Emilio's Place - FixHepC

This topic has 328 replies, 51 voices, and was last updated 7 years, 11 months ago by coral.

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27 December 2015 at 9:29 am #7368
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hi Everyone

Merry Christmas to everyone, I’ve had a busy few days with kids and grandkids who came home for Christmas, we were blessed to get some cooler weather for a few days however it will be back in the 40s by new year I’m lead to believe.

I’m just completing week 12 this Tuesday and will then commence my 6 week extension. My end date is 9 February and will then wait anxiously for SVR, hopefully. Hope everyone is having some time off with family and friends, good health and safe travels. Em
27 December 2015 at 11:54 am #7370
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Hi Em

Glad you had a lovely Xmas with your family. I finish mid February as well however only 12 weeks for me. I did read where you were going to take an extra 6 weeks…is this something new or more a personal choice? Just curious as I am 1b as well.

Cheers Lynne

YMMV
27 December 2015 at 8:22 pm #7386
dointime
- Topics: 29
- Replies: 325
- Total: 354
- Guardian Angel
@dointime
Hi Em,

Congratulations on finishing your first round of 12 weeks when hopefully all the heavy lifting has been done.

Good luck with your 2nd round of 6 weeks. I seem to remember that you have had minimal sides from the sof+dac in your first round. I’d be interested to see if your sides change at all as you extend your tx?

As we discussed before, I am going to extend as well. For how long depends on how well my body tolerates it as I go along, so any info on this would be most helpful.

dt
27 December 2015 at 9:07 pm #7387
2b
- Topics: 17
- Replies: 332
- Total: 349
- Guardian Angel
@2b
Hey Mate! wow that 12 weeks went by quick eh?
probably the next few will zip by too. Sounds like you had a great Christmas, glad to hear all is well,
just cruisin’ along here, getting down to it, took those first two that same day I saw you in Sydney, last count I did I have 32 left to go, Have a Happy New Year too!

GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””
7 February 2016 at 1:07 am #11353
emilio
- Topics: 13
- Replies: 368
- Total: 381
- Guardian Angel
@emilio
Hi Everyone

Well I’m done! That 18 weeks went really fast. Now for bloods at some stage and a nervous wait for the next few months. I’m thinking I will have my first blood test at 4 weeks post. I don’t really see the point in testing right on EOT. Anyway I will keep posting here as I move forward. Fingers crossed hey! I must say I didn’t expect to be missing my meds and you know I would do more if I had more lol, think that’s a control thing and must be the relapser in me. Here’s hoping I’m not part of the 4 or 5 %. Thank you so much for your support. Em
7 February 2016 at 1:21 am #11357
Life
- Topics: 2
- Replies: 172
- Total: 174
- Guardian Angel
@life
[Jep! I would have done that tooo continue another summer lol….Kiss and hugs!! you re done! quote=”emilio” post=10304]Hi Everyone

Well I’m done! That 18 weeks went really fast. Now for bloods at some stage and a nervous wait for the next few months. I’m thinking I will have my first blood test at 4 weeks post. I don’t really see the point in testing right on EOT. Anyway I will keep posting here as I move forward. Fingers crossed hey! I must say I didn’t expect to be missing my meds and you know I would do more if I had more lol, think that’s a control thing and must be the relapser in me. Here’s hoping I’m not part of the 4 or 5 %. Thank you so much for your support. Em[/quote]
7 February 2016 at 1:29 am #11358
Ariel
- Topics: 3
- Replies: 1,060
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- Guardian Angel
@ariel
Huge props to the bloke that bought me to this site
If anyone deserves a great outcome its you Em
I’m sure your SVR is on the way and that sunshine is gonna light your path from here onwards
You’ve helped a truckload of people
I owe you bigtime for your honest blogging in a place where we know the PBS push was creating division
If you hadn’t stuck your neck out then several people myself and a few friends would still be benchwarmers at the clinic
Thankyou Emilio
I hope with all I have in me that you get the SVR
Big love
Ariel
7 February 2016 at 1:56 am #11362
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Well done Em and wishing you the very best of everything

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
7 February 2016 at 2:17 am #11367
dointime
- Topics: 29
- Replies: 325
- Total: 354
- Guardian Angel
@dointime
Good for you Em. Really appreciate your sharing your journey here. Quite a few of us will be getting to the post EOT anxious wait stage in the near future.

dt
7 February 2016 at 2:19 am #11369
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
Done and dusted Em, time has passed fast. Wishing you all the best!
Thank you for making me feel welcome when I first joined Fix Hep C. If I had not seen a post from yourself and Chapel in another Hep C forum then this Kiwi girl would still be without hope of getting well.

SVR 24
7 February 2016 at 3:39 am #11379
Gaj
- Topics: 29
- Replies: 1,402
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- Guardian Angel
@gaj
Congratulations on reaching EOT Em!

Your postings here were one of the things that gave me confidence when I first came looking for generics in early October 2015.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
7 February 2016 at 4:05 am #11380
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Congratulations Em for your EOT. Thank you for support and advice throughout my journey (which goes for all on the Forum of course). Seems there are quite a few of us now just waiting for the post 4 and 12 weeks result. Look forward to seeing all the positive results.

Cheers Lynne

YMMV
7 February 2016 at 5:09 am #11385
Chejai
- Topics: 5
- Replies: 267
- Total: 272
- Guardian Angel
@chejai
Congratulations Emilio on your EOT. Wishing you all the best for your post-Tx bloods.

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
7 February 2016 at 5:25 am #11388
sabrecat
- Topics: 2
- Replies: 258
- Total: 260
- Guardian Angel
@sabrecat
Hi Emilo,

commenced a bit after you but have 24 weeks in total. Virus undetected and I am hoping I will follow in your (and other’s footsteps).

best wishes

J.
7 February 2016 at 5:10 pm #11413
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Not much to add to the above but
THANK YOU!!

M

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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