Home Forums Main Forum Patient Stories Young J the dragon slayer

Viewing 15 posts - 61 through 75 (of 214 total)
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  • #4554
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Very glad that you and Dr J were able to pin the cause down so fast, and get J the help he needed. A great relief all round! I hope he is feeling better asap.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #4597
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    I suspect every member of this forum who has visited in the last couple of days has been following this story anxiously. Great news that young J is ok CJ.

    #4598
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    Hi Cindi

    Dr Freeman put this tool up some time ago, it is awesome. Provides us with knowledge on what we can take and importantly what not to take. Em

    http://www.hep-druginteractions.org/checker

    Just click on both drugs that J is taking and then click next. Now you can find the panedol or drug in question via brand name or class of drug, click on drug, press next and head to the bottom screen to see what it says. Green diamonds are good, orange means they don’t know, red means don’t take. You can generate reports from here as well to get the detail of the interaction. Do this by clicking on the green, yellow or red.

    PS: So glad J’s ok

    #4602
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    “So glad J’s ok ”

    Me too xx


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #4675
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    So very glad to hear J is alright and found probable source of illness. Lucky for you to have Dr James there to help!
    All the best to you both :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #4681
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    I’ve looked in the link to the drugs that interact with the generics,
    but can’t seem to find if Minamyacin the broad spectrum anti biotic is ok or not with Harvoni?
    Anyone know please?
    Thanks x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4690
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hi CJ

    I looked up Minomycin…is that the right med?

    Its a tetracycline

    MINOMYCIN is used to treat acne, which is resistant to other antibiotics. It is also used to treat various other infections.

    MINOMYCIN belongs to a group of antibiotics called tetracyclines. They work by stopping the growth of bacteria.

    Your doctor may have prescribed MINOMYCIN for another purpose.

    http://www.mydr.com.au/medicines/cmis/minomycin-tablets

    And the hep-interaction table seems to be fine for Sof/Led :)

    tetras.jpg


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #4692
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi Cindi,

    Would that be Minomycin (for acne, etc)? Oops, zhuk beat me to it.

    Also may be listed on pack as Minocycline Hydrochloride.

    G


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #4725
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    THANK YOU GAJ & zhuk !
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4726
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    J’s one week VL ( viral load) went from 2 million down to 37 :cheer:
    Amazing!

    He;s now day 17, and feeling great.

    Quite sure his bout of sickness was due to a gastro bug, nothing to do with the orals.

    J seems to be a lot happier lately.
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4730
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    That is awesome news, Cindi, really pleased for J and for you…what a drop in VL!

    Yep I don’t doubt at all that there might be low-grade depression that we assume is endogenous, but turns out to be the hep – great that he is feeling happier in himself now :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #4731
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook
    CJ wrote:

    J’s one week VL ( viral load) went from 2 million down to 37 :cheer:
    Amazing!

    He;s now day 17, and feeling great.

    Quite sure his bout of sickness was due to a gastro bug, nothing to do with the orals.

    J seems to be a lot happier lately.
    x

    Thats great news Cindi hope you now feel vindicated :)


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #4751
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi paul,

    Oh YES!! I feel vindicated! sure do!

    Hope those doubters, from the other forum, see my post :)

    I just hope this helps others believe in these wonderful generics!
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4752
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Hi zhuk,

    Yeah I agree, I think depression would be a hep side.
    The stigma of it is enough to put you into depression. :(


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #4757
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    For sure, Cindi…and especially as a youngster it must be difficult. I was 21 when I contracted the virus, but had other medical issues which pushed it way into the background – until I started noticing symptoms in more recent years. Great that J can get treated now and will be able to enjoy his adulthood free of its effects, both physical & mental.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

Viewing 15 posts - 61 through 75 (of 214 total)
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