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  • 27 May 2016 at 1:38 pm #17903
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Everybody,

    I open this post after having made some thoughts about the latest issues of whether sharing opinions and information about HCV medication might be against the legal settlements or not.

    A first statement that comes into my mind is: people have soul, money don’t. That’s why people talk better than the money.
    A first question that comes into my mind is whether “law people” really understand what happens in the soul of an HCV patient.

    Therefore I am thinking that perhaps we may open in this area a clean and “politically correct” thread where we may share our experiences in a manner that will make our points of view clear, but at the same time in a manner that will not bring offense to anybody. Hopefully in the (near) future some politicians, no matter from which country, will read this information….

    For this I would think of 3 questions on which everybody may reflect and answer:
    1. How was/is it for you to live with Hepatitis C?
    2. Was the information available on hepatitis C forums/websites useful to you? Describe shortly.
    3. Did you applied in your healthcare system for a Hep C treatment? What was/is the status of your application?

    @Moderators: I am aware that such a thread might wake up strong emotional feelings. If you would consider this thread as inadequate, feel free to close/remove it.

    Best Regards,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    27 May 2016 at 1:39 pm #17904
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    and here are my answers:

    1. How was/is it for you to live with Hepatitis C?
    Sometimes living, most of the time surviving. Having constant fear of not being able to take care of the family.
    Thinking on “long term” means in fact thinking on the next 2-3 years, not more. Being constantly tired and unhappy.

    2. Was the information available on hepatitis C forums/websites useful to you? Describe shortly.
    Yes. I was able to retrieve useful information so that I can access medication. I do not regret the decision I took.
    I am thankfull to all people who shared their opinions. Without their opinions, things would have been worse today.

    3. Did you applied in your healthcare system for a Hep C treatment? What was/is the status of your application?
    Yes I did. Current status: pending for more than 5 years.

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    27 May 2016 at 1:45 pm #17905
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Rohcvfighter excellent and I will write my answers during the weekend
    Ty and its not emotional for me and I have had a rough trot until finding FixHepC ty this is a great idea
    Cheers from Ariel :+1:

    28 May 2016 at 1:53 pm #17976
    Avatar photosonix
    • Guardian Angel
    • ★★★★★
    @sonix

    1. How was/is it for you to live with Hepatitis C?
    I was diagnosed in the early 90s and probably was reckless with aspects of life as I thought I would eventually die earlier than I should. So I have regrets I didn’t treat myself better, mainly for not beating addictions much sooner although managed to quit most bad things (not bloody ciggies though) over 10 years ago mainly by willpower. I’ve usually managed an acceptably healthy diet and moderate level of fitness regardless which most likely saved me from being a total basket case now. Then there’s the social stigma which added to the anxiety and depression I’ve suffered intermittently for most of my life.
    2. Was the information available on hepatitis C forums/websites useful to you? Describe shortly
    I first phoned https://www.hepvic.org.au/ in June 2015 to get the ball rolling and they gave invaluable information and sent me an excellent info pack.
    hepvic.org.au and fixhepc.com were both most helpful.
    3. Did you applied in your healthcare system for a Hep C treatment? What was/is the status of your application?
    I got a GP referral to St Vincents liver clinic who believed PBS approval would happen in December. In the meantime met a friend who told me about FixHepC and I got started on meds soon after when the December approval looked unlikely.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    29 May 2016 at 10:11 am #18013
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    1. I was diagnosed in March 2015 by chance, having a high blood pressure reading Doc did usual bloods and liver function test was appalling so he ran a Hep A, B & C test and Hep C was detected.

    2. There was a story in The Age newspaper about the Buyers Club who I contacted almost immediately as I was in a terrible state emotionally after diagnosis (just fatigue and headaches symptom wise but put it down to getting older).

    3. I was and still probably would be on a wait list to see the liver clinic at our Hospital (when I cancelled the appointment it was 15 months on the wait list)! Thanks to James Freeman and generics from China I am now CURED and eternally grateful…..

    YMMV

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