Should I start treatment

This topic has 22 replies, 12 voices, and was last updated 8 years, 5 months ago by CC2B.

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1 July 2016 at 3:18 am #20211
JamesF
- Topics: 3
- Replies: 19
- Total: 22
- Treatment Warrior
@jamesf
I got my medication and was keen to start treatment this weekend.
My Consultant said that I should stay close by in the UK in case of any adverse reactions.
The problem is that I would be on holiday in Spain (on a boat) on the second week of treatment if I start now.
Should i wait until I get back?

I felt at least being on holiday while on treatment would mean I could rest if need be.

2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
1 July 2016 at 3:23 am #20212
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
I Don’t feel qualified to answer your questions. But rest assured, help is on the way JF
Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
1 July 2016 at 3:25 am #20213
mgalbrai
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- Guardian Angel
@mgalbrai
I don’t know what meds you will be taking, but most people tolerate the DAAs with few, if any, issues. I was concerned that the drugs weren’t working due to the lack of side effects.
I would go.
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
1 July 2016 at 3:26 am #20214
JamesF
- Topics: 3
- Replies: 19
- Total: 22
- Treatment Warrior
@jamesf
thanks for the replies.

the meds are Harvoni

2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
1 July 2016 at 3:31 am #20215
JamesF
- Topics: 3
- Replies: 19
- Total: 22
- Treatment Warrior
@jamesf
my consultant advised staying local in the UK for 2 weeks
if nothing happens in the first two weeks then she would be less worried
she did say that as the don’t prescribe much Harvoni on the NHS they are still not familiar will a broad range of side effects, etc

2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
1 July 2016 at 3:32 am #20216
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
That’s what I’m currently on. I’m 1/2 way through tx JF, and nothing of any significance to report on sdfx. Mike and are the average here. I can confirm what he says about most people’s toleration of DAA’s side effects.
Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
1 July 2016 at 3:34 am #20218
JamesF
- Topics: 3
- Replies: 19
- Total: 22
- Treatment Warrior
@jamesf
Go raibh maith agat! (Thanks in Gaelic)
Hmmm, I’ve read about the side effects and was worried that everyone had some.
It’s good to hear there may be none. Could I be so lucky too?

2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
1 July 2016 at 3:35 am #20219
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
I had a mild headache the first three days with Harvoni…

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
1 July 2016 at 3:43 am #20220
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Sláinte JF! (Cheers) to u Galbraith
Glad you’re here and extremely happy you’re starting treatment. It’s up to you of course brother, but I, personally could not wait to start slaying this beast! and Spain is beautiful this time of year … just sayin’ …

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
1 July 2016 at 4:58 am #20222
MtGoat
- Topics: 5
- Replies: 74
- Total: 79
- Recovery Champion
@mtgoat
I would go. I was worried about sides before I started. I did get some headaches the first week but when I started drinking extra water, thanks to advice from people on this forum, they went away. I was very active during treatment.

Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed
1 July 2016 at 5:48 am #20223
Chapel
- Topics: 7
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- Total: 119
- Guardian Angel
@chapel
Well I would go on the Spanish holiday but delay starting the harvoni till I got back. I took it and had few side effects but you will naturally attribute every upset tummy/illness to the harvoni, if you take it while in Spain. Imagine if you get bad upset stomach or intense headaches and face a decision of stopping the harvoni even temporarily, what a dilemma and the specialist is far away.
(I am assuming you are in reasonable health.)

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
1 July 2016 at 6:48 am #20224
Dr James
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- Guardian Angel
@fixhepc
Hi I took generic form Sof/Led. Had a bit of insomnia and a few headaches here and there but drinking water soon got rid of the headaches and the insomnia didn’t bother me at all because my energy levels were very good once I started taking the meds. It ultimately is up to you whether you go on your trip or postpone however the side effects I had were very mild.

Enjoy your holiday

YMMV
1 July 2016 at 6:50 am #20225
fretboard
- Topics: 10
- Replies: 164
- Total: 174
- Guardian Angel
@fretboard
Yeah, I started June 1st and although my vision got a bit blurry at times it was really nada. An occasional headache but that was nothing as well. The only sx that I really felt was the first two days, I felt pain in my legs, like I had been hiking all day the day before I started. It was noticeable but I just felt like it was the Harvoni attacking my viral load. It worked out great, my feet and ankles used to swell up daily, haven’t had any of that since the day I started. If you’re gonna be taking a vacation, go for it! That’s what I’d do.

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
1 July 2016 at 8:54 am #20231
klhilde
- Topics: 30
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- Total: 253
- Guardian Angel
@klhilde
My two cents …. I traveled to get the meds and started as soon as I got them. No problems for me.

Many people, myself included, have reported an energy bump early in treatment … seems to be roughly the second through fourth or fifth week. Imagine being on vacation while you’re experiencing an energy boost!

There is, however, a very frequent reporting, again myself included, of various forms of insomnia about that same time frame. For most it is a tendency to wake early (like BOOM … I’m wide awake!) and not be able to get back to sleep again until evening.

Personally, I’d go!
1 July 2016 at 10:57 am #20237
JamesF
- Topics: 3
- Replies: 19
- Total: 22
- Treatment Warrior
@jamesf
thanks, everyone.
I am keen to get started although a little apprehensive of side effects.
The energy boost sounds great, especially waking up awake. Currently, I feel groggy in the morning.

2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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