Forum Replies Created
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Donna
been a while since I have been on here delighted to hear all your good news. Take care hun lots of love
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.
)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Ariel,
so sorry to hear about all the crap you’re experiencing. Makes it hard when you are hoping for just the opposite after tx. Reading your posts is like going on a rollercoaster ride with you just sad it has left you feeling so low just now. Having said that I am hoping along with all your friends on here that you will be riding away from this bad patch to a more upbeat one. Am truly impressed that your wonderful sense of humour still shines through regardless!My partner suffers from Tinnitus too and sometimes he can almost forget about it and other times it drives him totally nuts so I have seen how people suffer deeply from it first hand. My heart goes out to you and wish there was a magic wand out there to make this shit all go away.
Teeth Brrrrrrrrrrr won’t even go there! At least you can count on being pain free once the tooth is out just horrible to lose them. Hope things start to get better real soon. One day at a time is great advce from Coral. Thinking of you and sending lots of hugs
Nadia xx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Sven you said it all perfectly!! Although years later she still has that same beauty and look in her eyes. Harsh life, makes me think when I am moaning about shit!
Nadia xx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Meg in Brazil, wow that is fantastique!!!!!! Hope things go from strength to strength. Glad I got to meet you to say hi before you head off for your wonderful sunny hep C FREE life! Joy of Joy yay!!!!!!
Nadia xxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi all you lovely people its been a few weeks now since i popped in after asking for some advice which was as always right there thank you so much you really helped. Have decided to take a further 6-8 weeks tx just to be real sure of doing the best I can,
I was about to go and have quite an invasive procedure for Atrial Fibrillation called an Ablation. Just a week before, I started to wonder why I was putting myself though it whilst still taking meds. Thought it was crazy to put myself through all the stress and end up not doing justice to the hep C meds or to the procedure! So put the Ablation on hold till mid January. Feel much more relaxed about it all now was getting too wound up about it all.
Feel great emotionally, better than I have for years, what a high!!!!!!! Just one little wish my bloody stupid heart would behave and stop acting up!!!!
Don’t like talking about myself so much when I know everyone has been through their own crap and some still going through it. so will stop there! 
I am trying to catch up with all the news and hope that everyone, those who have just arrived and those who have been here for some time are doing good. You too Doc. You are all amazing thank you for making this world a better place.
Nadia xxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Edge.
glad to see you have arrived here as so many of us have Its a great place to be, beautiful fellow travellers, plenty of amazing info and most importantly as much support as you need from very special people!!!!!It has been said ‘you are what you eat’ , diet is definitely a useful key to healthy mind and body, not that I always practice this myself but trying hard so your salad eating can only do you good
Sven has a good point about feeling relaxed enough to sleep cos you are on meds that will hopefully lead you to an HCV free life!
Wishing you a good journey to health and happiness
Nadia xxxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!So thrilled for you re your results. Everything crossed for your sons results.
Sending you a blanket of hugs
Love Nadia xx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Taking that leap of faith is the first step to making that choice Fitz grabbing life with both hands and anything else one can. Reading stories like yours and others here makes it easier for those that follow to jump for LIFE. thank you to all of you who have shown the way and how!!!
much love
Nadia xxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Fitz I am so delighted you made it here in time. It is bloody horrendous that anyone finds themselves in such dire straights but from the super negative has emerged something beautiful and positive, a new life a rebirth is what I see many of us going through! we are so lucky Fitz and life would have been the poorer without you. Take care of yourself
much love and a huge hug (I am into hugs i know not everyone is just don’t get it anyway hope you are haha)
Nadia xxx
…
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Crazy is good for me Greedfighter and Fitz. Everyone needs a little crazy in life generally in some instances a little more!!!!!! In Camden London UK there is an abundance of Tshirts with the slogan ‘normal people scare me’ I love it not yet seen one person wearing it maybe I will be the first!!
Love Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hey Fitz you sound really good like you are having a right great time. Briliiant!
Yee Haw indeedy!!!!!!!
love Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Oh shit Greedfighter!!!!! Guess as long as the pool is deep enough sure why not ………seeking a cure was an easier choice for me, might think on this one just a little longer haha!!!
Nads xx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi RHF,
your story is great to read quite the masterpiece and written billingually wow!!!!. The fact your story has been written in its entirety, start to finish for someone to get an overview of your journey is a brilliant idea particularly for those who may not regularly come and see what is happening and where the treatment is taking someone on a daily basis. It is a story of many emotions the ups the downs and the final conclusion to reach SVR and ‘cure’. For me the Romanian accent I can detect in the words adds to its charm but I have always been a sucker for accents
I have never been to Romania only Hungary which I can imagine has many similarities although I may be totally wrong. The same issues keep coming up time and time again in all countries about how so many, too many people are waiting for a treatment that exists and works but the financial constraints and a whole host of other reasons too which are not mentioned stand in the way. Politics plays with peoples health it is wrong. Many of us have been patient as you explain in your story but how long does someone wait when carrying such a nasty life changing virusl
I hope many people will read your story and gain strength and courage to do something for themselves or someone they know with HCV. I am sure you have already inspired many and will inspire many more RHF.
Thank you for writing it. Go forth and enjoy your HCV free life
much love
Nadia xxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Murr,
oh yeah I recognize the tiredness and the swollen ankles sometimes I think its the entire leg!!!! I too have high BP and always figured it was a hereditary problem which it still could be I guess. Now on 4 different meds with a topping of Warfarin to thin the blood!!! Originally on a couple till I realized I could barely make it up the road without becoming breathless. It was super frustrating (not that I do extreme sports like Ariel although surfing down the streets of London could be fun!) being so aware that your body is not working as you would wish it to!!!!After seeing my GP it turned out my heart was playing up and beating erratically. The name for it is Atrial Fibrillation AF for short much easier to spell for me!
Tests have revealed that my heart is in good shape but they cannot tell me what has caused this. I am not for a moment saying that high BP will lead to AF or that AF affects everyone this way, but like high BP I now wonder too if HepC has been the cause of it and am hoping that it will all improve after treatment given time. There are many days I feel bloody fantastic except for the AF giving grief if I overexert! So annoying!!!!I had not appreciated till coming onto this Forum how HepC causes inflammation of other organs. So much info and so much to learn on here and more importantly hope!
I really hope that your BP settles the longer you go free of this virus. Wishing you slimmed down ankles and no more meds and tiredness.
love and affection
Nadia xxxxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi RHF,
the maths as you say blows me away it is phenomenal and word of mouth so works in this situation. Coming here for info the first time was truely helpful and well that Australian you talk of wow an inspiration right?!!!! The second time I came was after the Redemption trials had already started I couldn’t believe it had all been put together in a way that made it really accessible to all. Just the thought that you could do something yourself with a little help from your friends and not be dependent on if your name and number came up or not was a good feeling gave one some self esteem and massive hope for the future.Ok yes monies comes into it but you just know that somehow you have got to do it, the amount is a small price to pay for ones health and well being. I don’t want to sound flippant it is still a lot for those with little, I know from personal experience as do others!!!. There were people also very dubious about the whole thing, having experienced rip off merchants or simply wary of anything that seems outside the norm. Personally speaking, I have spent much of my life on the edge of what is perceived the norm so once I read the forum and all the incredible people on here telling their stories and spoken to a few people at GP2U and FHC it was as clear as anything that this was the place to come and get well. No-one sits in judgement. There is a blanket of support around people from others who know how it feels and those who have the awareness to understand how important it is to treat the terrible virus before it does its worst!
I will certainly do whatever I can to spread the message to others. The NHS hospital I have attended the past 20+ years has slowly begun to treat patients who are not so desperately close to end of life situations but there is still a tight quota I believe and in the meantime there are still many totally unaware they even have this monster in their bodies. My understanding is the numbers are enormous but one never hears much about it certainly not in the media here in the UK. I remember many years ago a TV programme I think the title was ‘Bad Blood’ what a shit title!!!! No wonder people hid it away from those around them. Whew apologies for the soapbox. I will jump off it now!
Word of mouth is definitely the way to go when possible and I will make every effort to open mine at every opportunity
love and hugs
Nadia xx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!