Fitz starts REDEMPTION 3 Trial

This topic has 306 replies, 32 voices, and was last updated 7 years, 9 months ago by fitz.

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13 August 2016 at 5:13 pm #22164
mgalbrai
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- Guardian Angel
@mgalbrai
Ain’t that something , fitz!
Ain’t that something…..
Happy for you!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
13 August 2016 at 6:47 pm #22169
fitz
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- Guardian Angel
@fitz
Thanks Gaj, Greedfighter, MtGoat. Ya’ll are awesome!

Mike G, you were one of the first people I talked to on the way here. Your support, guidance, and experience was instrumental in the ability to push through the fear, and get the treatment I needed. I appreciate you brother!
13 August 2016 at 9:41 pm #22170
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
Thanks fitz.
Seeing people getting well and not going broke.
I love it.
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
29 August 2016 at 6:25 pm #22618
fitz
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- Total: 499
- Guardian Angel
@fitz
mgalbrai wrote:

Thanks fitz.
Seeing people getting well and not going broke.
I love it.
m

Me too, Mike!

Just back from a week (or so) goofing off with my wife in Texas, and now catching up with all of the news and posts.

Will post pics. Good to be back!
29 August 2016 at 8:30 pm #22620
rohcvfighter
- Topics: 50
- Replies: 338
- Total: 388
- Guardian Angel
@rohcvfighter
Hi Fitz,

welcome back .
I guess you have by now just a couple of days till EOT, right?

Cheers,
RHF

In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google ‚Äúmedicamente generice pentru hepatita C‚Äù.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone‚Äôs life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
30 August 2016 at 5:28 pm #22649
fitz
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- Total: 499
- Guardian Angel
@fitz
Thanks RHF. Yesterday was my last dose of generic Sof/Led obtained through the REDEMPTION 3 Trial. 6 weeks since VL <15, and 4 weeks since UND.

Today is EOT for me, and it feels a bit surreal not to have opened the bottle of MYHEP LIVR -- Generic 'Harvoni' Sofosbuvir 400mg, Ledispavir 90mg produced under Gilead license in India by Natco for Mylan. The medicine bottles are now quite empty, there is no medicine left. I have taken the entire 12 week course of treatment. I'm done.

To recap - after a year of waiting to see a specialist, and then being denied Harvoni by my insurance company, I found Mike Galbraith, and Dr. James, had a consultation with Dr. Freeman of GP2U Telehealth in Hobart Tasmania AUS, and then enrolled in the REDEMPTION 3 Trials, immediately receiving a consultation with Dr. Debasis of Monkmed (India), and an email that my medication had shipped from India.

Less than three weeks later, I had the lifesaving medication - which my insurance company had refused to pay for - in my hand. And for the first time in decades, I had real hope, and a real shot at a cure!

If anyone is reading this and wants to understand exactly how this unfolded - this entire thread is dedicated to journaling that journey. Start with the first post on this thread and just keep reading. Its all there.

There are still some big milestones ahead. SVR 4, SVR 12, and god willing SVR 24. If I am one of the ~96% of patients who is completely cured, those results will be posted as they become available. If I am not, I know that there are affordable options to re-treat, and whether or not I reach SVR this time - I am absolutely confident that I WILL.

Let me tell you, that is an AMAZING sense of empowerment, and the Fix Hep C community has made that empowerment possible. I am grateful beyond words.
30 August 2016 at 7:43 pm #22651
Matt-Kenney-google
- Topics: 1
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- Guardian Angel
@matt-kenney-google
Hey fitz! You are almost exactly 1 month behind me. I’m going in for svr 4 this week, but won’t see my specialist til the week of the 19th. So, we’ll go over blood test results together during that appointment. I am confident that the generic Harvoni I finished taking 4 weeks ago tomorrow, have done their work as I am feeling exceptionally well. I have greatly appreciated your journal and look foreword to seeing your svr results. Thanks for today’s run down.
Best to you n’ yours,

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
31 August 2016 at 3:13 am #22656
fitz
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- Guardian Angel
@fitz
Hey Matt! Cant wait to see those SVR 4 results! Fingers crossed for you, and prayers out buddy! .

Following is a vacation photo of the most phenominal guitarist I’ve ever seen. An Aussie I believe. The guy in the American flag jacket to her right was pretty good too. Together they put on a hell of show!
31 August 2016 at 4:40 am #22666
beaches
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- Guardian Angel
@beaches
You got this Fitz! No doubt at all and don’t it feel nice?
I got my 12 week bloods pulled yesterday. I’m going to be too busy to be worried.
I don’t recognise that guitarist. Do you know her name? I know it’s not Angus Young.

Don’t the Pixies have a song about Debasis? illy:' />

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
31 August 2016 at 5:57 am #22668
coral
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- Guardian Angel
@coral
Great news Fitz. Well played! Good luck with the SVR milestones.

The guitarist is the fabulous Orianthi who was born in Adelaide, South Australia. She was also due to accompany Michael Jackson on the ill fated This Is It tour. She can be seen in some of the rehearsals with him. She’s a fabulous guitarist – great post.
31 August 2016 at 6:25 am #22669
fitz
- Topics: 9
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- Guardian Angel
@fitz
beaches wrote:

You got this Fitz! No doubt at all and don’t it feel nice?
I got my 12 week bloods pulled yesterday. I’m going to be too busy to be worried.
I don’t recognise that guitarist. Do you know her name? I know it’s not Angus Young.

Don’t the Pixies have a song about Debasis? illy:' />

Yeah I do, and so do you mate! So stoked for you!!!

The guitarist is Orianthi. Hadn’t heard of her until showing up at concert which was very much a last minute thing. I’m not a metal fan (wife is), but really enjoyed Oritanthi’s guitar work. The woman is simply incredibly gifted, and was really the best part of then entire show for me. Think Hendrix, Prince, Clapton – and then some.

Here’s a very sweet acoustic piece from her. Plenty of metal stuff on youtube too.

OK Beaches. Post the pixies song
31 August 2016 at 6:33 am #22671
beaches
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- Guardian Angel
@beaches
I was kidding, re the song about Debasis.
I actually posted it on the disco fever page.
The song is called Debaser… wha hey it’s close

Thanks for posting that clip. A good friend said a few months ago I should check out Orianthi when she’s in Oz, I think I will – in between The Pixies and PJ Harvey (yes!!!!!)

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
31 August 2016 at 12:52 pm #22676
Ariel
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@ariel
Thank you Fitz for sharing this awesome young ladies talent and sounds with us I really admired her style and chutzpah. I’m a metal fan actually too like your wife but actually I really just like almost all music.
That was a fantastic clip
Sending thankyou happy splashes from Ariel
31 August 2016 at 3:12 pm #22682
beaches
- Topics: 10
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- Guardian Angel
@beaches
Orianthi is playing in Sydney next month with her bf and musical collaborator, Richie Sambora.
It never rains but it pours (entertainment that is)

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
1 September 2016 at 2:03 am #22697
Ariel
- Topics: 3
- Replies: 1,060
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- Guardian Angel
@ariel
Pardon! She dates Richie Sambora! I’m so glad I divorced John Bon Jovi Beaches I got sick of having to do spray tans for his versace photoshoots bahahahaaaaa (in my dreams!)
A illy:' />
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