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Viewing 15 posts - 76 through 90 (of 267 total)
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  • in reply to: viral load test #11296
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Congratulations Jeanmac, Good For You :woohoo: :woohoo:
    Hope your SVR’s are successful too, all the best to you :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #11294
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Great to hear from you Emma, I certainly relate to your sx. Interesting the Headache from neck, back of skull is the same, I’m not getting a generalised all over headache.
    Hope the rest of your Tx goes better. #flower

    I too have a GP who has refused to do blood tests for me – I only requested usual LFT’s and qualitative VL – but because the Specialist at the Public Hospital she spoke to told her she ‘wasn’t qualified to monitor someone on these DAA’s.’ He wanted her to send me to him instead, even though he promised a script but didn’t give it, I went through GP2U. But he wants to gather the data from me, he knows it’s too far for me to travel and that I had previously arranged with my GP to monitor me and him see me at 12 weeks.

    My previous GP moved away 6 m ago, he was my Doc for 8 yrs, he’s on ‘leave’, during weekdays for the rest of the month, but I managed to get an appointment with him on a Sunday -14th – I’ll be getting my bloodwork done at about 5-6 weeks mark.

    I’m interested in those results, not so much on the VL, but Full Blood work and LFT’s, mainly because of my ‘symptoms/sides.’
    All the best to everyone #love :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Looking good at 3 weeks in! #11140
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Great news Debs! Sounds like everything s going in the right direction for you. I’ve been losing lots of hair too, yesterday 3 handfuls came out, I’m really freaked out. Was this a sx for you or a pre-Tx thing?

    All the best for the rest of Tx :) #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Sun sensitivity #11137
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hi Honker, great to hear you’ve started Tx. I’m on Sof/Dac and have had terrible sun sensitivity with my eyes and skin (week 4 now). I can’t go out without a sun visor and sunscreen. Be very careful in Tassie, the sun can be ferocious, I got 2nd degree burns when I lived there briefly, another lifetime ago!
    Good Luck, hope you get to see all the beauty it has to offer :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Lynne’s end of treatment #11134
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Congratulations Lynne! :woohoo:
    Wishing you all the best post-Tx – SVR’s; and also for your family, as I know this has been a rough couple of years for you all.
    Good Luck #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #11071
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai
    LondonGirl wrote:

    Hey Chajai – Personally, I can’t live without lavender oil – Always to hand, especially when traveling. #flower

    Yeah, LG the very basics in my home ‘first aid’ kit were lavender and Tea Tree oils, I studied Aromatherapy, among other things, and have a much bigger collection of essential oils now. I like the pre-mix blends, especially at night, then I can add others to it. I have been insomnic since I was a child and worse in recent years from Carpal Tunnel and Peripheral Neuropathy, so I started using a diffuser at night because it goes for about 7 hours, greatly improved my sleep especially trying to fall asleep initially.

    I have begun Week 4 and like you MTGoat, in my 2nd week I started getting headaches a sharp, stabbing pain in the back of my skull, usually in late arvo/evenings, on and off. I didn’t take anything because I have to be careful with painkillers, I can’t take NSAID’s, e.g. Ibuprofen, because of Reflux and Duodenitis, I have read before they aren’t good on the liver either, but ‘here’ it’s been said they’re ok.
    I did end up with a violent migraine though that lasted a few days – had to treat that. I can’t use aspirin, again stomach issues and ‘bleeding easily’.
    The intermittent stabbing pain has lessened though. I have arthritis in my TMJ and the pain is excruciating, I tried my ‘oils’ but too close to my eyes, I now use ‘Voltaren Emulgel’, rubbed in my upper cheekbones and temples, also on the back of my neck, this is very effective for pain from inflammation.

    As for other sx, I had a lot of energy the 1st 2 weeks but would be fatigued in the arvo, started to feel clear-headed, less ‘brain-fog’ but that has changed. Despite being very exhausted at night I still couldn’t fall asleep before 11 – 11:30 pm; I was taking my Magic Pills in the morning and by 3pm I was trashed, to the point of dozing at the wheel while driving – very scary. I moved the time to around 10:30 am but still very fatigued early, sometimes I have forgotten and taken them at 1 pm and I’m up ’til midnight! So, I’ve settled on around 11- 11:30 am.

    I no longer feel ‘energetic’, I’m fatigued every day, just worse in arvo and evening.
    I have emotional moodswings but recover quickly from short-fused outbursts.
    I no longer have the persistent low grade anxiety and agitation I have always had, therefore less ‘compulsive’ behaviours to deal with.
    I do still suffer high anxiety episodes some days.
    Appetite is normal to low but sometimes craving things I never normally eat – e.g. sweet things.
    Sweating profusely, several showers a day.
    Some days clear mind and others very foggy and confused.
    Bloated abdomen, not painful, GI problems – pale floating stools; trouble digesting things e.g. meat.
    When I do fall asleep I’m sleeping soundly for about 5-6 hrs and then my dog wakes me, I take her out and then come back and sleep soundly for about 2 hrs.
    I am becoming more motivated though and getting more done during the day than before, so energy must have improved just not like start of Tx.
    Complete body aching comes and goes.
    Skin has improved and psoriasis is clearing too.
    I have been suffering blurred vision, even with my glasses on sometimes I can’t read, see clearly what’s in front of me – this also is frightening because I can’t drive like this – it comes and goes too.

    It is reassuring to read others having the same sort of issues, so I’m not worried and know that some things will resolve themselves.
    Thank God for this site – well actually Thank Doc for this site :lol: #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Ariel takes the Plunge #10884
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Wow, Ariel this is fantastic! You really sound like you’re improving and feeling good :woohoo:
    I wish I felt the same. I noticed you mentioned the ‘blurry vision’, I have this too (I wear glasses, can’t remember script), it’s been worse on Tx though. Is this a sx? I must look through the site to see if it’s mentioned.

    So, happy for you getting back on track with life :) #love #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: New member Intro #10882
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    I moved my Tx blog over to “My parcel of Magic Pills has arrived.” :woohoo: :woohoo:


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #10881
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai
    dointime wrote:

    Some kind of insomnia is fairly common with all of these drugs, especially the riba. Not falling asleep. Waking up early. Not such a big deal unless you have to go to work all bleary eyed and wore out. Not getting anxious about it helps, even if you have to take a light sleeping pill now and again to break the cycle of sleep deprivation. Other than that I use essential oils. Marjoram is the most sedative but the smell is a bit medicinal. Mix with other more pleasant smells, like lavender and Clary Sage which are both relaxing. Dilute with a few drops of lotion and spread on pulse points, back of neck, anywhere you like really. Focusing on a pleasant smell helps the mind to stop racing. Sometimes that is all it takes to drop off.
    dt

    Absolutely agree DT, I use an Aromatherapy diffuser at night, with a Blended mix that does contain Marjoram and I add Clary Sage and Cinnamon Essential Oils and I’m out!! The nights I haven’t had such good sleep have been extremely hot, no a/c, only a fan and it blows my ‘aromas’ around ;) but, drops on a pillow then help :)

    Same as others are saying, I sleep about 4-5 hours and wake – having wild dreams – go back to sleep and they continue, it’s like pressing pause on a video!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Any Post-Treatment Reflections? #10880
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai
    Jimmy6429 wrote:

    As for nagging symptoms I have a few, but I think I had medical stuff going on way before I was infected with HepC, some gastric and psychiatric issues, an inability to put on weight, excema, depression was probably my worst pre infection issue. So for me, a lot of the issues which I had before infection became amplified by HepC it seems, meaning just because I have cleared(hopefully) the virus I still need to watch my diet(avoid foods I was intolerant of before infection) and watch my mental state to avoid falling back into the pit of depression I lived through during childhood.

    I found the best guide to my health is the Bristol Stool Chart, when I am in the middle, I am happy and have energy, as Hippocrates said I think all disease begins in the gut, which goes on to effect the mind and the rest of the body,

    A subject no one likes to talk about but its been mentioned by inference in a few posts here,
    https://en.wikipedia.org/wiki/Bristol_stool_scale

    When my gut is happy my skin tone improves, I start to sweat again, my BO stinks like it should, and most anxieties go away, but yes I too am quite anxious about the end result, and I am not the best patient. No wonder so many doctors told me I was untreatable, being born with so many allergies did not make early life easy, my poor mom was at a wits end trying to feed me at all. When tested for allergies I was apparently showing reactions to the “control” test, so they gave up trying to figure out what I was allergic to,, just gave me a long list of foods and substances to avoid, almost impossible to adhere to in this world.

    So long as I eat right, my gut is happy and so generally is my head. In my case I think I have food intolerance totally unrelated to HepC and so watch my diet very carefully. I can apparently eat a lot of the foods I used to avoid, but choose not to rock the boat so to speak, always my guts are my guide, literally.
    Jim

    Thanks, I’m getting a lot out of reading everyone’s experiences and thoughts.
    I’m about to end week 3 of Tx tomorrow so have awhile to go yet. But like you Jimmy I have a lot of pre-existing conditions and HepC has definitely exacerbated things – as to how much? I won’t really know until EOT/post-Tx. My gene pool has left me with a lot of allergies/food intolerances and hence gut issues. I absolutely agree with how my ‘mood’ is affected by my gut issues. I’ve been diagnosed with IBS but I’m also sure the HepC is messing me up more. Severe diarrhoea, that can go for days, unless I take medication – leaves me extremely dehydrated either way. Therefore more headaches, dry skin and mouth, dizzy spells etc. Alternating with constipation, being ‘blocked’ and bloated for days, makes me really cranky and depressed.
    On Tx, my 1st 2 weeks were good, high energy, sleeping solidly, but sweating profusely, liver and kidney pain, sharp stabbing on/off headaches. Emotionally, a roller-coaster ride, very teary at times. But, noticed my usual persistent low grade anxiety isn’t there, I have high anxiety episodes still but they resolve faster. Depression still lurking and have had some real lows. Peripheral neuropathy still shocking and swollen painful joints – pre-existing arthritis – seems to flare up badly at times.
    I still seem to be having gut issues, can’t digest meat properly – I end up with ‘pale, floating’ stools – sign of not digesting fats well.
    I’m still very fatigued though and hope that lifts.

    I feel encouraged by those of you who have finished and started out with similar conditions/symptoms and are rid of some and less affected by the rest.
    I’m trying to be optimistic but don’t want to put too much hope into improving – being ‘cured’ of the virus won’t necessarily mean ‘cured’ of all conditions – because I’ll be like others have mentioned and become anxious or depressed at EOT about ‘results’.
    Good Luck to those who have finished, are about to and the rest of us with many weeks to go #love #love


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Waiting game #10783
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Great News Paulino, this is the start of the rest of your Life! Good Luck on Tx :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Any Post-Treatment Reflections? #10776
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Wow, that’s great to hear, thank you. Mike I can relate completely to your pre-tx symptoms, and Vororo’s too – I like the engine gears analogy :)
    I’m hoping to achieve that sort of ‘improved’ state of wellbeing – have a while to wait – if at the least the unrelenting burning and numbness in my hands and feet stopped I’d be happy!

    Really appreciate anyone’s feedback, the positive and the negative, as I think we can all gain something from each other’s experience.
    All the best #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Any Post-Treatment Reflections? #10700
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Thanks Mike, so do you mean you feel the same as before Tx? Or ‘better’ and you’re redefining what you thought was your ‘normal’?


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Twinvir/Bangladesh #10694
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    That’s great news Alan, Congratulations and thanks for sharing :woohoo:
    Good Luck with SVR’s :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    in reply to: Sirs treatment journey! #10693
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hi Sirchenge, a bit late, but Good to hear you received an UND. As you mentioned though these results can jump around but seems everyone needs peace of mind to know things are moving in the right direction.
    Good Luck for the rest of Tx :) #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

Viewing 15 posts - 76 through 90 (of 267 total)