Home › Forums › Main Forum › Patient Stories › End of Treatment – EOT › EOT diet Advice ??

Viewing 7 posts - 1 through 7 (of 7 total)
  • Author
    Posts
  • 12 February 2017 at 3:12 pm #25277
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Hi Everyone,

    I finished 12 weeks of Hepcvr & ribavarin a week ago. The treatment was for HCV1a and I was undectable at week 2.

    Overall the treatment went well, just tired towards the end and a rash that developed in the past 4 weeks (my Dr has reviewed this).

    Since finishing treatement I have had a lot of headaches, aches in my liver (never had this before) and just generally feeling a bit rubbish.

    I wondered if anyone here could recommend supplements / a particular diet that helps with healing the liver / body / mind post treatment.

    Thanks !

    12 February 2017 at 5:39 pm #25278
    happi
    • Topics: 0
    • Replies: 23
    • Total: 23
    • Treatment Warrior
    • ★★★
    @happi

    hello, Londongirl,

    Glad to hear you’ve finished TX. The worst part is over. As for supplements, MILK THISTLE is a very good supplement for your liver. Just to feel better, Vit. b12 helps to give energy.Of course vit C is always good. . Also take about thirty days of Echinacea. This helps clean and strengthen your immune system. Hope this helps and good luck.

    happi

    12 February 2017 at 6:05 pm #25279
    London_R
    • Topics: 3
    • Replies: 9
    • Total: 12
    • Acolyte
    • ★★
    @london_r

    Hi Happi,thanks for your advice on the supplements. I’ll give them a try!

    Thanks

    13 February 2017 at 3:42 am #25281
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi London_R,

    Ribavirin has a halflife of about 12 days so it takes a while to get out of your system. Both times I’ve treated with it I found that sides took several weeks to drop to reasonably low levels.

    I would be a little wary about echinacea so soon after finishing treatment due to its potential effects on your recovering liver.

    “Use cautiously in people who have or are at risk of liver disorders or are taking a large amount of echinacea. Echinacea may cause liver damage.”

    http://www.mayoclinic.org/drugs-supplements/echinacea/safety/hrb-20059246

    For diet I would suggest a balanced heart smart type diet with plenty of fresh vegetable and fruit and limited ‘processed’ foods is a good way to go if you can manage it.

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    13 February 2017 at 4:45 am #25284
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    This is what happened to me. I am not saying it will happen to you but am sharing information.
    I had HCV for all my adult life. Whenever I had my cholesterol checked it was nice and low, in the low end of the healthy range.
    I started 3 months of Harvoni in March 2016 and back then my total cholesterol was 4.2.
    A few weeks ago it was over 6. :ohmy:
    I have posted about this elsewhere and Dr James suggested this is a healthy liver doing its thing (making cholesterol)
    I have modified my nutrition and for then next 3 months will cut out red meat and trans fats and processed food in an attempt to get it to more acceptable levels. I started this 2 weeks ago and the upside is I have lost a couple of kilos :)

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    13 February 2017 at 10:36 am #25288
    Avatar photorightsaidfred
    • Topics: 8
    • Replies: 86
    • Total: 94
    • Guardian Angel
    • ★★★★★
    @rightsaidfred

    Hi Beaches and everyone,

    Perhaps it is useful to look at this in context? A score of 4.2 is fine but 6.0 isn’t all that bad either. In the UK the point at which NHS guidelines advise treatment is 5.9 and that is a bit arbitrary anyway. But this test is approximate and only measures total blood cholesterol levels, that is both HDL’s and LDL’s. To understand more you have to do a fasting overnight test which will give a figure that is different and far more useful as a guide for prescribing. It is the ratio of HDL’s to LDL’s*.

    Having said that, this whole matter is mired in controversy. There is a shortage of direct evidence linking stroke and heart disease with cholesterol levels. Nearly everyone in the field does, however, accept that lower levels are preferable but it is good to understand that pharmaceutical companies have a VERY direct motive in promoting statins (drugs for lowering blood cholesterol levels) and they supply most of the data……

    My view is that you should just eat a decent diet, get some exercise and not worry too much about numbers. I expect that will get me into trouble!

    Good on you for losing a few pounds. I keep telling myself that I will but it’s difficult in chilly England. Spring will come, or so they tell us.

    RSF

    *Too complex to be interesting to most of us but if you had nothing to do one evening, you could Google it.

    PS It probably isn’t wise to be taking food supplements after EOT unless you really know about them. Adverse effects are possible and your liver has just taken a pasting but will recover all on its own. Perhaps it would be good to see a medical herbalist or a nutritionist? This is a very technical area. R.

    G3a. Probably infected 40 years ago.
    Diagnosed July 2015
    7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
    Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
    VL UND @ 4 wks, 12 wks

    EOT 6/7/16
    SVR 12
    SVR 24

    PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc

    13 February 2017 at 11:18 am #25290
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Just to clarify, this result was from a fasting test. HDLs and LDLs were not horrible but not great. I’m borderline just ok and not ok.
    Enough to galvanise me into action, which is a Good Thing. I know I need to lose weight but this has given me a sense of urgency. Having cleared one significant health issue I’m not keen to be burdened with another any time soon

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

  • Author
    Posts
Viewing 7 posts - 1 through 7 (of 7 total)
  • You must be logged in to reply to this topic.