Hopeful in the US

This topic has 38 replies, 13 voices, and was last updated 9 years ago by mgalbrai.

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20 October 2015 at 10:19 pm #2554
Jolie
- Topics: 5
- Replies: 126
- Total: 131
- Guardian Angel
@jolie
Mike, once again, many thanks for the info

Sirchinenge, yes, Als did import the API’s some weeks ago to the UK but that was long before this new requirement was added recently that apparently Mesochem needed a letter from the compounding chemist to ensure they encapsulate the powders before shipping the goods.

Maybe the situation has changed again?…anyway, I’m going to contact her & see.
I need to order Sof & Dac,

best of luck with your tx Mike,

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
20 October 2015 at 10:26 pm #2555
Jolie
- Topics: 5
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- Total: 131
- Guardian Angel
@jolie
mgalbrai wrote:

Nothing like that at all. I just said I was with the local university doing research, which is true, since I am with the university and I am researching the efficacy of generic HCV treatments-on myself.

Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.
20 October 2015 at 10:32 pm #2556
SShady43
- Topics: 8
- Replies: 31
- Total: 39
- Treatment Warrior
@sshady43
Hi M,
Just so I am clear, did you send them a letter stating that you were using them for research or was an email sufficient? Did they send MSDS sheets or something similar to prove content to customs if necessary? Finally, did you have a script from a doctor to include for Meso? Not sure if U.S. Customs actually requires a script for personal imported API’s or pills… Fantastic news that they came through customs for you without a hitch. Good luck, and keep us posted on your tx.
20 October 2015 at 10:45 pm #2557
Sirchinenge
- Topics: 7
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- Total: 267
- Guardian Angel
@sirchinenge
My first email was sent mentioning I was part of a research group, her reply
was a No.

My second email asked for X amount of Sob and X about of Dac can you quote me,
she quoted me.

I sent both emails around the time Greg reported they would not sell to single
clients. Since then it appears to have changed again.

As you can see, one person mentions research and is fine the next does the same thing
and is refused.
Regardless what you put in the email you need to say can you quote me
for X amount of drugs. Its obvious its all quite random.

Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
20 October 2015 at 10:47 pm #2558
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
Everything done by email. All MSDS documentation included. No doctors prescription needed, but I have been prescribed Harvoni 3 times and denied by my insurance company after exhausting all appeals. I went sailed through customs. Perhaps because Rachel declared such a low value ($57.00) She is VERY helpful!! Again, mention “research”. Have you a friend at a local university to whom it could be addressed? That and the “research” word. I think those were a significant factors for me. Good luck!

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
23 October 2015 at 10:07 am #2662
emilio
- Topics: 13
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- Total: 381
- Guardian Angel
@emilio
All good mgalbrai, I think you can be confident with the API’s. Tried, tested and trusted source. Consume and destroy
29 October 2015 at 2:15 pm #3019
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
Hi Em,
I am consuming and they are destroying. Rachel signed the package over to FedEx and my wife signed for it when it arrived. Straight from Mesochem-pretty simple supply chain. Today will my 7th dose. Minor headache the first 3 days. Starting to feel more energy after a long day in the classroom.
Personally-knowing what I know now about the new predicted Indian Harvoni release date-I would do nothing differently.
I am good and getting better.
My advice to folks like me in the U.S.:
Seize the moment, for it may be fleeting.
Or, as we say in Arkansas: Git while the gittin’s good…
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
29 October 2015 at 4:30 pm #3021
poodle
- Topics: 4
- Replies: 105
- Total: 109
- Guardian Angel
@poodle
Hi Mike Iam very impressed with your smooth operating. Prue genius in cutting through the authority as a test sample. I think anything goes when it comes to accessing the ability to have this cure. The system is truly broken, fix hep c is a really appropriate name for this club. Iam on day 11 with the same medicine as you. The only issue is tinnitus, which calms down occasionally. Some difficulty getting to sleep, sometimes i think thats from the ear noice, but sometimes I just feel excited about the new life Iam having. Already I can feel the difference. Not just in energy, but mentally, more robust in being able to cope much better with stress. As no life is free from various bouts of stress. Dont know if its just me but I always felt that hep c and stress were very bad buddies. Anyway thanks for your story I love your attitude. Poodle

Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.
29 October 2015 at 5:53 pm #3025
Cruzan
- Topics: 0
- Replies: 4
- Total: 4
- Novice
@cruzan
What kind of documentation did you need to get through customs?
29 October 2015 at 7:05 pm #3029
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
No documentation from me at all. Just the standard MSDS forms from Mesochem and the FedEx waybill declaring what was inside the package in English and the declared value. Rachel will work with you in that area. I tracked it on my phone from the moment it was picked at Mesochem by FedEx until it arrived at my steps. I wired the money to their bank Monday at 8:00AM and the package arrived Friday at 7:30AM.
After all the denials and feeling like crap for years. BOOM! Unbelievable!! I am getting WELL thanks to some great Australians and China’s willingness to tell Gilead where they can put their patent.
Gotta love it…
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
29 October 2015 at 9:58 pm #3034
mgalbrai
- Topics: 28
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- Total: 1,326
- Guardian Angel
@mgalbrai
Another day better than the last. No noticable sides anymore. 11weeks and counting!

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
30 October 2015 at 1:49 pm #3064
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Hello All,
I have had some folks contact me about Customs concerns. This is my take on that after being in the same boat: The small, low value package arrives in Anchorage on a huge FedEx plane full of crap from China of all shapes and sizes at 1:00am. Unless they are really looking to keep life-saving medicine out of the hands of the people that need them, I don’t think there will be a problem. Rachel is a smooth operator. You will see what I am talking about when you get your present from her.
It all comes down to this in my view:
Does the policeman write a guy a ticket who is speeding his pregnant wife to the hospital or give them an escort?
I think we are OK-now. Next week- who knows. Put some letters after your name, make your home address a chemical analysis service for a day. Where theres a will….
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
30 October 2015 at 1:57 pm #3065
Alsdad
- Topics: 18
- Replies: 317
- Total: 335
- Guardian Angel
@alsdad
mgalbrai wrote:

…..Put some letters after your name, make your home address a chemical analysis service for a day. Where theres a will….
Mike

Or you could even ‘open’ a compounding pharmacy.
30 October 2015 at 1:59 pm #3066
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Great minds……..home of the brave. Land of the free. Damn the torpedoes….Nuts…
We can do this people!

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
31 October 2015 at 3:26 am #3103
DorianLS
- Topics: 2
- Replies: 19
- Total: 21
- Treatment Warrior
@dorianls
Hi Mike, This is very encouraging. I gather from what you’ve written that Rachel that Rachel fully knows what we are doing, i.e., trying to cure ourselves of a deadly disease by circumventing Gilead’s $100,000.00 tax, and is actually sympathetic and helpful? At one time, from what I’ve read, Mesochem had no special requirements for those seeking their anti-HPC APIs, then began requiring larger orders (as for instances, the Buyer’s Club available to Australians), then Greg found that if we signed onto a research study, they would send, now I understand they require evidence that you have a compounding pharmacist who will mix up your API’s into precisely dosed capsules. But I gather from you that I can just be frank with her, i.e., “listen I’m sick and your company carries the medications I need to get better. Can you advise me on what I need to do to obtain them? This disease is now damaging my kidneys so there is a chance my insurance company will approve the medications at last, but I’d like to purchase from Mesochem while the window is open rather than wait for the approval process via my insurance company. If it turns out I don’t need the Mesochem product I’m sure someone in the US would be happy with it, so nothing lost.
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