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I think if I had cirrhosis and/or had relapsed from interferon I would probably still want to be tested at 24 weeks after EOT. There’s a psychological hangover from interferon that will take time to clear. But yes Coral, it’s reassuring that specialists are confident about DAAs, and are preparing for the PBS rollout. I expect the EOT Viral Load test will also be eliminated if UND is achieved earlier.
The staff at the GCUH today were wonderful. I haven’t had to pay for any tests or doctors visits, and am very grateful for that. Hearing how difficult and expensive it is for people in other parts of the world makes me appreciate Australia even more. Might stick around.
Went to see the GI specialist at the Gold Coast University Hospital today. Results from EOT blood tests show I am still UND. I know that was to be expected, but still felt a teeny bit of anxiety beforehand.
I was offered a Fibroscan, accepted of course, and it showed a reduction from 6.2 to 4 (kPa). I hadn’t expected this to happen so quickly, a big bonus and feeling very happy. illy:' />
ALT = 16 and AST = 23 (34 and 41 a year ago).
They are monitoring several others on generics and said that SVR24 ‘has gone out with interferon’ and is no longer necessary on DAAs. SVR12 is now considered sufficient.
So I have a pathology request for end of March and then it’s all over red rover.
Edit: dear mods, I’m not sure if this post should be here, feel free to move it…
Yes even better – bypass Greediad altogether!
Hi Hazel, good to have you on the forum.
I applaud your courage in ‘coming out’ and your expertise with the pen – you make a good case for both compassion and generics in your letter to the ed.
Thanks for (hopefully) waking up NZ. May it lead to lots of hepsters healing.
And may the NZ government negotiate an even better deal with Gilead than the Australian government did. SOON!
Hi Ken, here is a thread discussing reinfection via toothbrushes & razors, it might help:
http://fixhepc.com/forum/questions-and-answers/281-tooth-brushes-razors.html#2362
All the best with your treatment.
Hi LG, I see Pooh Bear has his hand in the honey pot – your parcel must have arrived!
“Well,” said Pooh, “what I like best,” and then he had to stop and think. Because although Eating Honey was a very good thing to do, there was a moment just before you began to eat it which was better than when you were, but he didn’t know what it was called.”
― A.A. Milne, Winnie-the-PoohHappy journey LG, I hope you gain lots of weight.
Edit: just saw that GAJ beat me to that quote on another thread – great minds.
GOOD CRACK Wullie!
I’m still cacking meself. ide:' /> illy:' /> ide:' /> illy:' />
And amazed that V’s VL can jump from .2m to 6.9m in 13 days.
Tomas_73 wrote:I’ll probably take my pill with a double espresso and a bite of dark chocolate, 30 minutes before breakfast.
Hey, my kinda guy! Welcome Tomas.
I took my meds last thing at night and slept better than ever. For about 6 hours solid, and that became all I needed (normally 8 hours). Finished meds yesterday, waiting to see if my sleep patterns change…
GREAT news Enkel – so how are you feeling??
Yes really fantastic news Joan!
smile smile smile smile smile smile smile smile smile smile smile smile smile smile smile
I still haven’t learned how to line up the smilies. ops:
Thanks Enkel for starting this thread, good idea to have it all in one place.
It’s day 83 of 84 sof/dac. Finish meds TOMORROW. YAY!
HIghs: more ENERGY, better quality sleep and less of it needed, better digestion, no more dry-eye drops needed, less (or no) peeing during night, less anxiety and depression, less muscle & joint pain, more brain clarity (lumosity scores as proof!), skin is less dry, whites of eyes less yellow, eyesight seems better (reaching for specs less), night blindness when driving less hazardous, libido reignited.Lows: a bloated stomach that is uncomfortable when sitting. Occasional grabbing feeling in liver. Gained 2kg – and now need to lose 7! Pain in calves (maybe cos I’ve been off magnesium during Tx).
I agree with GAJ and others about the immeasurable emotional benefits. Becoming Hep C free is giving me not only the energy to socialise, but the confidence. I am more honest as the stigma and shame ebb away, and that makes for a more authentic me. There are definitely more ‘blue sky feelings’, more JOY. And sometimes a little deep breathing about this new concept of future.
Sincere thanks to all you wonderful fellow travellers-on-this-path for your humour, courage, sharing and support. And of course Dr James and Greg for making it all possible. And that unsung journalist, Michael Atkin, who put together the ABC 7:30 Report that led so many of us here.
May we all continue to SVR24 and never look back. And may the world become Hep C free, ‘no man, woman or child left behind’.Bonne Annee Life!
Your enthusiasm is infectious!
Hello all you Australian GT2s – have you seen Dr James last blog concerning the new treatment protocols?
If you are GT1 or GT3 then the PBS looks like it is going to come through for you (and that is 90% of all patients), however if you’re GT2 then your only option is Sofosbuvir +Ribavirin and if you’re GT4 GT5 or GT6 then you’re still looking at Interferon and Ribavirin + Sofosbuvir. –
http://fixhepc.com/blog/item/34-pbs-listing-some-tears-in-heaven.html
Not sure how they came to this conclusion as it seems some GT2s on this forum are clearing without Riba.
zhuk wrote:Had no misgivings taking the first dose this morning at all…83 to go
Congratulations Zhuk, at last. You have been SO patient.
Wishing you and LG and Ariel (and all others starting Tx) minimum sides and maximum speed to SVR.
Happy New Year.
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