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  • 13 November 2015 at 7:57 am #3835
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    As you ramble on through life
    Whatever be your goal
    Keep your eye upon the donut
    And not upon the hole.

    13 November 2015 at 8:22 am #3836
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    I wrote this after a doctor friend, who I used to fly with, died in a hang gliding accident.

    The Path We Choose

    Do not shed a tear for me
    For I would not for you
    Instead just drink a beer for me
    And know well that I knew

    Dreams of flight do not come free
    There comes attached a price
    And we do not do it blindly
    We know we roll the dice

    Before you sail into the sky
    A sky slow to forgive
    Ask am I, afraid to die?
    Or just afraid to live?

    So if you try, to question why
    When fate can seem unjust
    We take these risks, not to escape life
    But to stop life escaping us

    YMMV

    13 November 2015 at 12:05 pm #3852
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    That’s beautiful Dr James.
    x

    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    24 December 2015 at 7:12 am #7199
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    That is beautiful Dr James :)

    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    24 December 2015 at 7:57 am #7200
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Ive been on this forum for a month or so and have only just read that poem…WOW

    SVR 24

    28 December 2015 at 8:16 pm #7459
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    I hesitated at first pill, fear of the unknown. But I wanted so much to be healthy again. I wanted so much less harsh treatment than interferon.
    I refused Interferon 5 years ago when there was no alternative. Now I’m glad I did. Who does not risk anything will not win anything! :lol:
    PS
    Very true what you say so beautifully in this poem, Dr. James.

    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    30 December 2015 at 12:00 am #7498
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    You were right about refusing interferon. If I knew about side effects I would never went on it. Luckily after 12 weeks I was pronounced nonresponder and quit therapy. I’ve met people that was cured by 48 weeks hell of pegi/riba therapy, and year after tx end still have numerous strange side effects.
    I’ve heard of possibility that things can go wrong with new DAA, but that is a risk I’m willing to take.
    My viral count is steadily growing and strange headaches, brain fog, and itching are also emerging, so I’m not preparing to wait of a miracle happening in Serbia, like it happened in Australia with PBS approving cheap therapy.
    For me miracle started when I found Greg’s blog in May just after stopping interferon/riba tx.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    30 December 2015 at 4:27 am #7514
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thanks for this post I am just waiting my treatment to arrive and yes feeling anxious in fact I just wrote a private message about it then found this awesome page (I am a nwebie here and about to get my meds) . I think after relapsing post tx interferon it must be normal to be anxious! This is a great thread, thanks so much loving the affirmation. Happy New year to us all :) :)

    30 December 2015 at 9:13 am #7519
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hi Ariel, welcome to the forum.

    After failing the old drugs I wouldn’t blame you at all for being a bit apprehensive! You know its not going to be anything like that :)

    I should finally start tx on Friday,on the Redemption-2 trial…got a few anticipatory butterflies too lol

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    30 December 2015 at 10:35 am #7521
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook
    zhuk wrote:

    I should finally start tx on Friday,on the Redemption-2 trial…got a few anticipatory butterflies too lol

    About time :) I wouldn’t have had the self control you have once they turned up.

    Nothing to worry about you’ll be fine mate.

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    30 December 2015 at 11:06 am #7525
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    Paul-Jarman-facebook wrote:

    zhuk wrote:

    I should finally start tx on Friday,on the Redemption-2 trial…got a few anticipatory butterflies too lol

    About time :) I wouldn’t have had the self control you have once they turned up.

    Nothing to worry about you’ll be fine mate.[/quote]

    Ha, thanks Paul!

    I’m sure I will, appreciate the vote of confidence :)

    Definitely the month that took several years to pass lol

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    30 December 2015 at 12:02 pm #7529
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Hi Ariel and welcome!
    Yes, go for your it ! And let us know about your story.
    You will see that is an easy treatment and also very powerful.
    Happy new year! :lol:

    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    30 December 2015 at 12:11 pm #7530
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4
    zhuk wrote:

    I should finally start tx on Friday,on the Redemption-2 trial…got a few anticipatory butterflies too lol

    Hi Zhuk,
    Happy for you!
    The world will not be the same after starting the treatment! It will change in a good way.
    Happy new year and happy treatment! :lol:

    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    30 December 2015 at 12:15 pm #7531
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Thanks very much isaing4, fingers crossed :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    30 December 2015 at 12:38 pm #7532
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Ariel, I am also waiting for my treatment to arrive, there are a few of us and after all the struggle of trying to access the medicines and medical support and learning so much bout all the ins and outs of the virus, I have a mixture or calm, excitement and nervousness.

    We can all support each other through this wonderful site.
    My very best wishes to you for an easy ride and the best possible outcome.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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