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  • 7 August 2016 at 7:41 am in reply to: Rightsaidfred – end of treatment #21925
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    • Guardian Angel
    • ★★★★★
    @beaches

    Don’t stress too much,but know that if you do it’s normal.

    You’ve probably been feeling pretty good through your treatment. That may change temporarily as your bodies adjust but I’ve been told this is normal too. I finished Tx in early June and still haven’t worked out what normal feels like.My acupuncturist says I’m getting better by all her measurements and that makes me happy.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    6 August 2016 at 2:57 pm in reply to: Rightsaidfred – end of treatment #21908
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    • Guardian Angel
    • ★★★★★
    @beaches

    Good luck to both of you

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    6 August 2016 at 12:45 pm in reply to: DAAs and Liver Cancer Risk #21905
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    • Guardian Angel
    • ★★★★★
    @beaches

    HeySerg
    I am not a doctor but I do know that the virus damages the liver (and the immune system) 24*7 and most people with HCV develop cirrhosis and HCCs.

    I have always been given to believe it’s the cirrhosis that leads to the HCCs, so if you have cirrhosis and do nothing, chances are the HCC will come.

    Looking at the tests (and I’m not a doctor and I’m not very scientific) it seems that it’s really not possible to extrapolate that the DAAs cause HCCs in cirrhotics.

    Maybe if there were some longitudinal studies some evidence might come to light in a few years. But how could you ethically conduct such a study?

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    6 August 2016 at 3:46 am in reply to: Greetings from Texas #21895
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    • Guardian Angel
    • ★★★★★
    @beaches

    Welcome JimmyK, best of luck with your Tx

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    6 August 2016 at 3:38 am in reply to: Red skin #21893
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    • Guardian Angel
    • ★★★★★
    @beaches

    Good to hear.
    Has the skin situation changed at all?
    Really happy for you. You must be over the moon.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    5 August 2016 at 1:51 pm in reply to: DAAs and Liver Cancer Risk #21871
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    • Guardian Angel
    • ★★★★★
    @beaches

    Hi Serg

    Re the cirrhosis, I’d say having it would be like sitting on a time bomb.

    I’m lucky to have been F0 every time I was tested so it’s easy for me to say.

    Although I wasn’t able to clear the virus prior to Tx I was doing my best to address all the side issues like trouble with joints, thryoid problems, vitamin D deficiency and a host of other things but at age 60 it became more and more clear that I was living on borrowed time.

    It’s a big call for you.

    You have the ‘known’ which is the condition of your liver and what will happen in the future vs the unknown, which is the question is the cure worse than the disease.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    5 August 2016 at 1:19 pm in reply to: Pharmasset Development Costs vs Gileads Profits #21870
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    • Guardian Angel
    • ★★★★★
    @beaches

    These days it’s not about the stakeholder at all.
    It’s about that small gentleman’s club (and the occasional token lady…. still!) getting their obscene bonuses.
    Bastards.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    4 August 2016 at 2:46 am in reply to: Fitz starts REDEMPTION 3 Trial #21825
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    • Guardian Angel
    • ★★★★★
    @beaches

    That’s very true. It’s the friendliness and good vibes that keep me here #love #duck #flower

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    3 August 2016 at 2:18 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #21807
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Hi LG
    I’m reading your post and having little chuckles because the way I’m feeling post Tx is almost exactly the same as you.

    Realised recently that this condition has been with me for 2/3 of my life :ohmy:

    Pretty much as soon as I started Tx my sleep patterns became so wonderful,omg that made me so happy!

    I’m more tired than I was on Tx and sometimes feel a bit vague, which freaks me right out. Twice in t he past week I’ve opted to sleep in rather than do the morning swim that I love so much, and this morning the group had a friendly dolphin for company, bugger :(

    Never used to have liver twinges but now occasionally I do, and this causes what I call o shit moments.

    Since EOT I’ve been craving carbs.Now carbs are not my friend although I wish they were. Normally I can ignore the call of the carbohydrate but I guess I have been in celebration mode and cutting myself some slack. Will have to go back to being serious about the nutrition again dammit

    I was treated at a public hospital clinic and will be tested at 12 weeks, on 02 September, but who’s counting. No point at all in getting tested before this but I wish that date would come quickly. Things don’t stress me too much but this is at the back of my mind most of the time.

    There is a very helpful Yoga sequence for emotional stability on the internet, but I’m reluctant to post it- it’s a “don’t try this at home” thing. Some of the postures can be done with little instruction but if you aren’t accustomed to supported inversions you should get some expert assistance.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    3 August 2016 at 1:55 pm in reply to: DAAs and Liver Cancer Risk #21806
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Hi Serg

    The paper says the patients already had advanced liver disease – could it be possible they had the DAAs too late?

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    3 August 2016 at 1:46 pm in reply to: How long to wait before retreatment #21805
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Hi Dr James,

    What causes the mutants?

    Are they caused by interferon treatment, or is it just what happens?

    I thought that HCV mutated quickly anyway,and that’s what made it so hard to treat.

    Regarding as-yet-unknown long term effects of Sofosvubir, well, I have a reasonable idea of what would have happened to me if I hadn’t had it. Shortened life expectancy (accelerated ageing) was the absolute best case scenario. Right now my quality of life is so much better than it was, so DAA treatment is a no brainer.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    3 August 2016 at 6:43 am in reply to: SVR 12 #21793
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    • Guardian Angel
    • ★★★★★
    @beaches

    Yayyy awesome. Huge lease of life!

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    2 August 2016 at 5:55 pm in reply to: Fitz starts REDEMPTION 3 Trial #21779
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    That’s extremely good to see, Fitz.
    Those DAAs are doing their job.

    dancingbanana-2-3.gif

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    1 August 2016 at 2:48 pm in reply to: Unauthorized Sellers on this Forum #21754
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    They need to realise that having HCV doesn’t necessarily mean you are stupid

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    1 August 2016 at 5:19 am in reply to: First dose today, the journey begins…. #21742
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    • Guardian Angel
    • ★★★★★
    @beaches
    Sven wrote:

    I am concerned about the total effectiveness with generics, as the relapse news is now seemingly hitting full stride with people testing SVR 1-16-24.
    So is it that the voices we hear are those whom have failed SVR and the ones that are 100% done never post any further?
    Please let me know how one calculates the generic Harvoni with branded Harvoni successes and failures.
    Thank you all.

    Hi Sven,

    I’m curious to understand how you come to the conclusion that the reason people are relapsing is that they are using generics.

    A few points and questions for you –
    people who don’t relapse probably won’t post here after they have received SVR.
    do you know for sure that everyone who has relapsed has taken generics?
    do you know the relapse stats for people on branded medications?

    Just asking :)

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

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Viewing 15 posts - 241 through 255 (of 750 total)
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