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  • 25 July 2016 at 8:38 am in reply to: Activism #21365
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Thanks to Hieu Pham for fixing an incompatible file. Anyone please take it, copy, change, do what you like !

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    24 July 2016 at 1:00 pm in reply to: Activism #21325
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Someone I know wrote this for tumblr, not a hepster but interested, and they have kept up with the background. It focuses on Gilead and is full of links, to this site and news/research. It could be shared, edited, posted, hosted or whatever anyone wants to do with it. There are a few versions starting to roll around on tumblr, but I have no idea how that works.

    Post.pptx

    post.pdf

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    22 July 2016 at 4:10 am in reply to: FixHepC in latest NZ Hep C Foundation magazine #21216
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Thanks Chapel, was really good to see that, first issue since EASL:.

    Note, this is a very positive statement, not just relevant to New Zealand-
    “Dr James Freeman received a long- standing ovation following his presentation at EASL in Barcelona…..”
    And this from NZHF Clinical Director ; ” the international liver specialist community recognise how he is helping to make generic DAA’s available at a fraction of the cost…..”

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    20 July 2016 at 4:48 am in reply to: Matt Joins the Fray! #21099
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Great post Matt, good job! a doctor on side is such an important gain to make, thank goodness, one who will look at the website!

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    18 July 2016 at 4:31 am in reply to: DAAs and Liver Cancer Risk #21014
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I hadn’t thought of that Sven but maybe- what I just tried was click through a few links to various online articles -within facebook- and in every case the related article that popped up first on offer was that DAA and cancer risk one. But presumably that would be bad news for Harvoni advertising too so I think more likely that we all react to a negative headline, so that story has been looked at more, and is circulating off the number of clicks it gets.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    16 July 2016 at 10:35 am in reply to: DAAs and Liver Cancer Risk #20966
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Glad to see that thanks Gaj, i keep seeing links to that DAA cancer risk story/headline all the time, and it is misleading. It could put people off treating, which would be crazy, as HCV is the big risk. But I will be monitoring, as you say.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    15 July 2016 at 11:41 pm in reply to: GP2U and Skinview – Diagnose melanoma at home using your phone #20959
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    A-mazing alright. I want one! Melanoma checker is a complete game changer, but I can also think of so many uses for the microscope bit alone.
    You get another 3 votes off your phone…..

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    10 July 2016 at 5:03 am in reply to: Miami Herald Hep C article – letter to the editor #20764
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    thanks GF. Also I just found a new plan- I searched that news website for hep c- turned up quite a few articles- so left some on the most recent. Guess I could do same with the others- LA, Washington, Huffington etc- search the site and comment. Not all need facebook. Worth anybody searching any news site.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    9 July 2016 at 12:23 am in reply to: Los Angeles Times #20726
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    not starting a new thread but have a go at this one- Aljazeera, has huge readership, there were a few comments there but no generic ones.
    http://www.aljazeera.com/news/2016/07/hepatitis-kills-aids-tb-160707040458197.html
    and within that is a link 6 months old, but comments are still open so I stuck one in too
    http://america.aljazeera.com/watch/shows/america-tonight/articles/2015/12/10/for-many-medicaid-patients-hepatitis-c-wonder-drugs-are-out-of-reach.html#commentsDiv

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    8 July 2016 at 10:59 am in reply to: The second wait! #20713
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Really sorry to hear your news sabrecat, another round to go, hope they have that vel sorted soon or whatever is best, and easiest.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    8 July 2016 at 10:53 am in reply to: Los Angeles Times #20712
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    started. there are over 40 comments there and nothing else about generics yet.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    7 July 2016 at 12:46 pm in reply to: Just Plain Funny! #20641
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel
    beaches wrote:

    Classic Norman Gunston

    Loved that beaches, had forgotten how funny he was. I remember him warning Mick Jagger that heavy drugs would stretch his pockets out of shape

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    7 July 2016 at 12:34 am in reply to: Fitz starts REDEMPTION 3 Trial #20581
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Ouch! Good luck with that, bonus broken nose, thanks doc!

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    6 July 2016 at 7:51 am in reply to: FDA approves Velpatasvir plus Sofosbuvir single tablet Epclusa #20549
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Says at the bottom author is a Gilead shareholder. Fun and games in the boardrooms, really putting their minds to pricing:
    http://www.pantagraph.com/business/investment/markets-and-stocks/the-big-loser-after-gilead-s-latest-approval-may-not/article_c70a0959-bf19-5317-b27d-00eb484768a9.html

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    6 July 2016 at 6:28 am in reply to: Why I choose to help #20542
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I think maybe you are a writer Sven. :+1:

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

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