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Here is an update for World Hepatitis Day July 28.
https://www.odt.co.nz/news/dunedin/health/niuean-hepatitis-figures-%E2%80%98amazing%E2%80%99
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Happy to report testing is underway in Niue.
The Director of Public Health, Grizelda Mokoia, seen here with Dr Eddie Akau’ola says they did a one hour awareness radio show last week and many people now have appointments to be tested. The news comes just as the World Hepatitis Alliance put our Global Health NZ story on the cover :
Story p 16 https://www.worldhepatitisalliance.org/hepvoice
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Journal published author, Dr James in this groundbreaking study into the use of the hep C antivirals for COVID-19.
Lots more to come on this over the next 8 weeks or so.https://academic.oup.com/jac/advance-article/doi/10.1093/jac/dkaa331/5889946?
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Seriously, this is a big deal.
Dr James and a small group of clinicians and researchers have set up this network of trials, following on from the just-released Iran data – which!!!!!
has also been selected as one of five clinical highlights selected by Anthony Fauci from the IAS virtual COVID-19 workshop that will take place directly after AIDS2020.And now appears in many articles worldwide such as the esteemed MedPage here
https://www.medpagetoday.com/infectiousdisease/covid19/87520?fbclid=
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Yay, that is the best news
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Today is a big day! Tony Fauci headlines for the research and trials Dr James has been the pivotal coordinator of all this:
https://publicaddress.net/hardnews/more-on-the-repurposed-hepatitis-c-drugs/?fbclid=
https://www.ft.com/content/ce38f292-b952-42c6-aaab-c8bdbe964c92?fbclid=
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi Joy2world
I can imagine that is stressful to see. In fact, I know it is as I have seen it happen to lots of people- who did go on to be undetected at 12 weeks SVR, which is the only test that matters.This test of yours now, like Fitz says, could well be – ismuch more likely to be showing remnants of dead virus in your blood. I did 24 weeks treatment and wasn’t undetected until 18 weeks of it. I kept really wanting to see those words- but I did.
If I was in your shoes, for reassurance at about 6-8 weeks after your last tablet, I’d get a liver function test. That tells much the same story but quickly and cheaply.Meanwhile, take heart- many before you have cleared after getting this unsettling result, which is really a reflection of the testing capability we have- too sensitive, seeing and counting tiny dead bits and not sensitive enough, to show if it is live or not.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Got to love how Uganda did their coronavirus announcement
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi Cherr 1985,
That last waiting is hard
All the waiting is hard come to think of it… for meds, for tests.
What you could do, I have heard of a lot of people do to ease their minds in this 12 weeks wait, is have a liver function test at about 7-8 weeks.
That is cheap and fast and the drugs are out of your system by then so your liver is doing it’s own thing with no help from harvoni. LFT will show how it is doing and should reassure you. No doubt a very few people need to retreat but it is pretty close to 100.1 not to be you.
Congrats on reaching end of treatment
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
2 February 2020 at 5:44 am in reply to: Hep C butterfly posters translated: Mandarin, Arabic and more #29715And Italian
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
31 January 2020 at 4:41 am in reply to: Hep C butterfly posters translated: Mandarin, Arabic and more #29711Thanks for your help with it Mar! Here is French,
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
31 January 2020 at 4:40 am in reply to: Hep C butterfly posters translated: Mandarin, Arabic and more #29708Here is French,
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi Sherif and welcome
That is a low reading part way through treatment- I did 24 weeks, I wasn’t undetected until 18 weeks on treatment, I still cleared, it is not at all unusual to get your result of . Looks to me, patient not doctor, like you are on track really well.
Taking your meds with some food? Keeping hydrated and feeling ok?
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi Cherr1985
You made my day with this post- it was a few years ago for me now but I remember how incredible a feeling it is to get them, take that first dose, how hard the waiting is.
I hope like me you start to feel amazing in just a few days. There is nothing like it! FixHepC magic.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Thanks Dr James, and Mar
It was certainly a big moment for me, and it has become our most liked post on our Hep C Action facebook page.https://www.facebook.com/HepCAction/posts/271276580446276?ppost_landing_redirect=1&boost_id=271349777105623&placement=www_aymt_unknown
But you beat me to it, a couple of years ago !
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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