, say Hi all. Got that Diana Ross song in my head “I’m coming out” Time for a proper introduction…….
    Debs here, from u.k, going on the redemption 3 trial and should get my Cipla meds next week!!!! Have talked to London girl via e mail ( lovely lady) I have been lucky enough to get NHS monitoring and my appointment should tie in nicely just shortly after the meds arrive.
    A Lot of love and happiness on the site tonight/today! All the best for 2016 everyone. :)

    Deb xxx

    #7679
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi Debs,
    Good on you, good luck! :cheer: :cheer:
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #7680
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Thanks CJ – so glad things have gone so well for your son x :)

    #7681
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Welcome Debs hope it all works out for you.

    cheers


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #7690
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Well done on getting things underway Debs, and well done on getting NHS monitoring. What area of the country are you in?

    #7691
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Well done Debs – great to hear you are all sorted for monitoring too…look forward to hearing more as your tx progresses. Very promising after all the angst you guys have been through in the UK :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #7701
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yay Debs :cheer: Are we going to swallow our 1st tab online together? :)
    Fingers crossed for a speedy post-man – Here’s to you my friend xx


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #7705
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Ha Ha, LG, like it! Why not? :)
    Yes, we will be looking out for that postman next week!
    Thinking about it I will probably take mine after my appt. on the 12th. They may take some bloods etc. And you might not be able to wait that long!
    Thanks everyone for the well wishes! :)
    Alsdad, I am northern but I don’t want to say anymore than that at the moment as I am very aware that my lovely consultant and nurse are going a bit out on a limb here and I dont want to land them in it so to speak. A few of us on here seem to have managed to get NHS monitoring though.
    They do want to administer ribavirin though. I guess because NHS guidelines are 8 weeks Harvoni with ribavirin for non cirrhotics. I think they are re-considering as I am getting 12 weeks meds. I hope so!
    Warm wishes to you all :)
    Deb X

    #7706
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Let’s do it! :cheer:

    I don’t have consultant appointment yet, as it’s NYrs Day, I shall not disturb the Doc, but need to chase up & hopefully speed up ‘good old’ NHS beaurocracy – GP and I, anxiously waiting!


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #7708
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey I couldn’t resist taking a pic this morning as a kind of ‘D-Day’ record, after waiting so long to crack them open lol

    Well I’m definately going into battle for sure heh

    Won’t be far off for you guys :)

    sofdacday1.jpg


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #7709
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    :cheer:

    Well done Zhuk ! Keep us posted, we’re right behind you.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #7711
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Thanks LG! That means a lot, I appreciate it :)

    Might have to start my own thread so as not to hijack Debs heh


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #7713
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Hi Debs and welcome,
    Happy for you! :cheer:
    You will see it is really an amazing treatment. So powerful and in the same time so easy!
    Good luck and let us know your improvements! :)


    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    #7721
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Thanks isaing4 for those words of encouragement :)
    LG yes that would be good! :)
    Here’s hoping you get that consultants appt. soon!
    And Thanks Zhuk for the support…..We can support each other on here….good idea the photo! Going to look at your thread now -think I spotted it on the way in!
    Deb X

    #7723
    Avatar photoJolie
    • Guardian Angel
    • ★★★★★
    @jolie

    Am most happy for you Deb, what a great way to start the New Year!
    & with NHS monitoring in place, congratulations!
    Welcome to the party! :)


    Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
    Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
    5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
    5 weeks HCV PCR RNA – UND. – down from 2 ML
    9 weeks HCV PCR RNA – UND.

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