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Only a boy yet has wisdom and uplifting advice in his musical gift
This is Aidan two of his songs that have carried me and maybe they will carry someone else too
Sending aloha spirit from HICongrats Murr on your SVR4
A wonderful milestone the best! Onwards to SVR12 no turning back the data speaks for itself now. I’m so happy for your increased zest for life and stamina yes it’s a release from exhaustion and feeling just drained to be free
Emotionally, physically there is so much to the complex illness that is HCV and now you are free from it you can enjoy the awesome feeling of rebuilding life and renewed vigour
Sending happy splashes for your ongoing results as they come in
Love from Ariel
PS this is great news for me to wake up toThanks everyone for your love
I have a child in hospital in pretty high level care.
I’m so sorry I haven’t logged in I simply have no time
I have around a three to four hours drive daily to the hospital plus the time there
Hey, 2017 has to bring something good!
Sending thanks for this loving family here and apologise to anyone who has been worried by my absence I am getting used to the routine atm and wish all the very best as I am well aware we all have lives away from here that can throw up a slippery slope when we least expect it
Xxxxx
Love and splashes from Ariel
I will try to catch up with pms during the coming week
To our American friends I wish you a happy Thanksgiving ❤️Wonderful news Fara
I’m so pleased for you SVR12 the biggun is done!
Wishing you great health going forward into life HCV free
Happy splashes to you Fara
Love from ArielWord travelled across the Mermaid ocean that Fitz my friend had reached the milestone, and made it through the turbulent sea, to claim his stake free from HepC.
At SVR12 I send great cheer, for you, who has lent us all your ear; your kindness has been steadfast and true, and blessings have come now for you.
My friend I am so pleased to read your news and wish you only sunny views
I’m truly stoked for you it’s trueSending you my best
Love and humungous splashes from ArielHi Jeff
Yes sorry for the in your face post but I am an honest talker and don’t sugar coat stuff unless it’s to protect others from being hurt and this was worrying me. I’m actually starting to be able to talk more openly about the legacy of the whole thing but specifically the peginf damage to my overall life.
You have my empathy doing a second round of DAAs you know that I am sure.
I experienced relapse after a really rough peginf riba myself and well, it wasn’t pretty let’s say.
I’m building a new life yes, I have found I have no choice. Sink or swim and some days are just stay afloat. Personality comes into play, I am naturally hard on myself and also desensitised to medical stuff generally but lately have a heightened sense of foreboding, I think that you are possibly correct in that being unwell for a long time takes a time to get past.
Family I have are friends who know about what happened (only a few people) and my daughters that’s it. I’m grateful for FHC forum
It’s supported me and others greatly.
Today I sell a surfboard, in around half an hour it’s going. I still have another one.
Then I can pay a bill.
I am also resigning myself to this type of stuff for a while but also know that at least I own resources to dip into.
My heart is with those who have nothing behind them
At least I have worked, educated my kids and can sell off stuff until a security comes back into my life.
Regarding your tx I am sending you peace and hope for cure.
Thankyou to all the people who have rsvp to my post
Hanging in
Change is hard when it’s constant for over five years it’s tiring but I am trying my darnedest to rebuild.
Sending lots of loving splashes to everyone affected by HCV
AI’m glad I logged in I will wait at the finishing line Fitz
Mermaid splashes too added to Beaches waters coming your way
Yes yes you got thisHello forum
Reporting in after SVR24 etc a while back because I have an important query
Now that’s in my past and I have stepped back and re-evaluated my situation after losing my professional career to interferon after the patching up post cure such as $3,500 on teeth that were perfect pre peginf, having all scans and colonoscopy etc blah blah I have realised how much money this has cost me and I am forced to sell my home.So:
I’m also now extremely tired again in phases
I’m not in a reinfection risk cohort
I’m not a drinker or druggie as a person here once pinned on me very vindictively.I’m a regular mum and white collar.
Recently I started feeling very tired again
I’m better than before cure but not like a regular personI’m absolutely positive that peginf has stuffed me up.
The deafness is unbelievable
I suffer such loud tinnitus 24/7 it’s like several dog whistles all at once at high decibels it never stops
I still suffer anxiety
My shoulders feel like concrete
I do transcendental meditation which I have practiced for 25 years
I do yogaI have had periods of emotional feelings since SVR that are most peculiar and unexplained
I hope I haven’t got Hep B
I read on here that Harvoni causes hepB !!!!!!!! I want the truth about it please.
I was immunused it came with my professional role. But how do I know if I had had HepB before as I was never tested? I did have a medical procedure in a third world country in the late 80s remember and I got HepC that way they think so how would I know nobody ever checked me.What are the symptoms?
SO I have been immunised for Hep B but IF I did have it before that and cleared it spontaneously could I have it now?
I would appreciate a straight up answer to this query so I can request a blood test if needed. I will NOT be having one “for my peace of mind” or any other histrionic reason only if this is a real risk a proven risk and my post here is considered respectfully.
Thank you for your consideration of my query.
Wishing all well
ArielHi PaulDavid
One thing I can assure you
There’s no stigma or anything immature and ignorant here at FHC forum just support and getting the job done
You are among friends
Wishing you a good outcome from DAAs
Love from Ariel
Hi ThirdTimeLucky
Hoping you get onto your next tx and sort this out for good yes excellent generics are available and progressively newer more effective meds to treat more difficult cases are becoming increasingly available too. I have seen a lot of really promising information from Gaj and Mgalbrai and others here re new meds so I hope that gives you hope.
Sending you splashes of goodvibes for the future and empathy for relapse but most of all strength in your challenge.
Love from ArielCheering from the finishing line too Fitz
See you at the SVR line really soon
Splashes of goodvibes from Ariel23 October 2016 at 12:10 am in reply to: Cured of HCV with generic drugs – Full story of Rohcvfighter #24005You are a great advocate for FHC and I hope that many more people get cured by your outreach work ROHCVFighter.
I’m emotional after reading your story to comment much.I applaud you for this making a summary of your story. I hope nobody ignores this information it’s important and that other medicine (peginf) just ruins lives I sure know it.
Take the DAAs people they are here they are easy and work.
Ty for taking time to make your story accessible for people
Love from ArielDear Nads
I’m feeling emotional reading your heavy extra load of worries and I thank you for writing so candidly. Letting it out to be shared is really strong and there are a few single mums here to feel that extra pressure with you xxx Also I remember feeling extremely anxious around week 10 and you’re about at that stage of tx. Extra surgery also is always scary yes, I have a fear of GA myself and turn to a wet mess unless I’m treated like a two year old prior to any surgery; so I think you have lots of empathy from quite a lot of people here so many have had to have procedures too you will be supported here, and the serious nature of your issues will never be diminished here, people really do get it. It’s exhausting just wading through the paperwork for a household, let alone having to compile path reports, your sons health files, do the interface job of having a child with special needs between specialists, GP, educational systems, transport and all the extras attached to same.
I will be thinking of you today and hope you get some time out for yourself xxx
Sending hugs and a high five for being so strong Nads that’s pretty awesome what you’ve achieved so far keep going girl xxx
Love from ArielHi LG totally destroys the intended meaning BUT
“.. And now you’re all over, your song is so tame, brrrrr
You fed me, you bred me, I’ll remember your name (oh GENO) ”We can sing the oh Geno bit while we jump and hold hands and don’t care if they think we’ve gone a teeny bit nutty
Having danced in some clubs in London I don’t think we will stand out anyway illy:' />Oh Geno
I’m so glad we don’t have to know you anymore!!
Happy stomping from Ariel xxx thanks for your beautiful message xxx -
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