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Viewing 8 posts - 1 through 8 (of 8 total)
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  • 25 May 2016 at 4:07 am #17721
    Rowan
    • Topics: 2
    • Replies: 5
    • Total: 7
    • Novice
    • ★
    @rowan

    Hi Everyone.
    A pleasing result to get an undetectable VL result at the 3 months post treatment date. I had a few ups and downs as I was 1A geno, Fibroscan 12, early cirrhosis, high LFTs and mild jaundice in eyes. Treated Sof/Dac and Ribavirin for 12 weeks. main side effects were slight rash on forehead that was photosensitive, mild nausea, some irritability and insomnia. I didn’t clear the virus at 17 weeks as some do and can only offer that we are all different and your journey will be unique.

    Since completing treatment I have noticed that the side effects are abating, I fart less (go figure!) sleep very well and am swimming 3x a week and regaining some muscle mass.

    Thanks to everyone at FixHepC. I know some people worry about their treatment but it is the end result that matters.

    As an aside, my partner recently started Harvoni on the PBS and is one of two in this area that has failed at the 1 month point.

    I hope that this is useful info to some.

    Regards, Rowan

    25 May 2016 at 5:01 am #17723
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    #woohoo!

    Congratulations on achieving SVR12 Rowan. :+1: :cheer:

    As you say, we all seem to be a bit different and what counts is the end result. :)

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    25 May 2016 at 9:46 am #17732
    Avatar photosabrecat
    • Guardian Angel
    • ★★★★★
    @sabrecat

    Hi Rowan:

    Since completing treatment I have noticed that the side effects are abating, I fart less (go figure!) sleep very well and am swimming 3x a week and regaining some muscle mass.

    I am 6 weeks past EOT and I hope I am still UND (originally since Jan while on sof/dac). Find out if SVR in July.

    Since taking the meds the gym has been my friend to the extent that I appear to have stretched something under the skin (according to the doctor) where I have an abdominal scar, and after asking at the gym what exercises not to do, started something else and now have a very sore wrist.

    These meds should come with a warning about not injuring oneself after talking them!

    Yours

    Jeff

    P.S. congrats about the SVR.

    25 May 2016 at 10:00 am #17733
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Congratulations Rowan … another victory!

    Well worth waiting for … the main thing is that we all make it across the finish line, it doesn’t matter how we get there … some sprint, some jog, and others walk …

    Encourage your partner to stay positive, to be patient, and remind her that she may merely be running her race at a slower pace …

    Swimming 3 times a week will definitely help your body heal itself … and broaden your shoulders ;)

    Best Wishes

    GT2

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    25 May 2016 at 6:56 pm #17761
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Way to go Rowan! Great results and thanks for posting it … (though the fart report was a bit tmi) hahaha! :lol: ditto what GT2 said about your partner :)

    image-2-3-4-5-6-7-8-9-10-11.jpeg

    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    26 May 2016 at 12:42 am #17782
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congratulations Rowan
    Ty for blogging your update
    Yes it seems that we all respond at different times to these new meds I hope your partner gets UND soon too
    Happies to you both from Ariel

    26 May 2016 at 3:30 am #17788
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Hi Rowan, awesome reading of your svr12 this morning. Yes, I did experience some ups and some downs also. As you say everyone seems to have a different experience on Tx due to different complexities of body and mind. Support from the forum was paramount for me as I continued on my way. #flower best wishes to you both. #flower

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    26 May 2016 at 7:12 am #17798
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Rowan – so good to hear that another one has crossed the line. I also did it in my own time but never doubted that I would get there. Best of luck to your partner in getting to UND. What great support she will be able to get from you. :)

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