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  • in reply to: Cure-a-Country Niue project #30139
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Here is an update for World Hepatitis Day July 28.

    https://www.odt.co.nz/news/dunedin/health/niuean-hepatitis-figures-%E2%80%98amazing%E2%80%99


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Cure-a-Country Niue project #30077
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Happy to report testing is underway in Niue.

    The Director of Public Health, Grizelda Mokoia, seen here with Dr Eddie Akau’ola says they did a one hour awareness radio show last week and many people now have appointments to be tested. The news comes just as the World Hepatitis Alliance put our Global Health NZ story on the cover :
    ScreenShot2021-02-16at7.59.12AM.png

    Story p 16 https://www.worldhepatitisalliance.org/hepvoice


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Dr James with COVID-19 research. #30018
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Journal published author, Dr James in this groundbreaking study into the use of the hep C antivirals for COVID-19.
    Lots more to come on this over the next 8 weeks or so.

    https://academic.oup.com/jac/advance-article/doi/10.1093/jac/dkaa331/5889946?


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Dr James with COVID-19 research. #29999
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Seriously, this is a big deal.

    Dr James and a small group of clinicians and researchers have set up this network of trials, following on from the just-released Iran data – which!!!!!
    has also been selected as one of five clinical highlights selected by Anthony Fauci from the IAS virtual COVID-19 workshop that will take place directly after AIDS2020.

    And now appears in many articles worldwide such as the esteemed MedPage here

    https://www.medpagetoday.com/infectiousdisease/covid19/87520?fbclid=


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Officially cured #29998
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Yay, that is the best news #magic #magic


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Dr James with COVID-19 research. #29993
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Today is a big day! Tony Fauci headlines for the research and trials Dr James has been the pivotal coordinator of all this:

    https://publicaddress.net/hardnews/more-on-the-repurposed-hepatitis-c-drugs/?fbclid=

    https://www.ft.com/content/ce38f292-b952-42c6-aaab-c8bdbe964c92?fbclid=

    https://covid19.aids2020.org/2020/07/09/breaking-research-advances-announced-ahead-of-virtual-covid-19-conference/


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Pre-Treatment VL and Bloodwork #29832
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Joy2world
    I can imagine that is stressful to see. In fact, I know it is as I have seen it happen to lots of people- who did go on to be undetected at 12 weeks SVR, which is the only test that matters.

    This test of yours now, like Fitz says, could well be – ismuch more likely to be showing remnants of dead virus in your blood. I did 24 weeks treatment and wasn’t undetected until 18 weeks of it. I kept really wanting to see those words- but I did.
    If I was in your shoes, for reassurance at about 6-8 weeks after your last tablet, I’d get a liver function test. That tells much the same story but quickly and cheaply.

    Meanwhile, take heart- many before you have cleared after getting this unsettling result, which is really a reflection of the testing capability we have- too sensitive, seeing and counting tiny dead bits and not sensitive enough, to show if it is live or not. #flower #flower #flower


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: FixHepC – Party Playlist #29765
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Got to love how Uganda did their coronavirus announcement

    https://www.youtube.com/watch?v=PUHrck2g7Ic&feature=share&fbclid=IwAR1KmDivvQBpmeGbFoFb_k07VpUJUmdgUYv3ZXC6KOkLZ128zgORA3fQBvY


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Posting of my treatment #29743
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Cherr 1985,

    That last waiting is hard :+1:
    All the waiting is hard come to think of it… for meds, for tests.
    What you could do, I have heard of a lot of people do to ease their minds in this 12 weeks wait, is have a liver function test at about 7-8 weeks.
    That is cheap and fast and the drugs are out of your system by then so your liver is doing it’s own thing with no help from harvoni. LFT will show how it is doing and should reassure you. No doubt a very few people need to retreat but it is pretty close to 100.1 not to be you.
    Congrats on reaching end of treatment #flower


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    And Italian
    Italianjpeg.jpg

    Italian.pdf


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Thanks for your help with it Mar! Here is French,

    FrenchJpeg-2.jpg

    FrenchImagine-2.pdf


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Here is French,

    FrenchJpeg.jpg

    FrenchImagine.pdf


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Started Epclusa about 6 weeks ago #29644
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Sherif and welcome

    That is a low reading part way through treatment- I did 24 weeks, I wasn’t undetected until 18 weeks on treatment, I still cleared, it is not at all unusual to get your result of . Looks to me, patient not doctor, like you are on track really well.
    Taking your meds with some food? Keeping hydrated and feeling ok?


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Customs processing #29611
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Cherr1985

    You made my day with this post- it was a few years ago for me now but I remember how incredible a feeling it is to get them, take that first dose, how hard the waiting is.

    I hope like me you start to feel amazing in just a few days. There is nothing like it! FixHepC magic.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Hazel at AASLD with Dr Raymond Schinazi #29553
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Thanks Dr James, and Mar

    It was certainly a big moment for me, and it has become our most liked post on our Hep C Action facebook page.https://www.facebook.com/HepCAction/posts/271276580446276?ppost_landing_redirect=1&boost_id=271349777105623&placement=www_aymt_unknown

    But you beat me to it, a couple of years ago !
    sherine-james-ray70216A70-C221-48F8-AF4C-07819B5F9306.jpg


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

Viewing 15 posts - 1 through 15 (of 369 total)