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8 December 2017 at 12:04 am in reply to: no longer furtively reading posts here, joined Redemption trials #27120
Kia kaha Mnem. Kiwis e tu!
nga mihi
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi 40 Odd,
Sounds like you know how you feel… that is a pity, cost cutting by the NHS takes a gamble that 8 weeks is enough, but it reduces your chance of success, this time.
This is the place to get right advice and treatment length if you need to retreat, as it seems. Many have done so here- there are a few stages to the final victory for some. It will be your turn to get there. Your liver sounds like it is in pretty good condition, but I can understand you not wanting to have to wait for treatment- I would not give it another day than I had to.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Great news Redhead. I would say taking them is just like getting them- seems almost too easy for something so momentous. I have seen other people thinking this over- when to start, what they have coming up- it is not going to matter, the side effects for most are unnoticeable, and if you are one who gets the odd headache (drink plenty of water) there is no way of telling when that would be- weekend, or how many days later.
Of the many people I have seen complete meds, I can’t think of anyone who was working before treatment that has had to take time off.
So- my advice would be- get started! Exciting, good luck.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
weird moderating. I did 2 comments that had links, they survived 12 hours and disappeared then I was blocked, Got round that and tried an innocuous comment which made it in. Now I see my first 2 are back, and the low key one is gone.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Brilliant news Erica! I can imagine how unbelievable it is- but as you see, that is what happens here, take the pills, wait for results which feels like forever, then it seems like it took no time at all for the miracle to happen. Enjoy.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
I got one made with a big fixhepc logo to stick on one of my favourite singers- I got another one made with the butterfly symbol and logo for another one- I could just take a cotton t shirt to our uni printer, and for $10 they print it on then and there. It is a facebook photo and I can’t paste it here but was easy- just copied and pasted. I suppose I should get one for myself!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi LynnR
Great you are on the meds now. I don’t know about the other tests, but the viral load, I think, is reporting the same thing in 2 ways. Under 15 at 3 weeks looks good to me- it means there is a scrap of something left but almost all gone. The test can’t count any lower. Usually, people test after 28 days. You will get more expert answers, but to reassure you, it is working well. For instance, I was showing about 25 at 4 weeks, didn’t become undetected until 18 week mark. Slay on!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Here is a bit more fun. My cartoonist friend does poetry and rap as well, and he was busy doing one at the same time as this Bond cartoon- he is amazing to watch. This needs a rap background beat:
Practical activism, mega priced drugs,
Feel some love -gonna bring on da hugs
Freeman + Greg and th’ Fixhep crew
Bringing some hope to all of you.It is not so controversial to save some lives,
Bringing hope before the poor folk dies
Reduce the stigma, bring on the enigma,
Gilead not helping, gonna point da fingerIf you’re not sick enough then you can’t get meds
How we gonna get into the doctors heads
While Gilead’s climbing the Forbes rich list
Helping those suffering seems to be missed.Big Pharma Boys with a licence to kill
Feeling trigger happy, they need a chill pill
Prices are a barrier, they cause annihilation
When they could bring peace and love to the f**ked up nationDon’t treat people with hep C
Like an insurgent enemy
Medications cost too much you see
When they could be there for you and me.CHORUS:
Get down- life saving
Compassion now we’re craving
It seems there is no humanity
It’s Gilead we’re naming, ya seeDirect Acting! Anti virals
Take it from the top- no downward spirals
Doctors- time to care and stand up
Time you fellas all gave a mother f**k!Practivist Rap by Sas, September 4 2017
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
In all the hundreds, more, people who have shipped into the US there hasn’t been a problem- it is probably statistically inevitable that the import process will eventually float past some genius’ desk who get excited because they don’t understand it yet. I think when they are upskilled, it will be fine.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi, you have come to the right place, I was cured with meds through this site, and I have seen thousands do it. Yes, generics are identical, and a fraction of the price- basically same meds different box. As I understand it, sometimes is cheaper than co-pay and there is no waiting- it is your right to do it. I was really sick, lucky I didn’t have to wait any longer. This forum has lots of people’s stories and media about it all etc. You can look us all up on google, we are who we say we are, and that is reassuring because it is a leap. Emailing Iain as above is the best way to find out more.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Thanks, couldn’t make it work but the links have strayed, after faffing around getting them placed just so, have moved around in my saved versions too.
PS everybody please use and share, that is what it is for, no one owns it or if they did it was me, maybe you can copy my attachment or straight off here. Looks fine without links.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hi and welcome,
no such thing as naff. Glad you got here! I did similar treatment to you, the year of every 2nd day then the peg. Makes us pretty tough. It is been exactly 2 years since I heard of fixhepc- and a bit over a year since that sof/dac did the trick for my geno 3 and cirrhosis- which is rapidly retreating like a glacier in modern times. Good luck, keep in touch
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
4 August 2017 at 10:43 am in reply to: HCV virus can now be defeated, yet how do we defeat HCV stigma? #26690Good thread RohcvF
Being in medical experiences category is the right place for it. As testing for antibodies is getting easier and easier, one idea I had for here to tackle stigma is to get mass, public, publicised screenings of healthcare workers, staff testing booths, weeks, whatever. The stigma is worst there, maybe because we are vulnerable and exposed when having health treatments with HCV.
I think there should be education for healthcare workers, then screening, so they can break down stigma themselves, and lead by example.
Unfortunately, we no longer have any NGO here in NZ as the NZ Hep Foundation has announced it now is only for Hep B., and it is the sort of thing they should look at.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Best news to wake up to Gaj. We were treating at the same time last year- I knew this time it would be celebration for you- but I am an optimist. I know it’s not over, until it is, and now- after all those years, it really is over.
And thank you so much for all your calm, wise kindness to all here, while you fought that dragon. #
Songs of freedom, Redemption songs, playing for change
https://www.youtube.com/watch?v=55s3T7VRQSc
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Hmm maybe, Greedfighter, but I think is actually the reality Greg faced in producing someone with a name/face. Elle went to India because she wanted to go anyway, as I understand, and had offered to do any interviews. I was reflecting just last week about the media- what has been pretty remarkable all this time, is none of the journalists have tried to ‘harm’ us or the message, as I would have expected, as I see everywhere else. I think it is because- if they want to dismiss us, they don’t even do the story, they don’t reply to overtures, they ban our comments. That is at least 20.1 of the journalists I contact. If they do get back, they are intrigued and mostly very positive.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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