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RIP Natalie. I shed a little tear listening to Unforgettable.
I’m with you in this grief too when I read her passing and how beautiful her family and closest spoke of her this song was my go to in my mind. The love of her supporters was overwhelming. It’s very sad to say goodbye to people who have given so much to us all.
I love the musical tones of this blog Thankyou Belgium
Thanks for all this good information. I just called my GP and in July my ferratin was at 80 which is low end normal I think. I pick up a path request tomorrow morning for a B12 and LFT request as my meds are on the way. Keep the good oil coming and thanks again for the links James and the conversation everyone. I did a bit of a pantry makeover and have added almonds hazelnuts dried apricots oat bran and more yummies that are B12 rich
So loving this, signed…a professional cellist! This has uplifted me soooo much. I haven’t done a pro gig for three years form this damned hep and the Peg/inf drama, but this weekend I am soundtracking a short film on my ol axe…and it is so cool playing again after a hiatus, I am happy because I have something else to focus on rather than waiting for my meds to arrive imminently haha I Love your vibe, had to share a bit of my personal life, yeah we cellists RAWK (not biased or anything haha) Anyway I have just hijacked your page because it is full of fun and uplifting music, bring on the happy tones of any music…oh and rest in peace Natalie Cole, she was such a beautiful singer. <3 All the best for your tx and to all xxxx
Here is one of my favorites over the past twenty years...https://www.youtube.com/watch?v=0zFYxEINsdY
Great to meet you Debs and wishing you a bleedin brill result we are going to be tx buddies I start soon too as you saw
Thanks for the props and right back atcha xxxzhuk wrote:Thought after reading so many inspiring stories of other’s journeys here, I would kick off with my own. I haven’t shared much detail about my background before, so sorry for the essay in advance lol
After a fairly excruciating wait of a month since receiving my meds, an auspiscious New Year’s day start! Really wanted to get onto the Redemption-2 trial – I can never repay the generosity of those here and the Buyer’s Club who made this possible, but hopefully throwing in my contribution to help Dr James might go some small way towards it
A bit of preliminary info on my pre-tx condition. GT1a, 27 years infected, diagnosed 1990 (which would have been the year it was isolated from merely ‘non-A/non-B’ status) Years I forgot about it/repressed to a certain extent, and had a fairly fatalistic POV. Kind of like the bullet that’s out there with your name on it – or not!
During those decades somehow I managed to keep to a F0 score (no idea how heh) but in recent years I’ve come to suspect that a lot of symptoms might not be caused by other conditions as I’d thought. The sometimes crushing fatigue (hey my 92-yr old mother has more energy a lot of the time lol), joint/muscle pain which might not be completely chronic pain after all, weird abdominal issues with no apparent cause, those irritating & unnerving stinging/congested liver sensations, the grasping for words you’re sure you knew once…all those familar symptoms.
Last pre-tx stats:
Ended up with a relatively small VL – 262,000 (no idea what it was until a month ago, so that was a surprise)
ALT – 40 (used to be in the high 50s-60s until I started milk thistle a few years back)
AST – 26
GGT – 13
Bilirubin – 5
Platelets – 411Prescribed Mesochem sof/dac 12 weeks by Dr J, and its all go from here. Not expecting any issues, although I’m open to the possibility of extra sx purely due to my lower than average weight of 52kg, giving a higher gram per kg effect particularly with the dac, as the doc informed me could be the case. Planning to try and stick it out without any dosage decrease, maybe the bit extra will give a kind of added “insurance”!
So, I’m locked, loaded and ready as I’ll ever be for the battle. I reckon the odds are very definitely on my side
I relate to so much you have written and Thankyou for saying it the pains and brain stuff etc
The collective spirit here is really appreciated ty for sharing your personal stuff it’s quite similar to mine in many ways and I am sure others so relate too
Onwards and upwards for us now yew!isaing4 wrote:Hi London Girl, You are almost there, beginnig of the treatment.
I am sure it will be an easy one for you too.
The only side effect I noticed is that I am gaining weight! I must pay attention to what and how I eat!
Well I can’t wait to add a few kgs to this carcas That said I do have other pals who are battling a weight gain whilst beating Hep so I hear you
Somehow I lost half my reply because I was writing from my iphone not my laptop, isaing4, but you have made me feel really happy with your posts about sx on the new drugs xoCongratulations Zhuk, at last. You have been SO patient.
Wishing you and LG and Ariel (and all others starting Tx) minimum sides and maximum speed to SVR.
Happy New Year.[/quote]
Thanks heaps Joy, London Girl and Zhuk… fantastic to have your first tabs today yew! I am feeling less anxious now…the messages are telling me that it is going to be okay….nothing like intfn/riba etc etc1 Bring it on…looking forward to your updates this week Zhuk
zhuk wrote:Hi Ariel, welcome to the forum.
After failing the old drugs I wouldn’t blame you at all for being a bit apprehensive! You know its not going to be anything like that
I should finally start tx on Friday,on the Redemption-2 trial…got a few anticipatory butterflies too lol
Thanks heaps Zhuk, Greatto be affirmed and know I am not the only one anxious about our HepC messy damned story ….possibly changing my pain management meds in preparation for this treatment has had an impact on my nervous system too…
Wishes for all the very best on tx to youBeautiful. You are an amazing daughter. I have two amazing daughters who are so proud of me for ordering my generic via this amazing site which has liberated so many of us who have been ravaged yes ravaged by interferon and other meds. thanks for your brave poignant post, love from the little mermaid here.
Thanks for this post I am just waiting my treatment to arrive and yes feeling anxious in fact I just wrote a private message about it then found this awesome page (I am a nwebie here and about to get my meds) . I think after relapsing post tx interferon it must be normal to be anxious! This is a great thread, thanks so much loving the affirmation. Happy New year to us all
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