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8 October 2016 at 1:24 pm in reply to: FDA Adds Boxed Warning to Hepatitis C Drugs, Warns of Hep B #23630
Hi Tommy
This is a bit of a storm ina teacup. There’s another post on the forum bout this where Dr James addresses it.
I have had Hep B and it worried me a bit but now I’m happy again
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyHi LondonR
I was diagnosed in 2004, I had probably had HepC since the 70s.
In my late 40s I started to feel quite unwell – it felt as though I was living in a shadow world and I thought surely this is not how the rest of my life will be.
Before I’d had kids I was a big gym junkie and also did martial arts, but after they came along I found it impossible to work full time AND commit to a regular fitness regime, but when the youngest was 5 I started regular Yoga classes and practice, which I believe has helped me big time in many ways.
The deterioration started around 3 or 4 years after I’d started Yoga and I just couldn’t figure it out.
Once I got the diagnosis I researched interferon and said thanks but no thanks (and was pretty much called an idiot by a specialist) and started taking lots of supplements which helped a little bit. A chance conversation led me to acupuncture which lifted my energy levels significantly and gave me the energy to go back to the gym which in turn gave me more energy. Around this time I heard of new treatments being developed and was advised to wait as my liver was in good condition.
So I waited. Around 5 years.
Then I also heard about the wonderful Dr James aka living legend and decided I would also go down that path. However the doctor I was seeing at the liver clinic suggested I wait a few more months as the Australian government was about to fund the new treatment. This is what I did and the rest is history.
My experience of the treatment is that in the first week I noticed that my sleep quality improved exponentially. OMG – bliss. The only negative side effect was the occasional headache that would last a few minutes. On the plus side, my brain got much sharper and clearer, energy levels changed completely, everything was better. It’s only when you start to clear this shit of a disease that you realise how much damage it does to your whole being.
At the end of the first month, my liver functions were normal and while the virus was still present, it was in such small amounts as to be unquantifiable. At the end of treatment it was undetectable, and also 3 months after end of treatment – I had achieved SVR (Sustained Virological Response) which is the holy grail of these treatments.
Hopefully your path and outcome will be equally simple and happy. The you can tell those miserable bastards to go and do the proverbial
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyAn anthem maybe?
Love the ‘fro on the drummer. I believe these guys are still playing, maybe they’ll come down under one dayhttps://www.youtube.com/watch?v=2HuiH-0R6a0
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyMatt, I remember the movie that used that song – Harold and Maude, what a brilliant film.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyThe Kinks
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyToday I had my appointment with the very lovely Doctor P at RPA, and she gave me the formal news that I’d already been given in an email by the hep c nurse.
While it was good to get it on paper, plus also have a fibroscan done that showed an even better F0 result (median stiffness 4.0), she made a comment that I found interesting. She said the Hep C problem is solved. I know she is busy so I didn’t engage in that discussion but it is a worry that someone who is right at the coalface of Hep C treatment in Australia thinks that.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyThat makes things very clear. Thank you
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyWhat a year indeed! hmy:
A bit over a year ago I was trying to contact Greg J and getting no response. Then the newspaper article about Fixhepc. Then the Australian government shelling out for treatment. Then getting the prescription in my hot little hands (and then nearly being run of the road by an idiot driver talking on their phone #ironic). Then Tx and CLEARING this demon. All this accompanied by a promotion and pay rise and finally getting my ITIL Expert certification (if anyone knows what that is). And swimming with whales.
A rather good year. Grateful.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyI’ve been having twinges post EOT as well. Never used to have them before. I have a specialist appt tomorrow and will add this to my list of questions. Doc is going to do a fibrosis.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby”James-Freeman-facebook” wrote:We do know that in patients with chronic Hep B that Hep C treatment can cause reactivation of the Hep B, so it’s a bit like the Hep C weeds keep the Hep B weeds under control.
Do we know anything about the people who had Hep B reactivated? Are there any common features that made those people get their Hep B back?
Jeeze Louise, I should not have counted my chickens too early dammit
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyNothing fishy about those results
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babySaw this band a few nights ago
The blonde woman was Michael Jackson’s guitarist hence the song.
The bloke is Richie someone from some band
Oh and it would help to include a link, right?https://www.youtube.com/watch?v=8wsSlJb8qkQ
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyGaj wrote:Matt-Kenney-google wrote:You rock beaches
Oh, you’re gonna be in so much trouble Matt!
Hint: mermaids are known to hang around (with) beaches[/quote]
lol much
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyfitz wrote:the fellow stage left looks an awful lot like Marty Feldman
Well spotted, Fitz
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured babyMy pet mouse Elvis died.
He got caught in a trap.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby -
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