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Pat1 has won in reducing me to tears in the beauty of that piece. Magnifique
Sad news about George Martin Pat1 ty for these songs
I’m aiming for this level of antique behavior myself
Loved this since Sigur Ros released it years ago
Fantastic videoSmall update from the mermaid cave
Went to Liver Clinic took privately sourced excellent path results from blood collected at around day 32 which was reported on Day 40 as UND gave a duplicate to nurse got gold star for providing duplicate rather than them photocopying
Sat and waited for a gastro for so long I started making toys by blowing up the blue gloves from the sanitation box
Organised EOT bloods. Receptionist didn’t know what EOT meant. Now does.
Lovely gastro this time, regular one gone to Europe nice timing given the PBS recent thingy.
I’m one of only patients on tx was told. You can all read into that one good to be our own boss hey.
Booked follow up colonscopy had a small scare post interferon re polyps and adenomas so now need frequent check not looking forward to it hate general anaesthetic have a rough time historically but liver clinic hospital know about it and frankly I don’t want to have it done through my private health insurance anyway.
Have read as many updates as I can and stoked to read EOT and SVR coming in.
Just over three weeks to go here
Insomnia has increased don’t care.
Nausea decreased and I have put on 7kgs in total very pleased that the skeletal legacy of peginf is now resolved. Looking much better than just bones with Surfie muscle now face is fuller and tummy too. More feminine.
Hair very soft, skin much healthier granuloma reducing weekly will hope for the best with that I would like to never take predisolone again
Love my psych visits fantastic to chat to another lady who has ears and who is completely void of judgment re why I was put through peginf for no reason it’s been a very difficult realisation for me. Like how she allows me to grieve for my lost hearing and other residual physical damage from that tx.
Very healing for my mind and going forward
It’s 4am here and I have been awake since 2 despite a long day
Gastro at clinic agreed that insomnia is a sx they noted during trials phase at hospital it’s just ride it out anyway it’s quiet in the small hours I like it for collecting my thoughts and something just do a TM (transendental meditation)So that is me done. EOT is April 4 no bloods til then as I mentioned when I got my UND earlier
Just riding the wave until then and the Brian Wilson gig the night b4 so nice way to go out.
Hoping all are traveling well
Sending happy vibes
Splashes from ArielHi Jill the poodle
Yup you got it I am on Buyers Club Sof/led around about week 9 now not long to go on a 12 week course. Very privileged to afford these meds which have done the trick I was UND around day 32 or so blood collection reported at Day 40 by my GP. I’m off to the liver clinic this morning so driving up to Melbourne ergh early start and thick traffic.
Agree with you about the PBS meds I was told verbally not much would be given out just last week over the phone by the hospital. Hopefully people who were advancing liver disease got in by now.
Have a great weekend good the aspirin thingy got sorted
Yes look forward not back I hear ya on that one
Ariel xWelcome and wishing you all the best for tx Rob from Australia
These meds are wonderful they actually work
Regards ArielWonderful Sirenchenge
Love waking up to this great news on the other side of the globe
Congratulations from the mermaid
Ariel
I am glad I received an email notification Zhuk. Three days iin the clink huh, must be great to be home, albeit in pain and sporting a big scar and a bit missing. Hoping your recovery is excellent. I expect you will have bloods done lots for your TSH and so on. You possibly resemble a pincushion anyway…I trust all went well with taking your meds and so on, and now onto week ten great stuff, almost there. I send you warm wishes for a relaxing and speedy recovery and lots of sleep to get over the anaesthetic and all. Love from Ariel
http://fixhepc.com/forum/patient-stories/97-emilio-s-place.html?start=270
Yes Chejai
I popped this up on Emilios blog a little while ago
See link
Ty for starting a thread
The petition went in last Friday but I understand it is not too late to sign
The girlfriend who is my surf buddy in Qld is lobbying she is a path nurse and alerted me to this situation
Glad you started this hope we get more signing
I’m concerned too its mad the whole concept
These explain it well!
Cheers from ArielFantastic news re UND Honker!
Hey I go to HI for the Vans Triple Crown each year love the place especially Kona and Haliew’a
Also Kauai if I have the time and $
Flights from Aust are so cheap $229AUS one way !!
Have a great week sounds like you will be enjoying the HK humidity huh after the dry heat of Oz
Congrats again from me
Xx
Ariel
