Hello from Oregon

This topic has 21 replies, 10 voices, and was last updated 8 years, 4 months ago by whaemmel.

Viewing 15 posts - 1 through 15 (of 22 total)

1 2 →

Author

Posts
8 August 2016 at 6:19 am #21952
whaemmel
- Topics: 1
- Replies: 7
- Total: 8
- Novice
@whaemmel
New participant sending out hello to everyone. Been living with the C for over 27 years(officially), now experiencing the viral load upsurge. Have much to learn and hopefully pass on. Looking optimistically at tackling this monster and feeling really fortunate at this website and
opportunity to learn , heal and pass on whatever I can to others. Greetings and good luck to all!
8 August 2016 at 7:51 am #21957
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
Welcome to the forum Whaemmel!

We’ve got a couple of other guys from the Pacific Northwest here as well. I’m sure Sven and Matt will be along to introduce themselves when they see your post.

Look forward to hearing more from you!

Fitz
8 August 2016 at 9:26 am #21958
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Hi there Whaemell
Good luck with everything this is definitely the place to be if you want to get rid of the business for good. I’m now 19 weeks past End Of Treatment and took Sof/led for 12 weeks that I bought here. Thank goodness that this amazing opportunity exists for us all around the world and wishing you a warm welcome
Looking forward to hearing your tx story
Splashes from Ariel
8 August 2016 at 10:01 am #21959
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Hi Whaemell and Welcome,

You’ve definitely come to the right place for the most up to date information and loads of genuine support.
Everyone has a different story and experience but the aim is the same. We look forward to hearing yours.

Coral
8 August 2016 at 12:17 pm #21962
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
Hey hello whaemmel
I wish you all the best for Tx
you are not alone on this journey for life and living

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
9 August 2016 at 5:59 am #21992
fretboard
- Topics: 10
- Replies: 164
- Total: 174
- Guardian Angel
@fretboard
Hi whaemmel,
Glad to see another US based resident! I’m from Cali, welcome to the forum. Read around, you won’t find better support anywhere. Good luck with your journey!!

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
9 August 2016 at 6:10 am #21997
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Wharmmel Greetings,
Welcome! This is the place to be, you’ll be cured by Thanksgiving if you rock this now. No reason not to just start, I do 4 week labs Thursady and feel much better, only a few side effects nothing to vicious that us Pacific Northwesterners can’t handle!
Don’t look back I did GP2U,it is almost flawless.
Good luck!

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
9 August 2016 at 10:19 am #22003
rightsaidfred
- Topics: 8
- Replies: 86
- Total: 94
- Guardian Angel
@rightsaidfred
Hi Whaemel,

Welcome to the forum. As you’ll see Fixhepc offer a great service and if you start the process now you’ll have the drugs in about 2 weeks. If you haven’t already done it, you need to line up a doctor locally to monitor you while you’re on the meds although a gastroenterologist from Monkmeds will continue to be available throughout your treatment for advice and any questions you have.

Best of luck,
R

G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
12 August 2016 at 9:10 am #22115
whaemmel
- Topics: 1
- Replies: 7
- Total: 8
- Novice
@whaemmel
Thanks, Just moved up from CA 15 months ago. My Dr. is @UCSF. He’s been my Dr. 27 years. and is awesome (head of internal medicine.
Just had my virals go to medium for first time. Due for Genotype test, just had scan 1 month ago. Take Care, Regards, Will
12 August 2016 at 9:16 am #22116
whaemmel
- Topics: 1
- Replies: 7
- Total: 8
- Novice
@whaemmel
Hey. Just waiting for lab order to get genotyped. Then looks like I need US Dr. to write script. Just had scan, will get onboard asap after test. Really new top most of the lab lingo, just went medium on viral load after 27+ years of no activity. My good Dr lit a fire under me July 29th.
Got a lot to take in. Regards, Will
12 August 2016 at 1:35 pm #22120
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Welcome to FHC whaemmel,
A great PCP who will support you is critical and it sounds like you have one.
How about insurance? Its a lot easier to get coverage for the HCV meds than it was a year ago. That’s where the PCP comes in. Mine helped force my insurer to pay for my treatment in the external review process guaranteed under the Affordable Care Act. I’ve never heard of anyone being denied coverage who got it out of their insurer’s hands and before the review board. I’m sure there are cases I’m not aware of, but HCV tx coverage is generally found to be a “medical necessity”.
Imagine that….
Good Luck!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
12 August 2016 at 6:39 pm #22124
whaemmel
- Topics: 1
- Replies: 7
- Total: 8
- Novice
@whaemmel
Hi, Thanks. I have hospitalization only Anthem and fall above Obamacare income wise. It won’t pay for Dr. visit or lab work at all. I pay out of pocket but have enough funds to pay for generics, airtravel or if I can get my Dr. to write a generic script. I seem to make just enough to not qualify. I am selling an rv i don’t use and that will cover generic cost and a round trip to Aus. or India minus stay. My Dr. is gone til next week
and I am also due for a vacation(9 years). I will combine the 2 or figure something out. I still need to be genotyped. Cant afford 95k in US so
I’ll go else where. I will make it work someway.Regards, Will
12 August 2016 at 6:46 pm #22125
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Hi Whaemmel,
I live in Oregon also. Great to have another “webfoot” on board
I have some experience that may be of assistance in getting your dr. To write a script for you. Happy to PM you with it.

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
12 August 2016 at 7:10 pm #22126
whaemmel
- Topics: 1
- Replies: 7
- Total: 8
- Novice
@whaemmel
Hey Matt,
I like the webfoot. I am waiting for My Dr. at UCSF to get back next week-already sent him 3 messages. I think once I am geno typed I can
make treatment plans. I have insurance($303) that covers hospital only. I will be going generic for sure. If I can’t get US script I am traveling
to get generic. I had been symptom and viral low until now. Naively thought I might make it to medicare. I have been with my intrnal med. Dr
27 years. He will support my decision and do anything he can legally. It will be cheaper to just pay out of pocket for generic then get big
insurance increase. This is all new. I am hammering out a victorian 5/2 with 2 cottages. I have another foreclosure to move to. I feel really fortunate to have access and support. I will be in touch about script. Just been in OR 15 months. Always kept my Dr for this. He is back
MON.-8 hrs away, have lab 15 miles from here. Thanks, Will
12 August 2016 at 7:33 pm #22128
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Hey Will! Nice to meet you

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
Author

Posts