Roger Esnouf - FixHepC - Page 10 of 14

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24 December 2015 at 7:02 am in reply to: Residual Solvents in Certificate of Analysis #7197
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
The Certificate of analysis I got from Kingswood for Dac says it should be less than 0.5%, so 0.38% is fine. My Dac came from the same batch.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
23 December 2015 at 5:33 pm in reply to: Background info on Sussan Ley’s announcement #7158
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
For those things we need to learn before doing them, we learn by doing them.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
23 December 2015 at 3:28 am in reply to: Background info on Sussan Ley’s announcement #7111
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Seymour wrote:

Nobody should undertake hep C treatment without the supervision of a suitably qualified doctor.

Nobody in Australia can legally buy or import any listed meds without consulting a doctor and getting a prescription. My GP refused to prescribe as he was not familiar with the treatment options but was happy to order tests. I then consulted a suitably qualified doctor (Dr Freeman) with the results and was prescribed the appropriate treatment.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
22 December 2015 at 4:14 am in reply to: Background info on Sussan Ley’s announcement #7035
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
I’m interested in how it is possible to estimate the number of undiagnosed? I guess you could use a decent size random sample of people and then test them all and extrapolate. But that would cause an analog of Heisenburg’s Uncertainty Principle ie. just doing the test would change the results.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
21 December 2015 at 5:19 pm in reply to: Background info on Sussan Ley’s announcement #6964
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
I was referring to zhuk’s 1990 diagnosis. There were no treatment options then. I certainly have encouraged people to fixhepc.
One of my best friends is F4 Gt1a but still wants to wait for PBS. Horse > water > !=drink.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
21 December 2015 at 5:09 pm in reply to: Incase of Harvoni relapse whats next ? #6959
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Ditto, no apology necessary.
I was pretty confused with all the jargon when I first started looking into this and learned lots more in the couple of weeks I’ve been on this forum. Still get confused!
I think Dr James posted elsewhere that treatment should be longer if you are F4.
Edit – I see he posted while I was writing this.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
21 December 2015 at 4:46 pm in reply to: Background info on Sussan Ley’s announcement #6952
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Not giving a shit can be a way of coping with the fact that giving a shit would be pointless with no treatment options.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
21 December 2015 at 4:39 pm in reply to: Incase of Harvoni relapse whats next ? #6950
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
darbara wrote:

Its been just 11 days for me on the meds. No I mean I will continue for 16 weeks BUT after 12 weeks if I have achieved SVR then I will stop after 16 weeks.

As 86 said, you can’t have SVR while you are still on meds. SVR is Sustained Virological Response measured after end of treatment (EOT). You are confusing SVR with UND (Undetected). If you are UND after 4 weeks on meds you almost certainly will be UND after 12 weeks of meds. But for SVR12 you need to be UND 12 weeks after finishing taking meds.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
21 December 2015 at 4:28 pm in reply to: velpatasvir or daclatasvir (pangenotypic) #6946
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
The overall cure rate in ASTRAL-1 of 99% looks good but I’d imagine comparable tests of sof/dac and sof/led would be in the same ballpark.

The majority of serious adverse events and deaths were associated with advanced liver disease.

Surely some patients with advanced liver disease would die in 12/24 weeks whether treated or not.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
21 December 2015 at 3:09 am in reply to: Google & fixHepC #6852
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
If we all click the link, maybe we can bump it up.
https://www.google.com.au/#q=hepatitis+c+forum

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
20 December 2015 at 4:39 pm in reply to: AT LAST THE XMAS PRESENT WE ALL WANTED PBS LISTING #6828
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
mgalbrai wrote:

A measly billion dollars might cover upper management’s Christmas bonus…
Mike

That’s probably too close to the truth to actually laugh at.

A bit later……… yes I thought I read something today. From Dr James’ blog –

According to Reuters John Martin, CEO of Gilead Sciences, has taken home $400.6 million dollars between 2009-2013 and is on track to take home $600 million making him the best remunerated executive in the USA.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
19 December 2015 at 5:05 pm in reply to: Australian PBS listing in March! #6729
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Just noticed the time on the SMH article, 10 minutes from now. Great prescience Dr James!

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
19 December 2015 at 4:50 pm in reply to: Australian PBS listing in March! #6726
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
That’s marvellous news! And no mention of triaging patients. I was sure they would limit availability or stall some more. Still, I have no regrets on starting now.

No mention of Viekira Pak which is TGA approved and PBAC recommended. Said to held up because of pricing negotiations but I wonder if safety is also a concern as it is reportedly potentially lethal for patients with significant liver damage.
http://www.fda.gov/Drugs/DrugSafety/ucm468634.htm

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
19 December 2015 at 4:06 pm in reply to: Hepatitis Australia #6715
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
I see HA cover their arse with a legal disclaimer. It’s great they posted the info though.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
19 December 2015 at 3:55 pm in reply to: London Girl’s NHS Experiences #6714
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Alsdad wrote:

Google is your friend LG
http://www.livestrong.com/article/88143-mild-flulike-symptoms/

I’m not sure how to distinguish “mild flu-like symptoms” I have every day from the “mild flu-like symptoms” of side effects.

Also, I recommend StartPage as a great search engine. No logging or data mining.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
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