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Yup, best thing , booked the doc for Friday morning nice and early. Thanks for all the inspiring pictures and beautiful uplifting vibes from Hieu, LG, Beaches, GT2, Matt and friends. I am sure I will be fine. I just need to know. see it in print, and generally chat about stuff. Y’know, that kinda inner sanctum of the docs room stuff. It has been a month almost. Always good to have a chin wag and check up, might get an FBE if I feel like it too. As I said its cheaper than the UK here anyway, we get our PCR RNA for $155 (sorry Debs and LG eep) and I am worth the extra bucks yes Beaches we only have this moment. Isn’t that one off the lessons this HCV experience teaches…we only have THIS moment, so always make it real.
Re timeline and clinical notes, I do have more energy. Who was it that said turn around is around 8 weeks after EOT…Pat1, maybe Tina? I cant really remember exactly but I agree. I am also still eating, I am also still carrying a great weight for my body type at LAST!!! All good signs. TY all. I will post my SVR8 when it comes in late next week.
Ariel
Good luck Ken! Thinking of you
And here’s a song just for Mr Mexico
And yes despite the sport MY BODY HURTS STILL since peginf
ick:' />Well its into week 8 since this tx for me
I might pay for another PCR RNA ($155) here, cheaper than England I read.
Ah life… You really know the curve balls.
Hey! Other peginf suckers like me… Do you get this too???? Maybe I am the only nut on this planet who was pumped full of it at F0 and a VL of 420,000 and the wrong gene anyway
I am pretty sure I seem to be. Anyone else was really sick and many said no. I wasn’t sick at all
I just wasn’t TESTED and put on peginf. Think what you will about me. Don’t care, not a doctor.
But it’s sure screwed up my audiation, my bones, luckily the “rare reactive lymphocytes with abnormal morphology” that it gave me are gone, lucky the severe neutropenia and thrombocytopenia and extremely low platelets have restored after these DAAs seem to have put a lid on my peginf hang over blood work, but it did introduce anxiety and PTSD into my life they’re charmers aren’t they (oh no! Ariels mentioned anxiety OMG)
Anyone who long term has battled these issues I applaud you because having onset only a few years ago and never having anxiety or PTSD b4 I certainly know the difference
Have a great day as you go about your tx or work or for the other side of the world, your rest time.
I’m booking a test for Friday at least I will know more b4 the final one.
ArielGood luck for the future Tina I have previously in the thread wished you well and I also finished tx and await SVR 12 coming up (fingers crossed) I hope you enjoy a great rest of the year and I love Pink she is awesome good choice of song
Ariel
Hi friends
I’m listening to the live stream of the 69th World Health Assembly at this link:http://who.int/mediacentre/events/2016/wha69/webstreaming/en/
I sent the WHO a decent letter, and am nagging them in my usual anonymous way as well I found a way to communicate live, but I feel very strongly about the apparent “celebratory” vibe that came from the HepOrg Newsletter where I live yesterday announcing: (and I know they’re govt funded so have to say these things but……
“Dear …..
This week is a momentous time in the course of history for viral hepatitis. At the 69th World Health Assembly (WHA) governments will decide whether to adopt or reject the Global Health Sector Strategy (GHSS) on viral hepatitis, which sets a goal of eliminating hepatitis B and C by 2030.”This is exactly what I argue against! I’m arguing that the virus in 14 years can take off (even more than our current diagnosed 150/180mil) and without global equality in terms of testing, tx and follow up we sound like fools aiming for 2030. The goal by 2020 is to TREAT 3mil. I posted graphs earlier showing same pulled from the WHO. I’m going back to check the validity of this statement from my HepOrg too I don’t actually think full eradication was mentioned for 2030.
I say USE GENERIC medicines act NOW it’s IMPERATIVE!
Overall surely governments see the approaching medical and fiscal nightmare that’s going to result from NOT acting more efficiently and fast.
Another intention was to write to the UN well from the UN a Mr Michael Molar (sp?) is present as a guest delegate.It’s hard to get people fired up here to really lobby loudly
The HepOrg apparently ran an awareness day but I only found out via a newsletter saying it had already happened
That’s not unusual here. Those who have thought “oh Australia yep they have the PBS” no it’s not that simple although it is available apparently I have had enough! After lobbying for the release of the DAAs for the last couple of years flat chat and been bullied been laughed at because of becoming my own Messiah and buying my cure I feel sickened when I visit clinic and people STILL ARE NOT GETTING TX not on pbs not from major hospitals.
This makes it very frustrating
We need to pull together globally
We need to be even louder.
Yesterday I watched and listened to Dr James presentation at the EASL. You most probably have heard it if not it’s here:Okay I am leaving after this rant. Please don’t bite my head off anyone remember that I am a person too and although you might not like something about me you don’t know my story or me. Thanks!
I’m simply trying to lobby and I am alone in it. I refuse to align myself with any organisation as most receive govt funding etc and yes there is competing for attention etc out there (ridiculous!)
Ariel Congratulations Tina this is wonderful news, it made me a bit teary I am happy for you so happy…I wish you a long and fulfilling life without any hepC and lots of amazing great times, love and splashes of super happies from ArielHi Hope
I’m really backing you I want you to get SVR12
I’m glad to read so much loving kindness for your anxiety here you know I think of you and send you a hug as you go toward this important blood test.
We must be about the same EOT timing my SVR12 hospital appointment to follow up bloods is 1 July so I need to get them taken a good week prior to that
I’m just happy to see how much love and support you have its brought tears to my eyes
Anxiety is tough Hope
I’m one friend who won’t ever underrate the effect of it or judge anyone who suffers anxiety
After all, my own father did four active tours of duty in WW2 as a wireless airgunner and he was my best mate and overcame intense anxiety from the War.
Sending you love and fingers crossed for your SVR12 From Ariel who totally understands anxious symptoms (peginf legacy in my case as you know but I’m a bit frightened to talk about my terrible issue here these days) I can only say
I UNDERSTAND
Love from ArielHi
I’m F0 and went in with a very low VL (240,000ish)
I have had exactly what Gaj described
It went away.
I’m around 7 or 8 weeks past EOT not sure exactly
My pain was like a sharp stitch
I didn’t worry about it just asked my GP and talked to a friend for peace of mind
I got SVR 4 regardless of the pain stabs
And yes they’ve gone.
Ariel
(Who’s just tried to allay any people’s worries in a long winded manner)
I agree a GP check.Huge congratulations from this duckie GT2
UND rawk!
Loving the cartoons and gifs everyone
You have such an upbeat vibe GT2 ty
Yeah I just woke up at 7pm and thought it was tomorrow haha
I’m proud I took on some mean waves on a shallow reef backside this morning yeah these swells are major
I guess this deserves a #woohoo piccie!
Congrats Westie awesome news 
illy:' /> mine were held in Customs for a week
Yup stood at the mailbox waiting for the mail lady to come rofl omg yes
Talk about possessed!
Yay I am so pleased for you Matt
I took sof/led 12 weeks and it works
Now for the truly amazing part you won’t believe the difference it’s fantastic
Keep posting I am enjoying your posts and by the way I used to find myself standing at the mail box here when I was waiting hee hee
Onwards ho! Wishing you every success Matt
Splashes from Ariel
