Hi Sonja,

Wasn’t a member here when you were posting about your BF’s journey,however always great to hear these stories of good health after having been cured .

Best to both of you!

S

Sven says:

“Well…..I must say “you can” say that because big pharmaceutical is saying “fuck you” when you ask them for help curing your HCV. Then they’ll tell you, like they told me, “ok we’ll help” you can pay us $90,000.00 USD instead of the $110,000.000. “Fuck you” is appropriate. ”

I couldn’t agree more. I certainly have no love for the greedy insurance companies (albeit they covered me without having to wrestle with them) however to me this is where the evil and greed really is ….with big pharma.

I was one of the first patients in a trial for a DAA in 2010. I failed the treatment and ended up with a VERY resistant Ns5a mutation enhanced strictly from being in the trial.

Years later when there was a viable treatment for me to try my Hepatologist and myself went to the drug company first to see if they would help with coverage. My Hepa told them “look this patient entered a trial and failed the treatment and ended up with resistance enhanced because of that and now she needs some help with a drug that may work. They said NOPE she is on her own.

Then I went to my insurance co. and I must admit they fought with the drug company for months to try and get a discount from the ridiculous 75 grand they wanted and and all they reduced it was 10grand.

Last I checked Gilead in their last quarter report has made >22 Billion off the HCV drugs alone (Thats with a b) and refused to help someone who was in a small way, by being in a trial for them was able to make that kind of money.

Thats were I say the absolute greed lies. They have no soul!

S

For the most part don-joe this is a forum for those of us with or treating HCV. Sharing and support.

You said almost 3 weeks ago you had some symtoms and mentioned you were tested for the hepatitis’s.

Would it not be best to rely on the doctor running your tests (and seemingly asking some history)
to give you his/her profesional opinion on what they feel is going on .

If you have not been given the results of your hepatitis tests yet the doctor should have had them by now.

It would seem the professional that prescribed you bactrim feels there may be an infection going on somewhere and it would only be dangerous to take that if you had severe liver damage ,which obviously they do not feel you have (backed up by those tests you posted)

S

Congtats mrcleanrt ! That first UND test is so nice to hear!

Best of luck

S

I know it is frustrating having symptoms that can’t be explained by your doctor and tests that have been run. It seems the body has its own way of reacting to things and often unexplained by doctors and certain tests.
I found it a tad odd when you said ” a hope that this could be my answer” when tested for Hepatitis C .(possibly hoping having Hepatitis C would be what was causing your symptoms).

Maybe I don’t speak for all of us here ,however, I for one would have been overjoyed to have tested Negative for this terrible virus some 18 years ago.

Congrats on testing negative for this zippeh and good luck with getting to the bottom of what is going on.

S

Hi Sharmon
Yes, as Mar mentions a good disciplined tx. and you have done all that was in your control.
Good luck on your SVR test
S

Just wanted to reiterate what Greedfighter mentions above and too add that this also pertains to Canadians.
This site was instrumental through the Redemption Trial of myself being able to access the meds needed for my last 4 weeks of treatment.

For any Canadians I highly recommend getting in touch with them here if insurance/and or govt denies .

S