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  • #17272
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Thanks Mike, very succinct! :) :+1:

    #17274
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Welcome Mike good luck with tx and yes what Mike the other said :) :+1:
    From Ariel who is now clear of HepC thanks to FixHepC go for it Mike :+1:

    #17276
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi Mike,

    I believe shipping to the alternative UK address would be your best option due to Irish customs laws. Importing 12 weeks medication at a time there is okay with appropriate documents and prescription complies with that requirement.
    With your co-infection the Redemption trials via an initial consultation with http://www.gp2u.com.au is a good option as Mike suggests. Participation in Redemption also provides ongoing medical support from the Monkmed team per below post from them:

    http://fixhepc.com/forum/new-to-forum/327-new-member-intro.html?start=135#13297


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #17278
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    We need another Mike.
    Then we could be like the brothers Darrell on the old Bob Newhart Show.
    Or, like the three “Joses” in one of my classes:
    Hose A, Hose B and Hose C…
    Summer is almost here….
    This old teacher is going batty…
    m


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #17281
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    We could just rename everyone to Bruce

    [video]https://www.youtube.com/watch?v=_f_p0CgPeyA[/video]


    YMMV

    #17287
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    [


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #17300
    Dubaichic
    • Topics: 2
    • Replies: 14
    • Total: 16
    • Acolyte
    • ★★
    @dubaichic

    Hello,

    I’m here finding help for my boy. I managed to secure him generic sof-led just two days ago.

    He is what you call naive – low viral load and no involvement thankfully.

    He’s on a bit of an emotional roller coaster which I completely understand.
    But I’d like to help him to get beyond it.
    Without sounding crass or cliche’d.

    He’s become very indecisive and who wouldn’t being faced with this awful disease.

    Any tips or point me in the right direction I would be grateful. Thank u

    #17305
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    I am assuming your boy is <18. If so you may find getting in touch with CJ helpful:

    http://fixhepc.com/forum/patient-stories/311-young-j-the-dragon-slayer.html

    is the story of he treating her 15 yo (now 16 yo son) with DAAs. He is SVR12 and it was a more comfortable run than the Interferon/Riba he was offered (actually he would still be on treatment with that, and with a 50:50 chance of cure).


    YMMV

    #17311
    Dubaichic
    • Topics: 2
    • Replies: 14
    • Total: 16
    • Acolyte
    • ★★
    @dubaichic

    Hello

    Thank you for your reply. He is 26years old and thankfully came home and explained what had happened.

    He’s a very young 26yr old.

    He started the meds, I’m trying to encourage him to eat much cleaner, so cut out junk and pop etc.
    But still eats too much fried foods.

    He has fatty liver which runs in our family but no other stuff going on. I checked his blood work and it looks great right now.

    I was unsure what the blood work would be for his 4/52? I read Cre and thought I’ve not seen that before, can I ask please is this creatinine?
    I’ve ordered FBC, viral load, liver function but am unsure about the Cre?

    Thank u! So grateful for this site and thankful to Parag who suggested it.

    #17312
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Hi D,
    Most of us had HCV longer than your son has been alive and we’re still scrapping around causing mayhem and mischief.
    If he can digest fried food with no issues, that’s a good thing. My sudden-onset, sometimes violent dyspepsia, led to my eventual HCV diagnosis.
    The thought of fried anything literally turns my stomach.
    I’m glad he’s onboard with this. It’s not a complicated or hard treatment.
    m


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #17313
    Dubaichic
    • Topics: 2
    • Replies: 14
    • Total: 16
    • Acolyte
    • ★★
    @dubaichic

    Thank you!

    I have already lost a son to cancer and the thought of watching my son suffer with hep c is just devastating. So this gives me hope.

    #17314
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi,

    It sounds like your son has only had it for a short time which is good news as HCV usually takes decades to cause serious damage. In which case if he can cut back on pop and junk food during treatment it won’t hurt but the main thing is that he makes sure he takes his pills regularly. I think most of us have experienced strong emotions initially on treatment whether from the medication or the chance of a cure but usually that settles down with time.
    As Mike says, it is a straightforward treatment and he has everything in his favour from his age to the length of time he has had the virus so you both can relax and be glad that we now have these medications available to treat him before the complications set in. :)


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #17324
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi Dubaichic,

    Sorry, only just seen your posts.
    I’m sorry for you, the loss of a child must be dreadful.

    Your boy with HCV will be ok.
    My son is 16 and Dr Freeman helped him.
    He had the Sof/Led and sailed through, no side affects and it worked brilliantly, so try not to worry.

    Please tell your son this, and if you would like to chat at all I’d be really happy to.

    Just PM me and I’ll send you my phone no.

    Where abouts are you?

    We are in Sydney.

    Hope it all goes well for you and your son. I know it’s frightening, but really, it’s an easy treatment, and it works!!!!
    :cheer: :cheer:

    Love Cindi x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #17339
    Avatar photoBob in ireland
    • Topics: 6
    • Replies: 48
    • Total: 54
    • Recovery Champion
    • ★★★★
    @bob-in-ireland

    for Dr James F – am halfway through sof/dac did additional riba for the first month- then stopped it- would you recommend taking it for thest few months or month of treatment as a security measure against any mutant viral strands ?? or can it be taken alone for a month at EOT ?
    any feedback appreciated
    best wishes from
    Bob in ireland :)

    #17340
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Bob,

    I presume you stopped the Riba because of the sides. It takes 21 days to drop by half so you will have had nearly 6 weeks worth. It’s not something usual, but will certainly have done no harm. Monotherapy with any drug, even Sofosbuvir is a bad idea so don’t take it after treatment.

    Given you’ve stopped it I would stay stopped secure in the knowledge you hit the virus hard at the start.


    YMMV

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