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Viewing 15 posts - 106 through 120 (of 1,060 total)
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  • in reply to: FixHepC – Party Playlist #23937
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel


    Live Love Laugh

    in reply to: One Year Later #23936
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    One year ago
    I was having lithotripsy, cytoscopy, scans, ultrasounds, sleeping every day, using any energy to go surfing and rebuild the thirty years of sport muscle that peginf nuked (well I fought hard against it), I was on OxyContin 10mg a day for pain, growing and living on green foods, my pile of lobbying letters was an inch thick, I had started writing songs in plea, I LEFT THE MAINSTREAM and followed my buddy Emilio from another place to FHC and despite having set up a trip to the UK to pay 45,000 pounds to Alcura for Sofosbuvir then discovered that I could access a miracle combo called Harvoni which Em was blogging. Well that second postponement in the Pipeline on Dec 1 was it for this lil duckie and I ordered my meds from here a leap of faith I can still recall the feeling of morphing from a lobbyist to becoming my own messiah in it all. The PBS came through, sure, but after being an imprint in my bed I was stoked more than any fish in my pond to be already UND by then and on my way.
    The change was so profound.
    So hard had I had to work to recover my hair skin muscle weight brain and blood work to regular stuff from peginf to that first fiery week on my MIRACLE GENERIC DAAs. No more do I need to flog myself no! The change was starting slowly but man has it a momentum.
    Change is visually amazing, inner fortitude, cognitive change much to celebrate and now slipping more and more to a new person the real me who once had HCV but is now free.
    Congratulations to all.
    Ariel #love

    in reply to: You are a hero #23934
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Ty Doc for the props
    Yep that was a bungee jump into the abyss that old tx you are correct in my personal case
    BUT
    I’M WITH THE VIBE HERE
    THANKS TO THE FHC TEAM
    We are free!!

    This ones for you and I sing this old fave with a new outlook now THANKYOU :+1:

    in reply to: I don’t understand my bloods results, or my viral load…. #23933
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Good morning from Oz Donna
    I’m just catching up after some domestic duties that were rather time consuming
    Yes to the insomnia and general tiredness which by week ten shifted into overdrive with a very zooomy sensation even during the day. Emotions run up and down I found maybe the tiredness catches up plus the demands of single parenting or it’s just how it is. But the best thing is you are clear and just really “overtreating” and that’s how my DAA tx ran too
    I’m here barracking for you to the finish line and I am sure there’s an occasional whinge in my blog re not sleeping etc haha!
    Sending you love and goodvibes I am sorry I have been absent for a week doing family stuff but I have logged in to this awesome news all over the forum
    Go for it Donna we got your back girl xxxxx
    Love from Ariel #love

    in reply to: Rohcvfighter reached EOT #23932
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congratulations on SVR12 ROHCVFighter
    You have shared so much love and hope on the forum most appreciated
    Sending you happy splashes from Ariel very happy for you #flower #flower
    IMG_8422.JPG

    in reply to: SVR24 #23930
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    …. and Nadia thanks heaps for your congratulations xxx #love A

    in reply to: SVR24 #23929
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congratulations to CC and HG
    love the SVR24 reports coming in its fantastic
    Onwards and upwards only !
    Big happy splashes to you both #love #love
    And to GF I have posted on your blog #flower
    As Coral says we can’t get enough good news friends xxx
    Love from Ariel

    in reply to: Greedfighter’s Generic Epclusa or Harvoni to USA Journal #23928
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Wonderful news Greedfighter I am very happy to read this SVR report
    Just so good.
    Wishing you happiness and health for years to come from Ariel #flower
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    in reply to: Harvoni #23926
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Wishing you well for your forthcoming treatment Mic52
    It’s a brilliant feeling coming out the other side free
    We will all be here to support you too and it’s awesome to get support from your hospital
    Sending good vibes from Oz
    Go for it!
    Ariel #flower

    in reply to: Beaches Treatment – Harvoni (Aus PBS) #23925
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I said it before and I will say it again
    “Life’s a Beach!” (Rennie Ellis)
    Fanflippintastic my friend
    Love and big Pammie splashes from A #flower

    IMG_8417.JPG

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #23923
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    IMG_8416.JPG

    Yew!
    STOKED
    I am so happy for you girl you bagged the biggie
    Enjoy the ride it’s just gonna get better and better
    Sending you a giant happy splash
    Love hugs and head banging dancing
    From Ariel
    Yay London Girl #flower

    in reply to: You are a hero #23784
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I’m not a hero
    I’m just a person and a parent who got a shit illness somehow

    Grateful yes hero no
    thats way too fancy a tag or badge for me a hero
    Truly just thankful that’s all
    At least it wasn’t that other stuff again
    Survival of that was possibly a miracle if these labels are to be applied

    Take care all and thanks to the real hero: that’s the Doc who set this up and released me and you and all from the illness :+1:
    A

    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Dear Murr
    Thanks for sharing your views I agree stress is a factor as I am going through a serious issue in my own family actually so possibly that’s another influence.
    I’m pretty sure my issues really got triggered by that old peginf riba tx
    Like you I will be hoping for my bp to be normal again
    There’s only so much we can write on any forum but yes stress is defs a factor but also my experience on Harvoni was real and I was not going through the added issue that I carry just now.
    I wish you SVR12 and a successful outcome and thank you for writing back it is very kind of you
    Sending love from Ariel xx

    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel
    Murr wrote:

    Blood Pressure – If Hepatitis C causes a significant amount of liver scarring, portal hypertension can develop. Blockage of the blood vessels due to liver damage inhibits blood flow through the liver and causes high pressure (portal hypertension)
    After EOT is it possible this condition /hypertension/ to improve?

    Can anybody share personal experience on that topic?
    It will be greatly appreciated :+1: :+1:

    Thanks for bringing up this topic Murr
    BP is definitely one sx I had from peginf and it certainly rose during DAA tx but not as serious as on peginf
    On peginf and post peginf it swung between 120/70 and 220/120. I was tested for Wenegers and various other issues but no, no underlying issue. I do extreme sport every week I am extremely fit. My heart rate is around 65.
    I’m post SVR24.
    My BP has recently gone up again and I am back on the meds that were recommended whilst on Generic Harvoni.
    After one week on these meds my bp has dropped from 160/95 to 115/75.
    Nothing else has changed in my lifestyle and I have been physically active including surfing for over five hours in one session.
    I’m keeping an eye on my bp with my GP.
    A home monitor was a great investment
    I’m sure there are other stories about bp and we are all made differently.
    I’m NOT in the business of scaring people but I wanted to be honest about bp and the continued stabilisation of same in my case.
    The most important thing is that I feel fantastic I actually can’t believe how great it is now I am HCV free I keep thinking “is this what it’s like to really live!”
    My message here is just a caution that yes I have to keep an eye on bp ever since peginf and it did pop up a bit on DAAs
    It’s all a long process but worth it
    Ariel
    * note
    I have had all scans etc including aorta and portal

    in reply to: HARVONI FATIGUE #23722
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Claudel congrats on your UND that’s wonderful news and I am sure a morale boost with your heart issue. I wish you a speedy recovery from that hiccup in your life and good caring support for the duration of your tx with the heightened needs for your overall health
    Sending love from Ariel
    Get well soon Claudel xx #love

Viewing 15 posts - 106 through 120 (of 1,060 total)