Home Forums Main Forum Patient Stories Young J the dragon slayer

Viewing 15 posts - 136 through 150 (of 214 total)
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  • #7627
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great to hear that J is doing so well Cindi – with great credit & courage to you for taking the leap to proactively help him :)

    Awesome that he can be a ‘normal’ 15yo now without the scourge of a progressive illness hanging over him. Great stuff!


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #7630
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Yes it’s great!
    Thank you guys.

    Paul how’re you going? haven’t heard from you for a while, hope all’s well?


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #7635
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Lovely to read of a morning CJ :-)
    Happy New Year !


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #7645
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Hi CJ,
    So happy for junior and for you, as mom.
    Life can be so beautiful. And it will be!
    Happy New Year 2016! :cheer:


    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    #7677
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    And he survived his first real party!! :P

    Now he’s helping his dad cut up timber down the back.

    I got attacked down there the other day by big jumpy ants, horrible buggers.
    Agony. So I’ve sprayed J with anti mozzie stuff hoping to deter them.

    Anyone know how to get rid of them?

    Happy new year to everyone.


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #7683
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    LOL Big jumpy ants :ohmy:


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #7685
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Yeah, we back onto the bush so we get all kinds of creepy crawly things, but these ants are the pits.
    they can jump about 3 meters!! :ohmy:

    They are very aggressive & sting like hell.
    A bit smaller than Bulljoes , but they all run & jump at you at once, like a huge creepy army.

    Don’t think they liked me throwing water soaked cow poo all over them….
    didn’t know their nest was there in the garden. :oops:


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #7687
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    You can keep them Cindi the worst we get is regular house ants but lots of them and i’m forever spraying barriers around the house to keep them under control.


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #7688
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Jumping Jacks! Yes, they are nasty little buggers. There is a nest in the creek reserve that my place backs onto but fortunately they stay on their side of the fence. :P

    https://en.m.wikipedia.org/wiki/Jack_jumper_ant

    While I usually say live and let live, if these are in an area of your property that you use often you may want to consider exterminating the nest.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #7689
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    ah, you’re lucky Paul.
    The sting from these ants lasts a couple of hours :ohmy:

    We used to get heaps of funnel Web spiders too but Sean use to pour his bike oil down their holes & they decided to all move house.

    But we also get good things like little wallabies, echidnas & bandicoots venturing up in our back yard.
    Lots of parrots, even a powerful Owl sometimes.

    So makes it all worth it.
    but wish the echidnas would eat those ants…. :lol:


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #7693
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    hi GAJ,
    That’s it,Jumping Jacks!
    they are nasty, but I think the cow poo must have freaked them out!!
    They seem to have disappeared, I hope so.

    Don’t like to use poisons as we also have BlueTongue lizards, don’t want to risk hurting them.

    We might try boiling water down their hole if they’re still there.
    ….if anyone’s brave enough to get close enough :ohmy:


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #7695
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Damn, that’s a new one on me Cindi! Hadn’t heard of venomous jumping ants before (but hey nothing in this country surprises me)

    I’ve been staying with my mum in funnel-web central most of the year, if its not that its a brush turkey invasion lol


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #10620
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Well, it’s been a long time since I posted about J, but his tx journey has been so smooth, there’s been nothing to comment on!

    Very nearly at the end of his 12 week tx, only another week or so.

    So is the go to wait 4 weeks post tx for the next bloods?
    Not sure.

    J is extremely well & happy, back to school to tackle year 11 this year, hopefully he will feel more like doing his school work now. :unsure:

    He turns 16 in a few weeks! How wonderful if he’s hep free now, would be an excellent 16th birthday present!!!! :)

    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #10627
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Oh Yes,what a fabulous Birthday Present! So glad things have been going smoothly and he’s about to finish Tx. Happy 16th J!!! Great job Cindi – so awesome you’ve been able to get him this Tx :cheer: :cheer:
    All the best for the both of you being virus-free and healthy :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #10634
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi Cindi,

    Thanks for the update on J, the time has flown! Sixteen and hep free is great news. :cheer:

    Tho’ I have vague memories of being that age once so not holding my breath over him feeling more like doing his homework.:whistle:


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

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