Home Forums Main Forum Patient Stories Young J the dragon slayer

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  • #10651
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Tho’ I have vague memories of being that age once so not holding my breath over him feeling more like doing his homework.:whistle:
    Ha! :lol: :lol:
    ‘fraid you may be right Gaj !!
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #10652
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    You are amazing your whole life is inspiring and your story both of you has completely overwhelmed me
    Congratulations on all the incredible outcomes you have achieved
    Xxxxx #love #love #love

    #10656
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Cindi that is amazing……J’s treatment finishing soon…and a 16th birthday to celebrate! So glad everything has gone so smoothly and he is at School ready to tackle Year 11……..look forward to seeing his final results.

    Dr Freeman advised me of the following “At 4 weeks post treatment UND means a 96% chance of absolute cure, and at 12 weeks UND means 99%”. Hope this helps your query.

    Best wishes to you both. :)


    YMMV

    #10661
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Cindi,

    Happy Birthday to J and well done you! I remember when J was starting out on his treatment. It’s still hard to believe that people shoot out the other end so quickly and so undetected! Wishing you the very best results for his 16th.

    Coral

    #10662
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Cj you and your boy deserve all the health and happiness coming your way #duck #duck #duck #duck #duck #duck


    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    #10672
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    :) Now you are making me smile!:)
    :) Smiles are contagious.:)
    :) Not all contagious things suck.:)
    :) Smile are great!!! :)


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #11619
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Just wanted to update.

    J has finished his 12 week tx, and was tested & UD, which I thought he would be but nice to see anyway. :)

    Now the wait for the “big one” post tx 4 week VL.

    He’s doing really well & very happy.

    He today had to see his dermatologist, who works with his old liver specialist.

    She asked how’s J’s health going, & I told her how he is virus free & she was so happy for him, but her smile seemed to fade a little when I told her it was from “generics”.
    I expected that reaction, most specialists just don’t know enough about them I guess.

    But she may not completely believe, me I think, because she’s insisted that he has a LFT test tomorrow.
    ….What a waist of time, oh well, I guess she’ll see his good ALT & AST & see for herself.

    Anyway, we will keep posting his results.
    And I’ll still be hanging around to cheer everyone on :cheer:

    Thanks to all for the wonderful support. It just means the world to me to have a healthy child at last :)

    Cindi x #flower #love


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #11620
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    That’s great news CJ…so glad he is doing so well :cheer:


    YMMV

    #11622
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Hi Cindi

    so pleased for yourself and J – must be a huge weight off both your shoulders. As for the specialist J’s SVR and 4 week post treatment result will speak for themselves and you never know it may just be the thing to change their attitude toward generic’s.

    At the end of the day so long as J and you are happy then that’s all the matters. #love


    SVR 24

    #11829
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hi Cindi, it’s great that J is doing well #love , but a shame about the Dr’s reaction. Anyway, let the ‘doubters’ run the tests and see the results for themselves!

    All the best to you both, it really must feel amazing to know your boy is virus-free and will not have to live with this. I’m so happy for you and your family :) #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #11882
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    That’s great news for J Cindi , finished my last meds 2 days ago myself and will get tested in 4 weeks when I get home :)


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #11886
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Cindi such great news for your youngster J deserves the best only
    I hear you about the weird vibes eminating at the mention of generics I know a lot of us get the same rot. Just a control thing I think.
    Silly when we have actually trailblazed these DAAs and actually provide a data cohort for free if they wanted to collect our responses to the DAAs isn’t it!
    Looking forward to hearing of Js continued progress and wellness thanks for your posts Cindi and the support you give us here on tx
    Love from Ariel x

    #11923
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Thank you so much for all the well wishes! :cheer:

    Good luck Paul!

    How’s your holiday going?

    Miss our chats.

    x #flower


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #11952
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook
    CJ wrote:

    Thank you so much for all the well wishes! :cheer:

    Good luck Paul!

    How’s your holiday going?

    Miss our chats.

    x #flower

    Hola Cindi everything is great so far , we are currently in Chile and getting plenty of vitamin D :) we’re staying in a place called Vina del Mar and the locals are currently in holiday mode :woohoo: , Buena noches.


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #11967
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Ha! Have fun :P
    x #love #flower :+1:


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

Viewing 15 posts - 151 through 165 (of 214 total)
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