Home Forums Main Forum Patient Stories Geopolitics Médecines du Monde Campaign & Petition

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  • #19538
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Médecines du Monde have launched a petition and advertising campaign aimed at French Health Minister Marisol Touraine:

    http://www.medecinsdumonde.org/

    MDM also planned to launch a massive bill-board advertising campaign around Paris, but it was denounced by the Leem (French pharmaceutical industry) as “false propaganda”

    http://www.leem.org/actualite/16-06/leem-denonce-campagne-de-propagande-mensongere-de-medecins-du-monde

    and the campaign has been “censured” by the French advertising standards agency (ARPP).

    Here is a report (in French) on the campaign from Le Figaro

    http://sante.lefigaro.fr/actualite/2016/06/13/25089-medecins-monde-lance-campagne-choc-contre-prix-medicaments

    Nonetheless, MDM is continuing its campaign through advertising in the national newspapers and on-line

    https://www.facebook.com/fr.mdm

    In about one week since the launch on 13 June 2016, the petition has reached over 190,000 signatures.

    https://leprixdelavie.medecinsdumonde.org/fr/la-petition

    Here is an interview (in French) with Olivier Maguet, the campaign organiser

    http://www.capital.fr/a-la-une/actualites/hepatite-c-les-traitements-sont-aussi-rentables-que-le-commerce-illegal-de-l-opium-en-afghanistan-1138665

    According to Olivier Maguet (in the article in Le Figaro), “this is the first time that MDM has ever been censured.”


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #19543
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Big pharma leaning on politicians blimin gut turning <img style=ick:' />


    SVR 24

    #19547
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Tina,

    Yeah, its quite possible that the someone whispered in someone’s ear before someone from the “Leep” complained to the ARRP.

    But according to this article, the efforts to suppress the Médicines du Monde campaign have largely back-fired, because the publicity around the censure caused a massive wave of interest, and MDM got 120,000 signatures in the first 48 hours.

    http://multinationales.org/Une-campagne-de-Medecins-du-monde-censuree-pour-ne-pas-facher-l-industrie

    From what I can see today, they are still getting about 600 signatures per hour (now at 193,593).

    Oops, now at 193,622, which another 29 in the time it took me to write this post :)


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #19562
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Here is an English translation of the Médicines du Monde petition. Anyone from any country can sign up:

    https://leprixdelavie.medecinsdumonde.org/fr/la-petition

    Dear Minister of Health,

    We are not teaching you anything by saying that the prices of medicines are constantly rising.

    That such prices are absolutely unjustified.

    That pharmaceutical companies are making outrageously colossal margins from treating the sick.

    That the Social Security system is not able to pay for these treatments.

    So we are teaching you nothing by saying that our Health System, and therefore our health, is in real danger.

    So we would like to ask you a simple question:

    When it comes to health, does the market make the law, or is it the State?

    We therefore ask you to use all the legal and political means in your power to drastically lower the prices of innovative medicines.

    Our health depends on it.

    (194,232 signatures)


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #19563
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Bonjour Vororo,

    Merci beaucoup pour cette information, je l’ai signé :).
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    #19564
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Succinct, eloquent and elegant.

    image.png


    YMMV

    #19569
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Simples :cheer:

    image-2-3-4-5-6-7-8.png


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #19590
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    fini et je vous remercie V :+1:

    image-2-3-4-5-6-7.png

    #19659
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    So…. the threshold of 200 000 signatures has been reached !!! :+1:
    It is heading now towards the goal of 250 000 signatures.


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    #19662
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    My English translation of the article in Le Figaro:

    http://sante.lefigaro.fr/actualite/2016/06/13/25089-medecins-monde-lance-campagne-choc-contre-prix-medicaments

    Médecins du Monde launches a shock campaign against the price of medicines

    Key words: Médecins du Monde, Sovaldi, innovative drugs, generic drugs, pharmaceutical industry
    By Thomas Delozier – 13/06/2016

    Médecins du Monde’s “The Price of Life” campaign starts today, despite being censured by advertising companies.

    “In France, cancer earns 2.4 billion euros per year”… “an outbreak of flu in December gives a year-end bonus” … “with 1 billion euros in profit from hepatitis C, we’re doing very well.” … These shocking and cynical phrases are not lost to Médecines du Monde. In their latest poster campaign, “The Price of Life”, the NGO takes on the very high drug prices charged by the pharmaceutical industry and calls for a petition to be signed.

    At stake are the exorbitant prices of drugs which lead to rationing, according to the NGO. Let’s take Sovaldi. Today, this innovative treatment against hepatitis C costs € 40,000 per patient. With about 230,000 people infected by this virus, treating every infected patient would cost more than 9 billion euros. “At these prices, the social security system cannot afford to cover the cost for everyone,” explains Olivier Maguet, who is in charge of the “Medicine Prices and the Health System” campaign, of which “The Price of Life” is a component. He adds “we find ourselves in the same situation as Mozambique or Zambia: we cannot treat people because we don’t have enough money. We have to make people aware of this crazy situation.”

    However, don’t expect to see campaign posters for “The Price of Life” in all the metro stations or bus stops. They will be visible only through fly-posters, social networks, and the press. The three companies engaged by Médecins du Monde to advertise “The Price of Life” have refused to do it.

    Media Transport justifies its decision in two ways: “there is a risk that the pharmaceutical industry could be negatively concerned by these posters”, and, “the reference to serious diseases could be perceived as offensive by people suffering from those diseases.” JCDecaux shares the second reason and adds “a lack of sources”. These two companies say they must follow the recommendations of the Professional Advertising Regulation Authority (ARPP), which delivers more than 15,000 recommendations annually to the media. The third company, Insert, could not be contacted.

    Meanwhile, pharmaceutical companies are denouncing “a deceitful propaganda campaign” from Médecins du Monde and that its slogans “are not only damaging to industry, they are particularly shocking and disrespectful to the millions of people who fight daily against disease.”

    Industry is not the main target of the campaign

    “This is the first time Médecins du Monde has ever been censured,” said Olivier Maguet. “This clearly shows that we are pressing where it hurts. However, this is quite ironic because we do not mention any drug or laboratory names in the posters. We have nothing against the pharmaceutical industry, we need their medication, and we respect their profit motive. They are not our main target, it is the State! Because the State leaves them to it.”

    To alleviate the exorbitant price of Sovaldi, Marisol Touraine last month announced universal access to treatment, and not just critically ill patients. She also promised that the Economic Committee of Health Products (CEPS) was going to negotiate a lower price. Olivier Maguet’s response is that “we welcome the intention, but at the moment these are just promises. The CEPS remains quite opaque and allows little transparency. It’s a shame to follow that route, especially since there is another more radical way: the compulsory licence.”

    The compulsory licence, permitted by article L613-615 of national law, allows the creation of a generic from a patented medicine if “it is made available to the public in insufficient quantity or quality or at abnormally high prices”. These conditions make Sovaldi eligible. A compulsory licence greatly reduces a drug’s price while providing royalties to the company that created the product so that it benefits financially.

    Why has Marisol Touraine has not chosen this solution? “We asked her two years ago and she still has not replied yet,” regrets Olivier Maguet. “The only response we have is that she considers it to be a ‘weak legal instrument’. This is wrong!” Despite its low use – only a few times since the 1950s – the method is terribly effective. To refuse, a laboratory must engage in a legal battle which is very costly in terms of both money and image.

    In 2001, 39 pharmaceutical companies filed a lawsuit against the Government of South Africa when it tried to promote the production of generic AIDS medications. The procedure stopped mid-way, and prices tumbled. “Unfortunately, this legal tool is not known to the general public,” says Olivier Maguet. “With this campaign, we want to go further than the simple status quo. We want to create a public discussion so that this situation might change.”


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #19665
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    I can’t sign. US is not on the list.

    Passing it to Brazil

    #19666
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    Price wrote:

    I can’t sign. US is not on the list.

    Passing it to Brazil

    Salut Price,

    Vous ne connaissez pas que vous habitez aux Etats – Uni !?!?

    Notre Guillaume :)


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #19667
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Alors!

    Look!
    The United States you scroll to find and its there. As V said. It’s simple. Any US citizens can sign. So can Brazil!!

    image-2-3-4-5-6-7-8-9.png

    #19724
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    What can I say? In CA we’re only required to speak Spanish, not French. :(

    Got it Ariel

    P

    #19725
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Estados Unidos and Etats Unis is reasonably similar, sorry, the smart arse gene is working overtime today


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

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