Liver pictures - FixHepC

This topic has 13 replies, 9 voices, and was last updated 8 years, 2 months ago by Tommy.

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29 March 2016 at 4:07 am #14592
Hazel
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- Guardian Angel
@hazel
I went for a scan today; last one 6 months ago was not good and luckily a few days later I saw a Greg Jefferys story, found my way here and now have about a month to go of 24 weeks. It was great to go see my specialist of 20 years, virus undetected, I’ve lost 20 kg, blood tests great etc. He was happy, having not been a believer at first, and has this excellent new machine. You can really see inside, The kidneys are almost like photos, it could check portal veins etc really clearly (all good) easily measure spleen (reduced). And it produced quite a detailed visual report with hot to cold zones red- orange- yellow- blue mapping the fibrosis areas. Mine is unevenly scarred, so I have quite a big section of blue area which is working well, and a red crusty part. It has me thinking, if any rogue resistant virus is still hiding, it will be in them thar hills.
I had thought I heard last time the fibro score was 13, pretty high. Today he was congratulating me on nearly halving it- down to 22- it was 40 last time! Glad I didn’t know, but no wonder I feel better. Even if it turns out there is more treatment to go, (genotype 3 F4 etc is pretty stubborn) it was very satisfying to see pictures of how far back from the brink my liver has come in 6 months.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
29 March 2016 at 5:01 am #14597
Gaj
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@gaj
Good news on all your results especially the fibro reduction.
Was that with one of the new MRI scanners?

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
29 March 2016 at 5:24 am #14598
Hazel
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@hazel
I will have to ask them to email me its name and stats. I gathered it was an ultra ultrasound. He spoke of algorithms and waves and lost me. I understood the pictures better.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
29 March 2016 at 7:13 am #14600
Ariel
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@ariel
That’s great news Hazel how incredible is the body at restoring after the virus goes away? We just don’t know the full benefits even yet it’s such early days and look how promising this is
Fantastic
Splashes from Ariel
29 March 2016 at 10:32 am #14602
emilio
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@emilio
So happy for you Hazel, heres to SVR 24. Em
30 March 2016 at 12:07 am #14622
pat1
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@pat1
Yours was a great read Hazel
Very encouraging for us all
‘Excellent new machine’ sounds wonderful
Great liver recovery news

X

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
30 March 2016 at 1:39 am #14626
LondonGirl
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@londongirl
Hi Hazel, It sounds like the new LiverMultiScan ? I was lucky to have this recently as part of a trial.

I know what you mean re seeing where the fibrosis is, mine is all in the center around the heart connections in the center and to the left. Same thoughts as you, I also reckon that’s where the virus hides in me. It makes sense to me after some thought.

It also says to me that the traditional fibroscan could have varyable results because it seems to only detect fibrosis at one area of the liver, at the point of the probe ? My first fibro (2014) was taken near the center and was 8.7 , my more recent two to the right side (6.2 and 5.6) .Someone told me once that fibroscans paint quite an accurate picture as ‘fibrosis is quite evenly spread’ … Hmmm Really mine isn’t for sure! Which could explain my varying diagnostic results.

I will get around to posting my colour snap of my insides at some point

Good to hear you’ve had an improvement, my very best wishes to you for the perfect end result .

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
11 April 2016 at 12:00 am #15193
Hazel
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- Guardian Angel
@hazel
It was prophetic that I called this thread liver pictures: look what my lovely youngest daughter Meg has made for me, a living liver picture.
She is an artist, piano player, 3rd year jewellery student and a wonderful support.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
11 April 2016 at 7:51 am #15204
Tina-Hill-facebook
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- Guardian Angel
@tina-hill-facebook
Such a beautiful and thoughtful gift from your daughter Hazel, you must be so proud of her

SVR 24
11 April 2016 at 11:24 am #15209
Ariel
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@ariel
That’s a gorgeous take on livers
Must have taken ages to make too and it’s beautiful
Love indeed
12 April 2016 at 2:22 am #15247
pat1
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- Guardian Angel
@pat1
Hazel
Hand worked threads picture recovery and care gorgeous colours
a precious gift made with love

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
5 October 2016 at 11:05 pm #23541
Hazel
- Topics: 45
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- Total: 414
- Guardian Angel
@hazel
Hi all,
I’ve been quiet lately, trying to concentrate on exams coming up. Checking in to share my encouraging news for those who are F4- cirrhosis is reversible! Had a scan yesterday, has gone from 40kp pre treatment, was 22 at end of tx, and now, coming up SVR 24, has dropped to 9.2kp.
So – I had hep C 30 plus years- don’t now. I had cirrhosis, 18 plus years- don’t now. Takes some getting used to. I realised that my specialist, same guy, has given me 2 biopsies, about 20 or more scans, 2 rounds of interferon/rib- this was the biggest, fastest drop he has seen. He must have seen so many recover on interferon- yet the liver doesn’t seem to recover like it has on DAA’s. They must set off regeneration somehow, not just kill virus.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
5 October 2016 at 11:14 pm #23543
klhilde
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@klhilde
I’d be more inclined to suspect that the old treatment interfered with the body’s ability to regenerate.

I also wonder whether the body might respond to the rapid virocide by pumping out various hormones …. specifically, I’m wondering if the big energy bump at 2-6 weeks (and the early waking, weird dreams, etc.) might be from something like a big boost in HGH.

Is that even possible?
5 October 2016 at 11:45 pm #23544
Tommy
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- Guardian Angel
@tommy
Extremely happy for you. Glad you shared that with everybody. That gives hope to many who feel doomed by just the word cirrhosis.

Genotype 1A
ALT 473
AST 226
Virus Load 3,119,030
Results as of May-2016
5 week viral load/undetected as of 12/02/2016
Liver Biopsy Results from Feb 2013
Portal/Periportal chronic inflammation and mild interface hepatitis (Grade 2)
Focal Lobular chronic inflammation (Grade 1)
Portal/Periportal fibrosis (stage 1-2 trichrome and reticulin stains utilized)
Negative Iron stains.
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