Forum Replies Created

Viewing 15 posts - 796 through 810 (of 1,060 total)
  • Author
    Posts
  • in reply to: FixHepC – Party Playlist #12929
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Oooh hey I nearly forgot this Flamings ripper
    I’m sending this one out to Gilead and chums

    in reply to: FixHepC – Party Playlist #12928
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Just because I love the Flamings and especially this song

    in reply to: FixHepC – Party Playlist #12927
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Don’t stop thinking about tomorrow

    Yesterday’s gone yesterday’s gone

    http://youtu.be/SjFmaKx9Lw4

    in reply to: Drinking alcohol #12916
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I like the psych she’s cool
    I was recounting the booze bit it was part of an hour consult and seriously funny
    Maybe it came across seriously but if so re read my post I did say she was gonna drive me to drink haha
    Okay I am talking about the heightened regard they all have for my apparent risk of hitting the bottle and I lol it all!
    The skin specialist has ZERO bedside manner and I did feel threatened after all these other troopers had put their twenty cents worth in the beer mug
    Re the pulling out the FixHepC sheet yup I also had the same sort of thing from my GP absolutely stoked for me actually am his first patient to do these meds the UND we did via a private path request he did because of the assay range coming in under 30 at Day 25, yet to see boring hospital
    Pretty sure they are just going to do the usual monotonal name call, ask me if I have missed any pills, ask me if I drink (will wear booze style top defs eg Heineken T shirt from oppie) and tell me what I already know as they have written me up for bloods for this week lol
    I’m a tad over the booze question
    On a serious note one reason I like this psych is because she actually “gets it” when I do say that I have social inhibitions because all my friends drink and I have realised I avoid social situations
    Also because of being sick post peginf
    That part I do want to thrash out with her
    There are so many wineries where I live there’s one about five minutes walk lol
    I could easily be at risk not!!!
    My drink of choice is the ocean anyway it totally inebriates my all.
    Surfed my ass off yesterday it was fine as
    New clarity again since UND
    Drinking in the local aloha here in Oz

    Attachments:
    • image-2-3-4-5-6-7-8-9-10-11-12-13-14-15.jpeg
    in reply to: So, the battle is joined! #12887
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Great news re your UNDies status zhuk yay
    I’m sharing that vibe here now too
    Not great about your mum
    Sending you a hug and hope for a resolution to surgery or not soon
    Hugs
    Ariel x

    in reply to: FixHepC – Party Playlist #12886
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Fantastic isiang feels like this ride yes in a movie capsule great choice of vibe loved that

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #12882
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi lovely I am so pleased you have got Dr James onto this issue
    I’m so happy to read you are doing 24 weeks so many people do
    I know you will clear all in due course
    Anxiety seems to be rising and I am sending you chillax vibes
    I’m sure that it’s a totally overwhelming place to be as a peg/inf nuked babe here who had to be tubed up in hospital etc as some others will relate to this type of escalating during a tx is so worrying
    I want to send you reassuring love and yes great great that you have Dr J on the team in your court and advising you
    Have you ordered your meds? I’m at week 8 almost so you must have just started it.
    That’s around four weeks to get sorted is that easy or hard from the UK? From the things that I have read on your most candid honest blog its a mess over there. Will you have time to get the extra meds? I recall mentioning Em who did a longer course to you
    Yes mutants
    Well they scare the poop out of any of us who have been through peginf
    I didn’t know you could just have them tx naive as well or have a gene test for them is it the Il28b test? Or another one?
    With riba if you are recommended remember it’s a rash causing med and that the very best thing is no soap even in your clothes wash.
    Use dermaveen it is THE BEST. I’m getting ahead of you but just thinking of you going through this time.
    Hoping no riba actually
    Let us know if you are sorted on time and re the protocol you are put on from now
    Big love
    Ariel xxxxxx

    in reply to: FixHepC – Party Playlist #12822
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    That was cool ty 2b

    I’m enjoying surf sounds just for a change <img style=illy:' />

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #12820
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    It’s worth it and when you get to UND I found (and it’s only been a few days) that my mental state changed dramatically
    I’m sick all damned night but my mind is clear as
    I would overtreat if I had any worries myself
    Go for it girl
    It’s within reach for sure
    #love

    in reply to: Drinking alcohol #12819
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    So a quick trip to the skin doctor and I mentioned the UND and asked about my granuloma
    Again I am warned “do not drink” well I almost started to cry! An old lady like me! Seriously I said, please don’t ask me this I am over it! You are the third medico who has immediately asked me if I am drinking in the past week!
    I do not present physically as a drinker
    This is getting weird!
    I should just go to the op shop and buy a few really blokey T shirts feat Homer drinking Duff and Heinekin styles etc and save these for all appointments! Argh
    #rant
    I don’t drink!

    in reply to: SVR but still not feeling right? #12770
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hear Hear Gaj
    Yup
    I am so with you on this
    That’s why I made it clear my main issues are peginf related no not these minor DAA sx like an upset gut or a headache or sinus etc
    Actually
    Since my UND I now view my tablet as a lolly not a tablet its a psychological trick I am using
    You make a darned good point
    I’m all for getting on with life too
    And yes Mike my knees are where the nerve damage is already and these DAAs are a biatch on my knees

    Splashes
    Ariel :+1: :+1:

    in reply to: Any Post-Treatment Reflections? #12769
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Mike, after 24 years at the coal face I am not looking forward to going back to teaching
    Yup germs
    Not the kids the stuff that coats them lol
    As a Strings teacher I always insisted on detol wipes in every kids kit
    So gross even tuning up you never know what’s on the tuning peg lolololol
    Ariel x

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #12767
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Babe, forgot to add, before this my VL was only 240,00O and I didn’t get UND til day 40…..
    So you are winning

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #12766
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I wish you had the UND I won’t lie
    But I do know that these meds can suddenly show at EOT this UND we want
    I was counselled going in as a peginf relapser we are all hung up on an old four week test that used to be crucial
    I learned all this stuff after I was popped on peginf for no reason with a VL of around 400,000 and no fibroscan even blah blah
    I was VERY inquisitive re these DAAs because of my disgusting past experience in fact almost too scared to even start anything ever again
    The good oil was that these can clear at any time
    My specialist tells me that it can be a week or even bammm at EOT
    I was also told I could always extend if I felt like it was better for my SVR especially with the risk of mutants from peginf
    I think you will come back with an UND soon
    Possibly at week 8, if not ask about extending tx if you feel anxious it’s worth it. Emilio did a longer tx due to the issues that I mention re peginf and he is still SVR
    Keep me posted
    Keep at it and stay warm and chillax
    I have a personal opinion that stress is a tx hazard but I am no doctor
    I suffer anxiety so I am right onto any stress and just chuck it out
    Thinking of you hunny
    Love and hugs
    Ariel #love

    in reply to: SVR but still not feeling right? #12765
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel
    dointime wrote:

    I’m not just concerned about the damage caused by the tx drugs or the hepC itself. I’m concerned to TELL THE DIFFERENCE. I think there’s a tendency for people with hepC to assume that all their ills are rooted in having the virus. That might not be the case. But the rational goes that you need to eliminate the virus before you will know for sure. So fine, you eliminate the virus and you find out for sure that all your ills have not gone away with it. So you are left asking:

    1.
    Are my remaining symptoms a result of the various drugs that I took?
    2.
    Did the hepC itself set off some cascade of imbalances in my body that are not self-correcting now that the virus has gone?
    (But might still be corrected with medical intervention if diagnosed.)
    3.
    Are my symptoms unrelated to hepC at all, but have been mistakenly attributed to hepC?

    Of course, ultimately it doesn’t matter how it came about so long as there’s an accurate diagnosis and treatment. I just have the feeling that many of the mistakes made in diagnosis are because of wrong assumptions to start with. For example, if you are looking for something hepC or meds related you might not consider looking for coeliac disease or other conditions which might have been there all your life but gone undiagnosed. So I really think a big picture view is necessary, as well as a hepC specialist view. The trouble is, not many doctors have the breadth of skills to do that.

    dt

    Hi dt
    I can vouch that peginf riba has permanently damaged my hearing and many nerves plus left me intolerant to many food
    I also have PTSD and anxiety diagnosed from peginf and have learned to deal with the ongoing issues
    I was affected deep into my bones resulting in OxyContin therapy which I quit prior to stsrting the DAAs
    I don’t know if the current sleepless nights at almost week 8 on sofled due to vile belchy nausea are part of the peginf legacy or that the sofled is now really toxifying my little frame
    But I am up all night belching and in gastro discomfort and look forward to EOT
    There are many questions to be answered
    I have granuloma severe and am hopeful it will continue to subside thus preventing the predisolone which was the standard treatment for same. I hate taking a pill to fix any symptom or hcv or tx legacy. You raise a great conversation here.
    As all our livers, kidneys and bloods are in different states as all our tx experiences are so varied it’s a huge area which definitely needs research.
    I’m following this thread Thankyou dt
    Ariel x

Viewing 15 posts - 796 through 810 (of 1,060 total)