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  • 15 June 2016 at 6:04 am #19077
    Billym
    • Topics: 1
    • Replies: 8
    • Total: 9
    • Novice
    • ★
    @billym

    Hi there everyone,
    I havn’t been on here for a while and I just read that the Australian government will be blocking this site to all Australian subscribers from today. Disappointing after all the help they have given to us all down under. At least the rest of the world will still have access. Anyway, I just thought I’d get in and post now to say that I finally made it! Got my 12 week VL result a week ago and Im still undetectable. After 6 months on Sof/Dac, that didn’t end up being as easy as I thought it would be, plagued by numerous side effects which included insomnia, anxiety and irregular heart beat issues, I almost quit at the 8 week mark but pushed through to finish 24 weeks and now I’m so glad I did. It took a good month after EOT for these issues to settle but they did. Im now feeling better than ever, sleeping well, with no anxiety and those weird heart issues disappeared. My latest Fibrascan also revealed a drop to 7.1 down from 12+ which mean Im now F1 down 2 or 3 spots from originally being F3/F4. So I’m over the moon. Greg Jeffery helped me purchase the Indian generic Sofovir and my clinic here got me Daklinza on compassionate access from BMS. This was all before the Australian PBS approved the drugs. I just want to once again thank Greg for helping, and Dr Freeman and Silvia Price for all their help and advice they gave me when I was having trouble on treatment. Life is once again, great! :)
    Cheers
    Billy

    Gen 3a 30yrs plus
    F3-F4
    VL 14,000,000
    Treatment Naive
    Sof/Dac 20.8.15
    EOT 18.2.16

    15 June 2016 at 6:31 am #19078
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Fantastic news, Billy! You went through some hell to get here brother, and now you’re at SVR!!! What do you say to someone who has looked death in the face, and just hunkered down and stuck it out?

    Respect. Well done, brother.

    15 June 2016 at 6:36 am #19079
    Avatar photore_roll
    • Guardian Angel
    • ★★★★★
    @re_roll

    Billym…Congrats to hear you are on the road to SVR forever. Thx for
    posting. Kudos for a humble post ,i.e. (9 posts ) :)…e.

    contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
    biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
    tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
    28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
    56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
    139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
    SVR24

    15 June 2016 at 7:32 am #19081
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Welcome back to the fray Billym. Sounds like you needed to gather strength before jumping in :lol: :+1:
    Great news! SVR12! And hey, thanks for sharing with us some of the turbulence you experienced during and post treatment. It helps.
    Also, wanted to say I appreciated your expressions to Greg J., Dr. J. and Sylvia Price. They’re well earned and well deserved :+1:
    Oh and so you know, you Aussies won’t get off that easy :) the TGA only banned you from accessing certain parts of this site that they consider as advertisements for generics. So we’ll expect to see more of you on here my friend. :lol:

    Matt

    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    15 June 2016 at 7:43 am #19082
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Thats great news Billy even with the paw paw struggles :)

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

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