Emilio's Place - FixHepC

This topic has 328 replies, 51 voices, and was last updated 7 years, 6 months ago by coral.

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13 November 2015 at 5:19 am #3815
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
I think this combo is working. I rate these drugs.. i will clear soon just not rapidly. Once you clear it doesnt come back. Patience em
15 November 2015 at 2:27 am #3962
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hi Everyone

Well to my surprise I have been unable to sign into the hep c australasia forum using my details. Now I could be missing something here not sure. My first thought is that I’ve been blocked out due to some comments regarding Hepatitis Australia etc and always promoting fixhepc buyers? In recent times I have been surprised by the lack of support for generics and the continuous tut tut. I’m not prepared to say 100% that this is what’s happened as they have been working on the site. However if so, I am saddened by this as back in the day it was my main source of information and support while on tx etc and I’ve made many friends through the site. A sad day for me but this is where I need to be and I will not stop promoting this site. Em
15 November 2015 at 2:37 am #3963
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Maybe I should have made some enquiry prior to posting but will be happy and relieved if advised otherwise. Em
15 November 2015 at 2:38 am #3964
emilio
- Topics: 13
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- Total: 381
- Guardian Angel
@emilio
Could someone who is a member of hep c australasia, try and sign in and advise accordingly ta. I will delete this is I’m mistaken. Em
15 November 2015 at 2:40 am #3965
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Hmmm, so its not only me, em!

For whatever reason it might be and you are right it could be their site issues. I haven’t been a member there long and really just posted my opinions on the likelihood (or not) of universal PBS access, which is against the ‘Party-line’ I suppose. But your posts have always been straightforward and nothing which could be construed as inflammatory, far as I could see. Unless its a forum-stance to shut down anything positive re the generics, which would be pretty unfortunate. People need to hear there is an alternative, and how well that works.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
15 November 2015 at 2:48 am #3967
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Hi Em,

I have not used that site for over a year but I just logged in successfully. Might be the last time though!
15 November 2015 at 2:58 am #3968
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Thanks Joy, so my comments and sharing have obviously gone against party lines. Em
15 November 2015 at 3:04 am #3969
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Sorry if this is so, em, and you’ve lost friends and connections there. Did you happen to notice one of their mods joined up here last night?

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
15 November 2015 at 3:08 am #3970
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Did you have the same username? There’s no em or emilio on their members list.

O well, I’m glad you’re here. Pity we can’t all work together.
15 November 2015 at 3:21 am #3974
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
There’s still a lot of technical problems being ironed out on that site Em, so try again Monday.
15 November 2015 at 5:04 am #3980
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Yes same name since 2007, but was thinking of moving on given a strong sense that generic access and the promotion of it was being critiqued. Versus people making lists of all of the new meds unavaiable to the world. And lobbying the government to go into 20 billion debt by approving access to all at a price determined by gilead and others. Em
15 November 2015 at 5:47 am #3981
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Well they are now promoting the new Hepatitis Queensland Fact Sheet: http://www.hepqld.asn.au/images/resources/factsheets/importing_new_hepatitis_c_medications_in_australia.pdf

And if you follow the link on page 2 http://www.bit.ly/ASHMImport then go to HOW TO ORDER GENERIC DAAs FOR HCV ONLINE you finally come to a link to fixhepc.
15 November 2015 at 6:11 am #3983
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Might be minimal, but that is something positive Joy. And good on QLD for taking a proactive tack compared to other States.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
16 November 2015 at 1:44 pm #4032
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hi Everyone

Well I’ve provided my details to Margo the buyers club PR lady and I have made the decision to put myself out there if asked to tell my story. This disease needs champions and I don’t see too many really. I’ve advised my children, their partners and my close friends that I want to be out to promote access to all hepers and in particular the Aboriginal communities which i live and work in. Em
16 November 2015 at 3:08 pm #4033
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Damn Em,
You are right in the middle of this too! Looking at your pic, you could be my younger brother

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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