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Viewing 15 posts - 16 through 30 (of 101 total)
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  • in reply to: Need advise for gt4 treatment #27127
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Kaju,
    I trust that you will be able to focus on what Dr Freeman advises, because he has more experience with HCV treatment than most doctors have.
    It is good to undertake your own investigations to find the most expert guidance. Please do not get confused by having too many conflicting recommendations, just concentrate on the knowledge from the top experts.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    A year ago I landed at my family doctor’s rooms complaining of feeling seedy. “What could it be?” asked the friendly locum doc who was filling in. “My untreated HCV?” I wondered aloud. He wrote a referral letter to a local hepatologist and exhorted me to get treated. And so I did. Cured now, I am. SVR 24

    It turned out the lethargy was just low blood pressure so I upped my salt intake and sorted it out that way. But the side effect of meeting that doctor was that I took the steps to get the cure for the HCV. Win-win. Thank you FixHepC


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Low blood cell counts? #27116
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Nelu-Covaci-fb, Minunat să citești postarea ta, sper că rezultatele testului de sânge sunt mai bune acum.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Hey all. #27103
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi 40-odd,
    Great to have you on here! Your doctor’s interpretation of your tests as “some mild scarring” sounds like fibrosis, so you might need longer than 12weeks treatment. You now need more information. See if you can get hold of it from your healthcare team. Ask them to give you a copy of your liver function tests. Also for the fibrosis score or liver biopsy test results.

    By knowing your own numbers you’ll become expert by experience in your own healthcare. This ensures your next steps can be the right ones.

    Reflecting on your experience of your NHS healthcare so far reminds me how much of patient:provider relationships are defined by healthcare-rationing. In the US by contrast people can buy whatever healthcare they want so long as they have enough money and insurance. It is an interesting contrast.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Genotype 3’s info, updates corner #27095
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi MWILLIAMS, To answer your general question: Those with cirrhosis require 6 months treatment in order to improve their chances of reaching sustained virological response (SVR) :)


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Need advise for gt4 treatment #27089
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Kaju,
    Do not wait for your viral load to change naturally. Once you commence taking the right medication, most of the virus will die in the first week.

    Some of us on this forum who are cured, had more virus than you when we commenced treatment, others of us had less to start with. In the end we became Hep C free. It doesn’t matter where you start, the important thing is just to get the right drugs and start taking them, and to keep swallowing them until the virus has gone completely.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Need advise for gt4 treatment #27085
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Welcome Kaju, and hello,
    You have not stated if you have previously been treated, or that you’re treatment-naive. Knowing that can help your doctor decide on length of treatment.

    If you paste this exact search term: Hepatitic C Genotype Specific Treatment into the search function on this site, that should take you to a page with Table 6 showing the treatment regimens including for HCVC4. That table uses a traffic-light system so that suitable treatments are in green boxes. The ones that will not fix a particular Hep C genotype are in red boxes.
    Ask more questions, the folk here are pretty helpful.
    Mnem *)*


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Genotype 3’s info, updates corner #27067
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi MWILLIAMS,
    There is no need to be over-anxious about starting the treatment. The big thing is to take it at the SAME TIME EVERY DAY, REMEMBER TO TAKE IT DAILY. Also TAKE ALL OF THE PILLS.

    Some of us have done well taking the pills in the mornings.

    By the end of week one, all or most of the virus in your blood will be gone:)


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: 2B HERE #27065
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi HCV2B, thankyou for explaining about your Portland area Doc :)


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: 2B HERE #27060
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    The doc is an international expert, I only know what I learned here. The doc will have scribed the right stuff for you.

    My situation was that my liver and blood test results were all in normal ranges. I had no cirrhosis and not even fatty liver. Most of that down to my dumb good luck; any remainder due to my oxymoronic healthy lifestyle choices as I was scared I might develop cirrhosis. Since being cured I have relaxed and I now consume alcoholic beverages. Since getting cured I’ve become somewhat carefree.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: 2B HERE #27058
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi HCV2B,
    You should be able to see in my signature the short version of my HCV story. I was cured this year though generic Sofosbuvir + Velpatasvir. Incepta, its manufacturer name it Panovir. The Pan part of the brand name comes from the fact that this drug works for most types of HCV. The vir part of the word is the suffix from Sofosbuvir. With these HCV treatments everyone needs the Sofosbuvir but can often get a choice on the accompaniments.

    You were prescribed generic Epclusa, so that’s Sofosbuvir + Velpatasvir, otherwise known as Velasof or Sofvel. I could just as easily have opted for the drug you were prescribed because I had a choice, but I went for something else because one of the papers I read suggested it might be better by a fraction of one percent. In other words the drug you are getting is as good for HCV2 :+1:

    And no, I do not need to add a Capcha code each time I post. Someone more techy than I should be able to advise a fix for that problem you are experiencing #flower Alternatively ask a teenager, they know everything.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: 2B HERE #27050
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi HCV2B, You are doing fine, your smartphone is a small and powerful computer which is perfect for forum-ing, so do not angst. Through regular writing and posting here you’ll most likely become tech-savvy :idea: while getting cured of HCV.

    The title of this forum thread is 2B Here. That’s the subject title created two years ago when a member started the thread, I wonder whether it’s a wink to Shakespeare’s Hamlet) :P

    When you post on this forum it can be read by visitors and by members. But only those who are logged on can post a response.

    If you want a private dialogue with a fellow forum member there is a facility for that on this site.

    btw I got cured of HCV2B earlier this year through one of the Redemption trials B).


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: 2B HERE #27045
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi HCV2B, Later today someone should come onto this forum to provide some better answers but in the meantime here are a few starters:
    1. Many forum members here were cured through generic Epclusa.
    2. If your generics were ordered from Redemption trials, then this quote from Dr Freeman’s #25368 forum post may help:
    “there are regular problems. We do what’s required to make sure patients get their medication, but it is not always smooth sailing.

    There are 2 people working full time on a task that could be broadly defined as “get stuff cleared through customs”. “.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: 2B HERE #27043
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi HCV2B,
    Welcome to the forum. Waiting for the medications to arrive can certainly feel akin to watching paint dry, so hopefully yours will arrive one day soon. Then, when you do get the medication you wonder whether to take the first one then and there, or wait until morning, or the evening. Finally you take one and get your daily routine set up for success #flower

    Looking forward to hearing more about your travel on the road to becoming HCV-free.

    Yours, Mnem *)*


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Treatment after relapse #26973
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Welcome and hello Top14u,
    Many people come to this site after treatment failure, so this is a good place for you to be right now..

    You’ll need to know what type of HVC you have in order to get the right prescription to get rid of it once and for all. No need for trips to India for most of us on this site. I got my treatment from the FixHepC redemption trials. But there are other ways too. The thing I liked about FixHepC was the money-back guarantee #duck #duck #duck of delivery.

    Mnem *(*


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

Viewing 15 posts - 16 through 30 (of 101 total)