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I think there are at least two threads about this. I’ll have to keep looking for the other one. But here is one.
FWIW, experiencing a speedy feeling on the meds is a quite common (positive) side effect. I had it. Don’t get too excited. It probably won’t last.
I didn’t have any hesitation with taking the drugs either. But I’ve been a little let down by the level of improvement once the drugs were well and truly out of my system. But after tests for other causes by the doc which were all ok, and given I’d had the virus for close to 30 years, it seems it’s most likely just me getting old. Which is a bit of a bummer.
Anyway, I think you have to look at this by saying to yourself that you know you have to get well – and it’s clear from your post that, rationally, you do know that’s what you have to do. So you’ve got to get on with it and seek out the support as your anxieties arise along the way. As you’ve found this place, you no longer need be worried about being alone and isolated when and if that situation arises.
I had the doc lined up to prescribe to me under the PBS in the case of relapse. Figured it’d be a lot quicker and easier than going through a liver clinic. And he posted this.
And he’s going to do another PCR for me at the 6 month SVR mark. The liver clinic wanted to wait another year.
I don’t think so. I’m confident but I’m not that confident.”Rene wrote:I have no doctor to supervise the treatment, so I am looking for some help in this group.
I am HCV Genotype 1A. Treatment naive. VL 1.3 million IU/ml. CT scans and Echo scans don’t show any cirrhosis.
Will start on Monday the 22nd with My HEP-LVIR from Mylan. (Sofosbuvir 400mg + Ledipasvir 90mg)
Intent to do 12 weeks even though:
“HARVONI for 8 weeks can be considered in treatment-naïve genotype 1 patients without cirrhosis who have pre-treatment HCV RNA less than 6 million IU/mL”
Should I do a blood test before, during or after the treatment?
Should I take the meds before or after meals?
I eat loads of fruit every day, will that affect treatment?
Hi Rene and welcome,
As far as supervision goes, it would help to know what country you are in.
If those test results are recent you don’t need any others before starting treatment.
You can take the meds whenever you want. AFAIK any theories about the best time to take meds are just that, theories. As some people experience insomnia it may be better to take them in the morning so the levels are lower by the time you go to bed.
Certain fruits are out – grapefruit, Seville oranges, paw paw, star fruit, pomegranate. See here. Also certain supplements.
If you eat a lot of any one thing or take supplements it’s maybe a good idea to check for interactions. Drug interactions can be found here. With foods and supplements it may be worth googling the item and CYP3A4 or asking. Personally, I don’t take supplements but my approach in general was to just eat a well balanced diet with all things (excluding the known problem foods of course) in moderation. These drugs are so new, there may well be interactions that are as yet unknown.
Good to hear you’ve got the cure and are ready to start. The very best of luck.
Bet you’re glad your folks didn’t call you Rémy.
