Honker Heads for Hobart

This topic has 92 replies, 23 voices, and was last updated 8 years, 3 months ago by LondonGirl.

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29 January 2016 at 4:22 am #10692
Chejai
- Topics: 5
- Replies: 267
- Total: 272
- Guardian Angel
@chejai
How exciting for you Honker! The countdown is on and what a beautiful place to go and commence Tx. Ariel has given an awesome tour guide there, makes me want to go back, it really is a stunning part of the country. Unfortunately, an ex of mine held me captive and then tried to throw me off the Lyell Highway above Queenstown! But hey as long as you have no Psycho travel companions you should have a Great time

All the best Honker

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
29 January 2016 at 5:37 am #10702
honker
- Topics: 6
- Replies: 79
- Total: 85
- Guardian Angel
@honker
Hi Chejai,

Fortunately, the only psycho om this trip is me. Thanks for the support. I will be posting.

Honker

Diagnosed in 2000, Genotype 1(b), no previous treatment,
Viral Load 90,700, ALT 86, AST 56 (as of Novemeber 15, 2015)
Fibroscan F0
Starting Redemption Sof/Led on February 2, 2016
Thanks to Greg Jeffries, Monkmed , FixHepC and Dr. Freeman

Feb. 29
Week 5 of tx
ALT 23
Undetected

May 26
4 EOT
ALT 25
AST 28

Didn’t test for viral load. Will test is July at 12 weeks EOT

August 1
Liver enzymes in normal range
HCV UNDETECTED
29 January 2016 at 1:33 pm #10722
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Lol Honker – Nearly ready? I’m really looking forward to hearing about your experience of getting well

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
29 January 2016 at 1:39 pm #10723
honker
- Topics: 6
- Replies: 79
- Total: 85
- Guardian Angel
@honker
Yes, I moved from my flat and now in traveling mode. Will leave on Sunday night. I will be posting. Very excited.

Diagnosed in 2000, Genotype 1(b), no previous treatment,
Viral Load 90,700, ALT 86, AST 56 (as of Novemeber 15, 2015)
Fibroscan F0
Starting Redemption Sof/Led on February 2, 2016
Thanks to Greg Jeffries, Monkmed , FixHepC and Dr. Freeman

Feb. 29
Week 5 of tx
ALT 23
Undetected

May 26
4 EOT
ALT 25
AST 28

Didn’t test for viral load. Will test is July at 12 weeks EOT

August 1
Liver enzymes in normal range
HCV UNDETECTED
29 January 2016 at 1:42 pm #10724
honker
- Topics: 6
- Replies: 79
- Total: 85
- Guardian Angel
@honker
And thanks again to Tim, Greg, Dr. Freeman and the people at the Buyers Club. I look forward to meeting you.

Diagnosed in 2000, Genotype 1(b), no previous treatment,
Viral Load 90,700, ALT 86, AST 56 (as of Novemeber 15, 2015)
Fibroscan F0
Starting Redemption Sof/Led on February 2, 2016
Thanks to Greg Jeffries, Monkmed , FixHepC and Dr. Freeman

Feb. 29
Week 5 of tx
ALT 23
Undetected

May 26
4 EOT
ALT 25
AST 28

Didn’t test for viral load. Will test is July at 12 weeks EOT

August 1
Liver enzymes in normal range
HCV UNDETECTED
29 January 2016 at 2:16 pm #10726
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
And thanks again to Tim, Greg, Dr. Freeman

I’ll second that – What an awesome trio !
Personally, I cannot thank thank them enough, especially Tim at MonkMed who has offered daily support continuously from day 1 beyond the call of duty.

I have now got GP and consultant support here in the UK too – Can’t mention names on here, but if you are reading – Thank you too!.

HepatitisC patients are so under-supported – to the level of discrimination against us compared to other ailments.
You guys have made positive change – Awesome !

Safe, happy travels Honker

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
3 February 2016 at 1:28 pm #11099
honker
- Topics: 6
- Replies: 79
- Total: 85
- Guardian Angel
@honker
Started treatment Tuesday Feb. 2 I am writing this to describe my experience and the healing process in hopes that it will be helpful to others and I will have a record.

Day 1 – opened the first bottle, filled my 7 day pill case and stared at it for a few minutes. A little bit hesitant as I have shied away from taking any form of medication for many years. Then I took it. It was a gorgeous day, so after getting set up with SIM card and Bus pass, I went for a walk along the Hobart Rivulet. By the time I got to Cascade Gardens I was a little tired, so I took a short nap. Only side noticeable side effect was vivid dreaming and waking up with a start. Otherwise, sleep was normal.

Day 2 – spent today at the Botanical Garden. Lovely and I felt very energized. I noticed some sensitivity in my left eye when I got back to the hotel, but it went away quite quickly. Fortunately, I have some very dark sunglasses that I will wear tomorrow. I feel upbeat and energetic tonight.

Diagnosed in 2000, Genotype 1(b), no previous treatment,
Viral Load 90,700, ALT 86, AST 56 (as of Novemeber 15, 2015)
Fibroscan F0
Starting Redemption Sof/Led on February 2, 2016
Thanks to Greg Jeffries, Monkmed , FixHepC and Dr. Freeman

Feb. 29
Week 5 of tx
ALT 23
Undetected

May 26
4 EOT
ALT 25
AST 28

Didn’t test for viral load. Will test is July at 12 weeks EOT

August 1
Liver enzymes in normal range
HCV UNDETECTED
3 February 2016 at 2:15 pm #11101
Chapel
- Topics: 7
- Replies: 112
- Total: 119
- Guardian Angel
@chapel
I recommend the breakfast at Mures fish restaurant on the waterfront in Hobart, have you tried it yet?

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
3 February 2016 at 3:36 pm #11107
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Welcome to Oz Honker
Wonderful news that you have started and are enjoying beautiful Hobart isn’t it pretty
I’m on sof/led and also have sore eyes I like Tinas idea about carrying an eye liquid
Yes the sun here is very strong even on cloudy days, I am across Bass Straight in Victoria but Tassie is as burny on the skin
So great to hear you have arrived and are on tx
I’m looking forward to your tx travelogue
Love from Ariel
3 February 2016 at 9:46 pm #11117
CC2B
- Topics: 2
- Replies: 171
- Total: 173
- Guardian Angel
@cc2b
Congrats on finally starting your tx. Good wishes to a speedy recovery and minimum sides. Enjoy Oz while you are there, a great place and great peeps. Keep us posted. Kind regards, CC

GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
5 February 2016 at 11:50 am #11245
honker
- Topics: 6
- Replies: 79
- Total: 85
- Guardian Angel
@honker
Thanks. I’ll give that a try.

Day 3 and 4. Feeling great. Doing yoga or hiking everyday. Sometimes I get a bit tired after exercise and take a nap. I wake up very energetic. Went to 7 mile beach with Chester. And now dinner on the waterfront. Perfect day.

Diagnosed in 2000, Genotype 1(b), no previous treatment,
Viral Load 90,700, ALT 86, AST 56 (as of Novemeber 15, 2015)
Fibroscan F0
Starting Redemption Sof/Led on February 2, 2016
Thanks to Greg Jeffries, Monkmed , FixHepC and Dr. Freeman

Feb. 29
Week 5 of tx
ALT 23
Undetected

May 26
4 EOT
ALT 25
AST 28

Didn’t test for viral load. Will test is July at 12 weeks EOT

August 1
Liver enzymes in normal range
HCV UNDETECTED
5 February 2016 at 12:31 pm #11247
magpie
- Topics: 1
- Replies: 62
- Total: 63
- Recovery Champion
@magpie
Honker, don’t forget to try the scallop pie if the opportunity arises.
Only in Tassie!

There is also MONA for contemporary art.
http://www.mona.net.au/

wishing you a sides free trip

EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 – 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan – 6.6
2 x non responder peg interferon & riba
geno 1a
5 February 2016 at 1:02 pm #11250
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Glad to hear your side effects are very few. I also felt my energy levels come back very quickly. Insomnia was my main side effect but for about the last 4 weeks I have been able to go back to sleep again when I woke up. Enjoy beautiful Hobart

YMMV
5 February 2016 at 4:13 pm #11258
honker
- Topics: 6
- Replies: 79
- Total: 85
- Guardian Angel
@honker
Thanks for the tip. Murs is very close to my hotel. Will give it a try.

Diagnosed in 2000, Genotype 1(b), no previous treatment,
Viral Load 90,700, ALT 86, AST 56 (as of Novemeber 15, 2015)
Fibroscan F0
Starting Redemption Sof/Led on February 2, 2016
Thanks to Greg Jeffries, Monkmed , FixHepC and Dr. Freeman

Feb. 29
Week 5 of tx
ALT 23
Undetected

May 26
4 EOT
ALT 25
AST 28

Didn’t test for viral load. Will test is July at 12 weeks EOT

August 1
Liver enzymes in normal range
HCV UNDETECTED
5 February 2016 at 4:14 pm #11259
honker
- Topics: 6
- Replies: 79
- Total: 85
- Guardian Angel
@honker
MONA on Monday. And I’ll watch out for scallop pie. Sounds yummy.

Diagnosed in 2000, Genotype 1(b), no previous treatment,
Viral Load 90,700, ALT 86, AST 56 (as of Novemeber 15, 2015)
Fibroscan F0
Starting Redemption Sof/Led on February 2, 2016
Thanks to Greg Jeffries, Monkmed , FixHepC and Dr. Freeman

Feb. 29
Week 5 of tx
ALT 23
Undetected

May 26
4 EOT
ALT 25
AST 28

Didn’t test for viral load. Will test is July at 12 weeks EOT

August 1
Liver enzymes in normal range
HCV UNDETECTED
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