Liver Conference Barcelona 2016

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14 April 2016 at 4:32 pm #15478
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hi Annasnow,

Yes, Dr James is presenting the mentioned study on generics in Barcelona this Saturday 16th at 4:30pm their local time. (12:30am Sunday AEST)

And the large audience expected isn’t just “us mob in Aus?”, with an international patient cohort there is huge global interest in the results.

More details here: http://fixhepc.com/forum/media-news/819-generics-late-breaker-accepted-for-easl-in-april.html

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
14 April 2016 at 6:02 pm #15479
Annasnow
- Topics: 3
- Replies: 16
- Total: 19
- Acolyte
@annasnow
Hi Gaj
I had not seen that entry on here – only last night I saw how the forum worked…a bit daunting for a naive user. I get a Medscape feed and laboriously copy n pasted it to put on here. I thought the post treatment care was also of great interest.
I am very chuffed the Good Doctor is presenting and presumably a standing ovation will greet him from his peers – it is like Robin Hood and bigPh. Would have got an EOT stat if I had known this was happening – at least he has my UND from 4 weeks. I meant our stats on generics by ‘us mob’ – we have our lives fed into his presentation that may really change some unjust aspects re treatment. The anarchist side of me was thrilled to circumvent the formal treatment system.
Cheers and many thanks to all on this marvellous information and support ship.
14 April 2016 at 6:48 pm #15481
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
From the HCV News Blogspot

•Does sustained virologic response represent a cure for hepatitis C virus infection?
http://hepatitiscnewdrugs.blogspot.com/2016/04/expert-svr-does-not-equate-to-cure-in.html

•13 April 2016 – WHO issuing updated guidelines for treatment of hepatitis C infection
http://hepatitiscnewdrugs.blogspot.com/2016/04/13-april-2016-who-issuing-updated.html

•ILC2016 Treating patients for Hepatitis C could reduce the need for liver transplants
http://hepatitiscnewdrugs.blogspot.com/2016/04/ilc2016-treating-patients-for-hepatitis.html

•Study raises questions about the risks of treating patients with late stage Hepatitis C virus
http://hepatitiscnewdrugs.blogspot.com/2016/04/study-raises-questions-about-risks-of.html

•ILC2016 Sofosbuvir/velpatasvir and experimental compound GS-9857 shows promise in Hepatitis C infected patients whose previous treatment has failed
http://hepatitiscnewdrugs.blogspot.com/2016/04/ilc2016-sofosbuvirvelpatasvir-and.html

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
14 April 2016 at 8:04 pm #15485
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Great links -Thanks – Keep ’em coming !
I saw (via Twitter) that Dr Freeman spoke this morning, I guess stating what he is presenting on the 16th.
Exciting.

Really, this EASL meet is pretty awesome, but it’s not good unless Drs and more to the point, Health Authorities listen put these recommendations into practice. Here’s hoping hey

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
15 April 2016 at 12:02 am #15494
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
For James Freeman and Greg as they are carried on by the flood of undetecteds and SVR’s coming in, this is how I would like to think of the collective strength of our feeling, as you represent us all and are vindicated by our lives. The haka reflects mana which is the Maori concept of the respect you command and the pride your tribe has in your achievements- off the scale in your case.
Kia Kaha (stand tall with the support of your tribe)
https://www.youtube.com/watch?v=e6RlUYtSnLY

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
15 April 2016 at 5:31 am #15506
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Who might these scoundrels be???

This is WHAT they are!
http://youtu.be/lRqxoM7iqoY

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
15 April 2016 at 7:23 am #15509
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Looking very flash indeed Am I able to share this photo on my FB to show all my friends these wonderful people or should I not?

YMMV
15 April 2016 at 10:57 am #15520
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Its from Greg’s Blog. Public domain. Share away!!!

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
15 April 2016 at 12:03 pm #15521
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Tweet tweet !

Shame our lovely MonkMed aren’t there too, so much good work done by them quietly behind the scenes to help patients.

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
15 April 2016 at 12:04 pm #15522
isaing4
- Topics: 2
- Replies: 237
- Total: 239
- Guardian Angel
@isaing4
The Căluşari were the members of a Romanian fraternal secret society who practiced a ritual acrobatic dance known as the căluş. The Călușari group is a secret, male-only society associated with a spring rite, possibly a remnant of tribal warrior societies. They were known for their ability to create the impression of flying in the air, both the galloping of a horse and the dancing of the fairies . Due to their connection with the fairies, the Călușari were believed to be able to cure the victims of fairies and for around two weeks – from three weeks after Easter till Pentecost – would travel to all the local communities where they would dance, accompanied by a few fiddlers, in order to do so.
https://en.wikipedia.org/wiki/C%C4%83lu%C8%99ari
Because is spring time in the northern hemisphere and hep C warriors, Dr. James Freeman and Greg Jefferys, are fighting for affordable cure (we all know who is the bad fairy in this story), I wish them good luck!
Forever grateful
https://youtu.be/qTlmPgaXdoM

HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com
15 April 2016 at 12:22 pm #15523
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
If anyone from the UK is willing to talk to the Daily Mail (not my fave paper !) – They want to run a sympathetic article on treating with generics via FixHepC – PM me. They say it can be anonymous and via email or phone.

ps This came via the HepC Trust.

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
15 April 2016 at 3:06 pm #15524
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
MonkMed. Who knows?
They might be there as well.
Agent 86

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
15 April 2016 at 7:15 pm #15529
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
More links:

AbbVie’s Investigational Regimen ABT-493 and ABT-530 Shows High SVR In HCV Genotype 1 Patients Who Failed Previous Therapy
http://hepatitiscnewdrugs.blogspot.com/2016/04/abbvies-investigational-regimen-abt-493.html

European Medicines Agency’s PRAC extends the scope of its safety review on direct-acting antivirals for hepatitis C
http://hepatitiscnewdrugs.blogspot.com/2016/04/european-medicines-agencys-prac-extends.html

Impact of Viekirax (ombitasvir/parataprevir/ritonavir and Exviera (dasabuvir) Real-world experience with 3-D regimen lives up to phase 3 studies
http://hepatitiscnewdrugs.blogspot.com/2016/04/ilc2016-coverage-impact-of-viekirax.html

Shorter treatment course potentially on the horizon for Hepatitis C patients
http://hepatitiscnewdrugs.blogspot.com/2016/04/interim-data-on-rg-101-at-international.html

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
16 April 2016 at 1:00 am #15533
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Dr James has done a request for UK patients here

http://fixhepc.com/forum/media-news/902-uk-patients-willing-to-speak-to-the-media.html

I read it yesterday morning our time
I went in media here in Oz it’s a good thing to do. Tina did in NZ.
They edited some of what I wrote but no significant changes to ruin the truth of my story.
I’m not popping up the link for privacy reasons this is just me haha. It has my real name etc.
Go for it somebody
And thanks James for all you’ve done for us worldwide with this weeks work
Ariel
16 April 2016 at 1:05 am #15534
MonkMed
- Topics: 1
- Replies: 29
- Total: 30
- Treatment Warrior
@monkmed
Dear Mike,

No we did not travel. Maybe next year. Dr Debasis should have travelled but he is very busy with REDEMPTION consultations and rest of us are busy ensuring shippings go through. We are continuously on phone trying to clear packages. Due to heightened security customs clearances worldwide is taking longer than usual.

Warm Regards
Tim
MonkMed Care Team
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