Forum Replies Created
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My sentiments lie with everyone else who has answered your comment Doc!!!
You are so unique and what you have undertaken to do has allowed us all to help ourselves get well through one combination or another. For many, feeling ill from this virus for years and often decades was all too obviously devastating and for some we did not even realize just how bad we felt until we started to feel oh so much better. Looking back I cannot believe how I simply accepted what was happening and waited and waited! This is what happens all too often in all kinds of situations. People end up so apathetic to what is going on, feeling helpless to do anything. You have shown us all that if you really believe in something and have the ability to change things then you find a way. Without you and as someone else has said, those who work with and alongside you none of this would be a reality! My thanks and admiration are added to everyone elses on here!
You are our hero!!
all my lovexxxxxx
Nadia
by the way how do you add songs to these posts I am so bloody useless when it comes to working things out takes me ages of messing about and wasting so much time I give up pathetic I know!!!!
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!ThanKS LG you are always so supportive so very much appreciated. My OH is a real help but I worry he is doing too much doesn’t know how to relax always on the move and then takes everything upon himself. Its lovely he wants to but I worry about his health!!!
J does have a couple of wonderful PA’s who take some of the pressure off but you know what mothers can be like thinking only they can do the job properly unable to let go and allow others to take over! Some lessons hard to learn!!!!
Totally agree about the advice given by Dr Debasis so looks like I will follow in your footsteps and stay on tx a little longer. Happy to if the end result is to kick the wee fuckers out!!! haha!
Thanks LG and so thrilled about your news,WHAHOOOOOOOO!!!!! Makes all the crap you have been through worthwhile right?!
much much love and hope for the future.
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!GF bright future ahead
. Great result enjoy the feeling and possibilites big time! Loads of love
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Gaj,
thank you so much for your helpful words and info. I did look up the test I had but had trouble understanding its accuracy you have so helped clarify this for me. I did wonder if stress and other health factors might affect certain results. Think maybe I need to take some time out to read a little more
You are amazing Gaj the help you give on here and the ease with which you put things into words that all of us can understand whilst at the same time experiencing all the challenges you are going through yourself. Thank you from me is not enough really. I am so happy to see you are preparing for another attack on this monster. Wishing you everything positive for your next attempt. I hope I am around the day you kick this bastard!!!
Much love and enormous hugs to you
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
I am so made up LG sorry I missed the actual day!!!!!!!! Fantastic results the relief must be massive!!!! Bet you are walkin on air, .i can feel it!! Love coming on here and reading great news like this. May your life be filled with good times. You are so in control now and its all down to your own courage and a little help from your friends (should really read a lot of help from friends on here!!!! :kiss
much much love Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Great post Mike and everyone!!!! I came here …….? Bad memory for things particularly dates, but do remember reading a few people were heading for India to buy meds and I was drawn in! Remember going for an appointment at the RF hospital all excited and asking if they would be prepared to monitor someone who chose to do this rather than waiting for years to be treated by NHS. Got short shrift and told about people buying drugs that in all likelihood were not the real deal!!!!!!!
I wan’t put off but knew going to India was not an option at that time due to family situation and other ill health,By the time I came back to the site I could not believe the change that had taken place thanks to you Dr Freeman and the early pioneers taking that first step. This time I was not going to let anything get in the way of seeking treatment and the price for health was a steal! I know many people have been nervous venturing into this seemingly unknown territory. They were paranoid about being ripped off but reading all your stories it was so clear this was for real!
Thank you all for changing lives! Taking the first steps, making the changes required and giving your all to everyone who comes here. As Sven says thank you is not enough there are no words to express the feelings. So much
to all!!!!
Nadia (no 2)!!!!!!
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!WOW!!!!! Ariel, CC2B and HG just read your mega brilliant news!!!! I am blown away. Fantastic post everyday people are getting their SVR24 results and the news makes me want to shout out load except its early morning and everyone else is fast asleep, so…..
May life now bring many more good things to you all!!!!
love Nadiaxxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi LG, really hope not long to wait for your results to come in so you can finally chill and feel job well done!!!!!
I am with you on everything you say about this site and you re such a big part of it. You are always there ready to welcome someone new and offer advice from personal experience. Your support is mega important to us who follow in the footsteps of everyone who has taken this journey before!! If Karma exists (have to say at times I am cynical about it) but regardless you deserve a great outcome! Its what I wish for everyone.
Mega huge hugs
love Nadiaxxxx.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Donna that is so fantastic and look like you are well on the way to ridding yourself of this horrible beast! Yay!!!!!!!
Like yourself I have a son with special needs and want to be around for him as long as possible. I worry that there is no-one who will love him and care for him the way I do and he will always need 24/7 care.I am travelling this treatment journey with you albeit just a few weeks ahead, (on week 8 of treatment) My 4 week results ended up a total mess!!! My GP is lovely and was willing to help but not a specialist in this area so is learning as we go along!!! Got my ALT (down to 23) Have had to do another blood test for my AST which was missing (final result was 33) and then another to redo VL which the lab had watered down due to not having enough blood sample!!! Complete botch up but have them now just over the past couple of weeks. Not exactly week 4 results haha!!! I too am UNDETECTED!!! (using I think the quantitive test which has simply said undetected, rather than qualitative test which does give an actual figure). Hope I have this info correct wouldn’t want to be talking crap. As you say Donna it is all a bit confusing but it does start to get a little clearer all these results!!!
This is so definitely the right place for you to come for info super educational along with amazing support from lovely people who have been on this journey already or who are in the process, or those who are sadly in the shit position of having to try again.It is an amazing place.
Looking forward to seeing you reach the end goal!
Lots of love and hugs to you!
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Rohcvfighter and LG hoping you both get the very very best news shortly. And hey RHF having those childlike feelings I think is good even great.! Kids are so alert and aware in ways adults seem to have lost it!!!!
love to you both and hope the wait will be over soon.
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Good cause! Surprised the petition has slowed down French are always so proactive over any public injustice! Guess the entire world needs a whole lot more educating when it comes to HepC!!!!!!
Just signed petition and will ask others I know to do likewise.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Coral thank you so much for your sweet words. I really appreciate all of your messages of support especially given everyone has been or is going through the same shit always hopeful they will give it a last wave goodbye or even a boot up the arse!
I promise I am not being lazy bout writing on this forum although sometimes when I see all the messages flying to and fro, I do feel I should come on here more often!
There is so much to learn from you all so very much to read wish I could lock myself away from everything for a few weeks and just take it all in but life just keeps on pulling me away so guess I will do all I can to keep in touch and see how everyone is getting on. You are all so brilliant, open and kind makes me want to spend more time here!!!! I often read info I wish I had noticed at the start just have to try and keep up! Easily distracted! Have noticed over the first few weeks on meds that my brain just gets more and more foggy!!! Wondered if it shouldn’t be having the reverse effect!!!! I have always tended to forget where I put things but now if I put a letter down for example for a couple of minutes I just can’t fuckin remember where it is!!! I loose my glasses which I have always done but don’t even remember if I have taken them downstairs, don’t remember even going there!!!! Chaotic is the word. I watch the look on my son’s face and my OH and see they are quite bemused and frequently amused! I say good to laugh great medicine
Just somewhat worrying tho!Trying to keep positive, yet each time one of yous gets the dreaded detected after all the weeks of taking meds it brings me down to earth and reminds me that shit happens to people often the best. This is not 100% certain and we all are aware of it but it hurts no less when it happens. I wish everyone who is starting re-treatment or awaiting it finds the ‘golden pill’ that works for them. The new drugs coming along sound hopeful especially for the G3s.
I send everyone my love and admiration and thank you all for being such a warm caring bunch of people. You always raise my spirits even those of you experiencing all the crap this virus keeps chucking at us! I know I know I am gushing now!
Thank you
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Matt I have really got to keep up on here.
Sorry I missed your great new earlier!!!! That is so bloody great makes my heart sing every time I hear someones good news. Rock on Matt to the next one and the rest of life!!!!
Nadia
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!You are so right LG about the testing here in the UK. Its a bloody minefield! There seems to be no consistency of testing for VL. It is almost as if samples are sent to a variety of private labs and it just depends on how that particular lab operates. i am probably totally wrong, it is just an impression I have.
My first results through the GP when I needed the base readings prior to SOT were all present in the print off. I just assumed the next tests at 4 weeks would be the same but was unpleasantly surprised to find they were quite different. When it came to VL the lab had mentioned having to dilute the sample as there was insufficient and that there was a possibility the test had been compromised as a result. For me it seemed totally pointless as a lay person. How can one provide results where the sample is diluted I do not see how this works efficiently enough to give any accuracy!!! So requested if my GP could do a form for me to retest the VL. Seems totally crazy that one of the most important elements to seeing if tx is working effectively is so variable for us all. Am waiting for my GP to tell me she has been told not to do so many tests for me, costing the surgery too much!!! Maybe just being pessimistic hope so!
I do also wonder whether all the testing the NHS does isn’t being syphoned off by private companies just as other areas are disappearing into private hands! Have never understood the logic behind handing over something to people who are more than likely going to charge more, if not immediately certainly in the long term!!!! If there is insufficient profit will they just water it all down?!
Dr Freeman I hear your pain!!!!!!!
I feel it too albeit not in the bollocks!!! It is both frustrating and heartbreaking when tx does not work as one was expecting. Hence all our frayed nerves every time waiting for results. Hope does drive us on and eventually with a little help and support we get there. Thank you for being here it would be an even longer road without you Sven and anyone having such tests done guess we just keep fighting till we get it. Right? Power to you!
Thank you everyone
Nads
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi LG,
been a while hope you are feeling good and enjoying life after EOT! You so need that after some of the traumas you went through on tx. Your bruising and lumps sound horrendous much worse than I am experiencing. I have been rubbing arnica cream onto the bruise and it works brilliantly. Seems to draw out the bruise and makes it go much quicker than just leaving it. Thank you for that great bit of info I will certainly ask my GP once she is back from her hols sounds like a brilliant place! You are always so caring and helpful to others its a real privilige to meet such a fantastic group of people. The one advantage to having hep C! ( there had to be a positive in it somewhere haha!!!) Will let you know how it goes LG. You take good care of yourself.
#loads and loads of love Nads
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
