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  • 27 July 2016 at 11:27 pm #21496
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter
    coral wrote:

    A few weeks ago at about 8 or 9 weeks post EOT I started to recognise some old familiar symptoms i.e. Lethargy, flatness, lack of energy, foggy etc. It felt different than general tiredness or illness or feeling a bit down. I mentioned this to a few close friends and said that I thought that the virus might be back. This was why I went for SVR11 rather than waiting the extra week.
    . #flower #flower

    Hi Coral,
    I am very sorry for such news, however think positive and have hope !
    You made an interesting remark about feeling that the virus is back, it does confirm what dr. Freeman says in this video at 4min18sec:

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    28 July 2016 at 12:54 am #21503
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    To
    Coral
    split
    Sabre
    Gaj
    Paul
    And anyone else in this spot just now. I send you empathy xxxx
    #love #love #love

    28 July 2016 at 2:29 am #21509
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Is it normal to feel stressed coming up to 12 weeks post EOT?
    Every little twinge, cramp, night time waking is getting me thinking maybe it hasn’t worked. :unsure:
    No point getting tested now as it wouldn’t impact any treatment decisions. I know a Yoga sequence for emotional stability, I’ll just practice it often.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    28 July 2016 at 3:01 am #21510
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax
    beaches wrote:

    Is it normal to feel stressed coming up to 12 weeks post EOT?
    Every little twinge, cramp, night time waking is getting me thinking maybe it hasn’t worked. :unsure:
    No point getting tested now as it wouldn’t impact any treatment decisions. I know a Yoga sequence for emotional stability, I’ll just practice it often.

    Normal. My anxiety stops a bit after svr12

    28 July 2016 at 6:30 am #21515
    Avatar photore_roll
    • Guardian Angel
    • ★★★★★
    @re_roll
    beaches wrote:

    Is it normal to feel stressed coming up to 12 weeks post EOT?

    Probably, I had my 4 week EOT labs today. Still work full time and started to get tired as usual
    in early afternoon……. pre and post HCV meds intake status and got a little apprehensive.

    How we deal with stress is an individual decision. There are many articles and opinions on the
    subject. What will happen will happen. One is in charge of one’s health. IMO, someone
    else or a nonexistent higher power is not the answer. You and you alone are in charge on what
    happens.

    If things turn south, sleep on it overnight, gather your thoughts and be rational with any future
    decisions that are made.

    Coral….as others have said the odds of conquering this is way in your favor.
    Good luck…e.

    contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
    biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
    tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
    28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
    56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
    139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
    SVR24

    28 July 2016 at 6:39 am #21517
    Peach
    • Topics: 1
    • Replies: 11
    • Total: 12
    • Acolyte
    • ★★
    @peach
    beaches wrote:

    Is it normal to feel stressed coming up to 12 weeks post EOT?
    Every little twinge, cramp, night time waking is getting me thinking maybe it hasn’t worked. :unsure:

    Don’t worry, I’m freaking out as well. I know exactly how you feel.

    Sorry you have to go through this Coral. Thank goodness we all have knowledge of and access to this place and the new generics!

    genotype 1a
    viral load 160,000
    age 29, F0, treatment naive, il28bcc
    unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : (
    12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs

    week 4 – alt 12
    week 12 – viral load undetected
    svr12 – NOT DETECTED!

    28 July 2016 at 6:54 am #21518
    Avatar photo2b
    • Guardian Angel
    • ★★★★★
    @2b

    Very sorry to hear of this Coral, i haven’t been on much, just been busy working to get the money to feed the machine, but checking back in, saw this, and I wish you all the best when you take on this beast again. Hoping that even the little break you got from it helped some…go get em, lots of people here all pulling for you!

    GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””

    28 July 2016 at 10:24 am #21524
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Peach and Beaches,

    I think anxiety is another element of the whole treatment plan! Hang in there – the odds really are well in your favour. #flower #flower

    28 July 2016 at 10:28 am #21525
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi 2b – really good to hear from you. Bummer huh?? I won’t pretend I’m not pissed off but I count myself lucky that I have some good options in the pipeline. I hope everything is going well for you over there. Interesting times! #flower #flower

    28 July 2016 at 10:32 am #21526
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Thanks re_roll. I totally agree about taking charge of our own health outcomes. It’s amazing what people have achieved by doing that. Good luck with your latest blood test. #flower

    28 July 2016 at 10:44 am #21527
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi RHF,

    Thanks for your thoughts and for reposting the video. I’m always happy to watch anything starring Dr Freeman! You’re right that he mentioned my experience exactly i.e if it comes back you will know because you will feel like you did before treatment to some degree. :)

    28 July 2016 at 10:52 am #21528
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Thanks Coral, and apologies for hijacking your post, I didn’t mean to be insensitive

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    29 July 2016 at 12:42 am #21562
    Avatar photoFara
    • Topics: 1
    • Replies: 82
    • Total: 83
    • Guardian Angel
    • ★★★★★
    @fara

    Hi Coral, so sorry about your recent lab results. Hope you are feeling okay. The newer treatment options should be available soon. I am also Gt1a, and will complete 24 weeks of sol/led as unsure of fibrosis status. I am worried, but cannot predict anything, just have to wait. Thanks for sharing your results…Wishing you best of luck with the next tx. #flower

    HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
    Tx sof/led started 3/4/16
    4wks VL <15
    9 weeks VL UND, ; Alt-15,Ast-13
    16 weeks VL UND Alt-20, Ast-22;
    EOT 24 wks UND
    SVR 4 UND
    SVR 12 UND, Alt.15, Ast. 17
    SVR 24 UND

    29 July 2016 at 4:25 am #21568
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Hi Coral, Sorry to hear about this :(
    Seems like you have the right mindset to take down these buggers with your next tx
    And thankfully there are more options available soon :)
    Also thankfully you/we have this place and the Amazing Dr Freeman :+1:
    #flower #flower #love #love

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    29 July 2016 at 3:27 pm #21615
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Oh my goodness Beaches – no apologies required. We’re all in this big messy adventure together. #flower

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