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  • in reply to: Fitz starts REDEMPTION 3 Trial #19212
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Welcome Sven and a big heartfelt hug
    It will get better with these meds you can be cured
    Hugs
    Ariel

    in reply to: AHF Campaign to shame GILEAD #19211
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Bangin my head on a rock
    Help another person
    Why is it so hard!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    My personal offer is just impossible it seems.
    Gah humbug (sighs exhausted)

    :S :angry: :-1: <img style=ick:' /> :(

    in reply to: Hep C sufferers’ ire at activist-website ban #19177
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Well done all
    I’m under a nom de plume on that Pieper thread in my reply due to Australia’s stupid prejudices and all.
    Anyway,
    I wanted to know more about this man who is clearly not about treating all asap from his glib comment. He has a strong profile for the PBS.

    Also, Thankyou Hieu amazing reply to the other discreditor suggesting we are guinea pigs!

    Ty also international friends :+1:

    https://www.hepmag.com/blog/will-prioritised-treatment

    https://mobile.twitter.com/seymour_akshun

    in reply to: AHF Campaign to shame GILEAD #19176
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    :(

    in reply to: discomfort in liver after tx #19174
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    For this lil duckie during my delightful 40 plus weeks of loo hugging on peginf I discovered that for me Ginger was the new Black
    I’m still using ginger
    There’s always buderim ginger of some description in my pantry and fresh ginger in my cooler drawer.
    Try it grated into dishes and squeeze lemon juice over it to take away some of the bite if you don’t like the bitey flavour.
    I’m a convert. Celery with the juice cocktail too makes it cooler on the mouth
    My mouth and I are just beginning to make friends post DAAs lol ;)
    Ariel

    in reply to: Drinking Alcohol Post SVR #19168
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    ALT <9 GGT 13-15 ish last bloods (SVR8)
    Non drinker
    Never will drink a drop again
    I was never a real drinker in the Aussie archetypal way. (Mind you in the UK I laughed when they ask "will that be a large?")
    Have had some beautiful wine during my age 35-40s after all I can stroll to a boutique winery from my farm. Probs just call it that mum chardy thing.
    Don't feel like I'm missing anything and nowdays can't abide the smell of alcohol
    No idea why the smell turns me off.
    Maybe I just am overprotective of my body after all it's been through since diagnosis. Pretty sure that's me. I'm like that.
    So.... To those who are raising the glass have a Bolinger for the mermaid here #love

    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Michael
    I’m unable to get into Redemption section under main menu James has popped a message up telling us we are “re-directed”
    I am still able to get into GP2U and the info on how to contact them.
    All else seems accessible too
    Cheers from Ariel
    GAJ have I missed anything?
    :) ty

    in reply to: Hep C sufferers’ ire at activist-website ban #19103
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Waiting :whistle:

    Yep you’re still there GT2

    in reply to: Fitz starts REDEMPTION 3 Trial #19065
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Dear Fitz
    You have really touched me and I am hijacking your thread to talk about why a random lady (me) was almost dead three years ago not from hepC but from peginf riba
    As a white collar who has lost much to fighting a disease I had no idea about…. you have echoed my story; the part about being treated like a leper and people dumping prejudice on us. Also the interferon part. I was pumped with it with no explanation no fibroscan no gene test and a VL of around 400,000 only and in excellent health
    I have during and since had to take a huge loan against my house, I have lost my siblings completely, have had no help at all and have also had a huge internal house fire whilst on peginf which was massive and because those meds fried my brain and I forgot the oven was on and I had two daughters to launch in uni and so on. Yes I had to replace whole rooms whilst like a skeleton. I’m still called disgusting names. I’m hepC free but mud sticks and it comes from all sorts of mudholes.
    I think it’s sad that two things are glaringly in my face and obviously in others faces too
    Firstly the fact we have been treated with prejudice
    Secondly I am regularly taken for a complete f wit for having interferon so recently and constantly read posts complimenting and affirming people who were educated and getting second opinions and the like. However I had no reason not to trust my doctor at that time, I come from a family full of medicos who then treated me like a leper and refused point blank to engage in ANY way with me when I told them in 2012 my diagnosis and asked for support.
    No I simply got sent straight to a private specialist who put me on a supposed cure peginf riba that day and I trusted and I believed
    I’m not a doctor I am a teacher and professional cellist. My life has been spent for over 20 years conducting orchestra, teaching the Arts, scholarship cellists and more. Where would I have heard or learned about this illness? Nowhere!
    I was new to this whole thing
    Now it’s so traumatic reading posts about the sheer genius apparently of those who didn’t do peginf riba that I see a psych to support me and the ongoing legacy of that negligence in my story.

    It’s awful, just awful as I am now an activist a helper and a generics promoter. We all want this disease wiped out globally.
    I’m thankful you wrote your story at Day 7
    I won’t hijack your thread again but am relieved that I am not the only one who admits they lost people. Thanks again
    I’m emotional too. How can we not be? The mess around this whole illness is enough for anyone who has an ounce of love for humanity to feel emotional
    Shakka and peace to you Fitz
    Wishing you well and a full cure too, may the weeks fly by fast
    Hugs
    Ariel

    in reply to: Fibrosis Cirrhosis kPa and F Score and Hepa Score #19063
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Sabre
    I made LG a t shirt and flares ages ago
    They’re on her blog and on mine
    Ariel
    Here are screenshots of what you missed for a laugh

    image-2-3-4-5-6.png

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    in reply to: FixHepC – Party Playlist #19040
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Walking in Memphis … Very emotionally touching that tune #love
    Same with Don’t Stop Believing #flower
    GT3 Ty for Dire Straits so here’s a good brag I worked on the Love Over Gold tour in Vicco in the 80s but said no to going interstate, felt a bit too young, to be totally honest. It was massive fun anyway in Melbourne to be so close to them. Knopfler was unpredictable each night no two gigs were the same what a musician! Nights were super late around 2am earliest then I was working in Flinders Lane as well all day. Ah youth when you just didn’t even think about sleep! Now we all have hissy fits just because we wake for the bladder at night haha. Well I do ;)

    Made it home, celebrating with an oldie that’s been playing in my head. Loving the tunes friends keep em coming this dinky di chick loves em :+1:

    http://youtu.be/wVKO2bEPfPk

    in reply to: FixHepC – Party Playlist #19028
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Made it to da big smoke woot woot
    Down Down

    in reply to: Patient Zero #19020
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Ty for bumping up this post
    I followed Emilio here asap after Dec 1 knockback
    Thanks Em
    Thanks Neville
    Rawk
    SVR 8 and on way to 12 yew!
    Ariel who is also saying treat NOW :+1:

    in reply to: FixHepC – Party Playlist #19019
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Matt that’s an insane clip never seen it b4 loved it ty
    Yep a few Aussie mermaid sheilas here; I am loving your using ‘ocker’ slang “sheila” too and we are also known as “chicks” haha
    Shakka
    Ariel

    My weekend waves were freezing but fine as gold :+1:
    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28-29-30-31-32-33-34-35-36-37-38-39-40-41-42-43-44-45-46-47-48-49-50-51-52-53-54-55-56-57-58-59-60-61-62-63-64-65-66-67-68-69-70-71-72-73-74-75-76-77-78-79.jpeg

    in reply to: FixHepC – Party Playlist #19018
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Ty for Ballroom Blitz I will sing it loudly on way to the city today
    Extremely anxious about driving I have to do
    Learned every word of that song on the school bus. Loved it and all Susie Q too
    But I need to dig back further to get through my anxiety stupid day behind the wheel doing way too many things being a mum n all

    So I am into some Canned Heat
    Focusing on the drive back home b4 I even leave here in the sticks

    Love this disco makes long trips better I listen in my car
    Wish it was a radio station

Viewing 15 posts - 331 through 345 (of 1,060 total)