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Viewing 15 posts - 331 through 345 (of 423 total)
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  • in reply to: Herbs after treatment…should I wait? #17847
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Hi ff66,
    I have no real experience with herbal treatments … like GT2 says, you seem pretty knowledgeable about it yo’sef. :) I am however, currently treating with generic Harvoni and am curious about side fx or potential ones and what others have found to help or hinder :unsure: so, thanks for this topic and ditto what Gaj said, congrats on EOT!


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: compounding bymyself #17846
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Hi ray and welcome, thanks for posting.
    In light of your doctors possible lack of support, I thought I’d repost my experience and encouragement to another member who expressed concerns similar to you. It may or may not be helpful, I hope the former.

    “I live in the US, and after a great deal of nervousness and anxiety over asking my doctor for a prescription, I simply printed out the article found here http://www.webmd.com/hepatitis/news/20160416/ge…ey-brand-names-study. and took it in with me to my appointment with him. I had already been denied by my insurance company 2 times on Gilead and Vikira Pak, as I needed to be at, or crossing over deaths door with stage 3 or 4 liver disease before they’d even consider partially paying for the $84,000.00-$95,000.00 cost of these options. I asked my dr. what he felt about this and he said he thought I should get treatment now and agreed it was crazy to have to wait until I was as sick as they required me to get. At that point I brought up the article and asked him to read it when he got time. He began reading on the spot. He then asked if he could get a copy. I told him he could have that one and then point blank asked him, “If I can access generic Harvoni, would you be willing to write me a script for it?” He said, “Absolutely. Who do you want me to write it to? Fixhepc or you?” After I put my lower jaw back in place :) He wrote me my prescription and I’m just now finishing week 1 of treatment, thanks to, Fixhepc, GP2U/MonkMed and of course Dr. James Freeman. So, put aside fear and try to get your doctor on your side before you ask him/her about writing you a script. I was prepared to ask for a referral from mine if he declined to write mine. Do some detective work. See if there’s a doctor near you, who’s proven sympathetic to our plight and who may’ve already helped others to obtain treatment. GP2U can be of great help too in this regard. Talk with one of the team there. It’s well worth a try. :+1:
    Maybe you can use some or all of this to help you with getting your doctor to run tests for you during treatment. Best regards, MK


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: isaing4 Twinvir story #17845
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    That calls for a little celebratin’ … Let me join you in your “happy dance”

    image-2-3-4-5-6-7-8-9-10-11.gif


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: EOT Viral Load result #17843
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Nice one Jimmy! I look forward to joining you and this growing crowd of svr12’s … Be a while yet. So, in the meantime I’m just adding to the mayhem of joy here … :lol:

    image-2-3-4-5-6-7-8-9-10.gif


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: So who are the reliable Indian suppliers? #17776
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google
    LondonGirl wrote:

    I don’t know why people just don’t go with the tried and trusted route with tracked shipping, Dr support / prescriptions from Aus/Indian Drs the EASL articles re Fix HepC and patient reports from MonkMed myself, but each to their own !

    Hey LG, thanks for the kind words, I have to agree with you on your point made above. Hard to fathom … but as my wife is fond of accusing me of, I always seek the path of least resistance :whistle: ;)


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: French govt announces universal HCV treatment #17773
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Some here may already know this about May in US, but some may not. (Really not trying to pun may/May here). :lol:
    http://www.cdc.gov/hepatitis/hepawarenessmonth.htm
    Oh, and not to get into politics here, but, hey Mike yer joking about the Trumpster, right? :whistle:


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: So who are the reliable Indian suppliers? #17767
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Hi beahaven, I’m also in the US, and after a great deal of nervousness and anxiety over asking my doctor for a prescription, I simply printed out the article found here http://www.webmd.com/hepatitis/news/20160416/generic-hepatitis-c-drugs-as-effective-as-pricey-brand-names-study. and took it in with me to my appointment with him. I had already been denied by my insurance company 2 times on Gilead and Vikira Pak, as I needed to be at, or crossing over deaths door with stage 3 or 4 liver disease before they’d even consider partially paying for the $84,000.00-$95,000.00 cost of these options. I asked my dr. what he felt about this and he said he thought I should get treatment now and agreed it was crazy to have to wait until I was as sick as they required me to get. At that point I brought up the article and asked him to read it when he got time. He began reading on the spot. He then asked if he could get a copy. I told him he could have that one and then point blank asked him, “If I can access generic Harvoni, would you be willing to write me a script for it?” He said, “Absolutely. Who do you want me to write it to? Fixhepc or you?” After I put my lower jaw back in place :) He wrote me my prescription and I’m just now finishing week 1 of treatment, thanks to, Fixhepc, GP2U/MonkMed and of course Dr. James Freeman. So, put aside fear and try to get your doctor on your side before you ask him/her about writing you a script. I was prepared to ask for a referral from mine if he declined to write mine. Do some detective work. See if there’s a doctor near you, who’s proven sympathetic to our plight and who may’ve already helped others to obtain treatment. GP2U can be of great help too in this regard. Talk with one of the team there. It’s well worth a try. :+1:


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Sorry ’bout that Ken, probably my mistake, not yours as far as when your SVR12 is … anywho, what, when, where, way … Ken! Dude! I checked you out on YouTube and HEY! “Kens Got Talent” maybe a new telly slot eh guitar man???
    Really great vids Ken, thanks for pointing us to them


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Hey Ken! Looks like you hijacked this topic :lol: (sorry Fretboard) So, if my calculations are correct, and I believe they are, you should be going for SVR12 today. Here’s hoping the very best for you :+1: :+1: I’m 1 week in to tx, so quite a ways to go before I get to where you are, but the odds are highly in your favor, as you know… still, I understand your nervousness… as I think Ariel or was it Beaches :blink: :P (blame it on brain fog as my wife tells me I do) we aren’t really sure until we see it on paper, right.
    Well anyway, we’ll all be waiting to see it after you do :+1: and oh, btw I’m checkin’ you out on YouTube :+1: :+1: :+1: B)


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: My Final VL and time on treatment #17761
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Way to go Rowan! Great results and thanks for posting it … (though the fart report was a bit tmi) hahaha! :lol: ditto what GT2 said about your partner :)

    image-2-3-4-5-6-7-8-9-10-11.jpeg


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: EOT Viral Load result #17735
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Hi Tina from the Pacific NW,
    That’s wonderful news. See what happens … a guy falls off the radar for a day or so, and somebody goes all SVR 12 on him! I am overjoyed to hear that. You had some rough patches but look at you now sis … “Rockin in the (Hep C) FREE world”!!!!! :cheer: :+1: #love #flower
    image-2-3-4-5-6-7-8-9.gif
    Even out of this world it would seem!! B)


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: Ariel takes the Plunge #17720
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    image-2-3-4-5-6-7-8-9-10.jpeg
    Hey Ariel! Every once in a great while, the ocean lets YOU win… but not very often. :lol:

    Keep on splashin’ sis … the joy is in being able to play at all … #duck #love


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: a script…for what? #17618
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google
    Matt-Kenney-google wrote:

    …. We all understand how scary it can be to do anything online these days that involves sending (what means for most of us) large sums of money to complete strangers :) Enrico, you are among friends who understand ;)

    Hey Enrico, I posted the above a couple of days back and I stand by it. We’ve all been where you are and had to take a leap of faith, so to speak. I spoke with Tim same as you. If I emailed him over concerns I was having he responded literally, within the hour, most of the time within minutes. He even texted me from JFK’s Tarmac and then phoned me when he deplaned. Jyoti, MonkMeds shipping guy in India was the same? MonkMed was incredibly supportive and still is even though, as I also let you know a few days back, I have already received my meds from them. They truly seemed to be as concerned about my shipment getting to me as I was.
    image.jpg
    This is what I got from them just this Wednesday. The main thing, as Paul so eloquently said, is get your meds from whatever source you choose and get done with this hep c beast.


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: HCV New Drugs Blogspot #17563
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Hey Mike! Thanks man. Some really great links … AGAIN! Why am I surprised??? I’m not really. :P
    Already starting to lite it up over at that 2nd link you gave us.

    image-2-3-4-5-6-7-8.gif
    Keep it up m :+1:


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    in reply to: Huffington Post article about Hep C #17561
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Followed your link Dr. James and was able to reply and comment freely about my experience with Fixhepc. I’m still amazed at the lack of care people are subject to in this world. But, what’s TRULY amazing is to be able to share what’s being accomplished by the Buyers Club and GP2U. It gives people hope. WOW!

    image-2-3-4-5-6-7.gif


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

Viewing 15 posts - 331 through 345 (of 423 total)