Home › Forums › Main Forum › Patient Stories › Defeat is on the path!
- This topic has 22 replies, 14 voices, and was last updated 8 years, 4 months ago by Matt-Kenney-google.
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27 April 2016 at 4:01 am #16235
I got my meds today! What a relief. Heartfelt thanks to Mike, Greedfighter, and 2b for your guidance, support and the kick that I needed to get going.Dr James your brilliance is only surpassed by you compassion to help all of us in need. Tim at Monkmed was wonderful and kept me informed. I could go on and on , my heart is full of gratitude. As for that Dr. To follow me, they are still elusive,I will sort that out later!
G1a
Fibrosure F3
VL 6.6mil
Alt151 Ast111
All labs/Nov 2015
May 5th tx started Hepcvir L. Redemption 2 trial
May 19 2 week labs VL 27, Alt 25 Ast 2427 April 2016 at 4:26 am #16238Hi Defeat10, glad to hear you got your meds! I would agree with you, just start taking the meds! I had NO side effects. Just go to a doctor after 4 or 6 weeks and ask for Viral load and Liver panel test. Why tell them you are taking generics? They did not prescribe them, and may be reluctant to become involved in your treatment for fear of a lawsuit. Just get the tests…..you are on you way to your cure!
27 April 2016 at 4:31 am #16239Hey Defeat 10 from a soon to be joining you on the path bro.
I can’t say it any better than you have.
Looking fwd to watching your progress.Best wishes,
Matt
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”27 April 2016 at 5:25 am #16240U shld change your nick to victory
27 April 2016 at 5:37 am #16241Fantastic news Defeat
Now for the good stuff bring it on
Good luck with everything
Cheers and congrats on starting your tx
From Ariel27 April 2016 at 5:47 am #16242Hi Defeat. Some of us are on the tail end of our journey, others, like you, just the beginning, I had virtually no side effects from Sof/Led other than a bit of insomnia. Good luck with your treatment, you are in good hands.
YMMV
27 April 2016 at 6:29 am #16244Hi Defeat
Good luck in your journey to restored health.
I started on Harvoni (non generic, one of the first on the PBS drug) on 18 March and have no negative Sx although I have been feeling a bit tired the past few days. Possibly overdoing it a tad with the new found energy, or maybe a build-up of the drug.The other changes have been more subtle but all positive. A persistent toenail fungus has disappeared. Brain is sharper. I’m swimming faster. Body perceptions in Yoga practice have definitely changed. Food preferences have also changed.
You will be amazed by how unwell you have been feeling and maybe not realised in comparison to your new altered state.
Although I may not be a direct recipient of Dr Freeman’s compassion and persistence (and I knowthis is open for discussion), I am extremely grateful with the way his great workhas impacted the HCV landscape
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby28 April 2016 at 3:07 am #16276It’s lovely having you around Beaches x
Good morning from me28 April 2016 at 12:42 pm #16284good news for you
I remember how excited I felt when I received my meds
so excited for an opportunity to cure & recover
best wishes to defeat
gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc28 April 2016 at 3:39 pm #16298You will be firing on more cylinders than you have been. For you that will be a good thing. Others may find it hard to handle
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby29 April 2016 at 2:12 am #16314Thanks Beaches I am so looking forward to that day. My family used to reference me as a human doing not a human being,not so much the last few years.How freeing my mind will become when I no longer have to limit joyful activities, if I go for that 5 mile hike how long will it wipe me out? It certainly will be a joyful day when I can replace the word chronic with cured!
G1a
Fibrosure F3
VL 6.6mil
Alt151 Ast111
All labs/Nov 2015
May 5th tx started Hepcvir L. Redemption 2 trial
May 19 2 week labs VL 27, Alt 25 Ast 2430 April 2016 at 8:52 am #16419Great to see you striding down that path to a cure Defeat. I have just come to the end of 24 weeks treatment and for me it has been all good. Very few side effects and much improvement in thought clarity, physical energy and general mood. Although there was a continuous improvement very early on I still think I can pin point a noticeable improvement around 10/11 weeks.
Love your term “human doing”!
Coral
30 April 2016 at 4:54 pm #16439Welcome Defeat 10!
Those little bastards have no chance with the DAA medication.I wish you easy treatment and UND soon!
Keep us posted with your successful journey!
HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com30 April 2016 at 6:15 pm #16442Happy for you. Did one of us “rescue” you from She Who Will Not Be Named?? I’ve lost track which is great!! Too many names and stories to keep straight. A very pleasing feeling. I want to be more confused……
Your enzymes and v/l are about to take a huge nosedive. I don’t know your doc situation, but it seems like anyone who swore to “do no harm” would have a hard time looking in a mirror if you simply asked to have some blood tests done and they refused to order them.
Win410!!!
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 243 June 2016 at 1:37 am #18276I started tx on May 5Th. Just received my 2 week lab work. Alt is 25, Ast 24 and my viral load. drum roll please, 27. Yes that is 27 no 00000. Woot Woot! That Dr. that finally agreed to follow me is insisant that I have blood work q 2 weeks so I will be posting often. I am hopeful that he will start believing in generics, and will be on board to help others in this manner. So thankful to all that have offered support and words of encouragement. Oh and no sides except the first couple of days, just tired and a little spacey in the morning. I have more energy, and the brain fog is lifting. Yeah!
G1a
Fibrosure F3
VL 6.6mil
Alt151 Ast111
All labs/Nov 2015
May 5th tx started Hepcvir L. Redemption 2 trial
May 19 2 week labs VL 27, Alt 25 Ast 24 -
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