Roger Esnouf - FixHepC - Page 8 of 14

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7 January 2016 at 5:10 am in reply to: Sonix Tx Log #8212
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Three weeks down, nine to go. I still feel a bit fuzzy in the mornings but generally more clear headed and energetic. I swim 3-4 times a week and have done 600 metres almost non-stop! Previously that would have been a struggle and would need a few rest breaks to swim that far.
Still have that speedy feeling but not quite as intense. Sleep is still less than I’d like, average about 6 hours with intermittent waking some nights but not all. I sometimes try for a siesta but usually doesn’t work. Occasionally I will have 10-15mg oxazepam or a couple of puffs of pot to ensure sleep if I have a big day ahead. Pot is actually better for this as the oxazepam seems to take longer to wake up and clear the brain the next morning.
I’m not noticing much difference in the other symptoms originally posted. Skin is still prickly, seborrheic dermatitis unimproved, although my general mood is better overall. We had another heatwave in Melbourne just before New Year which knocked me around as usual, and I think I slept badly on New Years Eve causing subluxation in my neck but that’s from the osteoarthritis/fibromyalgia which is likely not completely HCV related. And my osteopath is on holiday till next week.

TL;DR – Some great improvements but still not 100% healthy.

Looking positively to the future, 4 week blood tests next week..

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
7 January 2016 at 4:02 am in reply to: HCV New Drugs Blogspot #8208
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
mgalbrai wrote:

Another compelling example why we need to eradicate HCV now it is within our power to do so:

http://hepatitiscnewdrugs.blogspot.com/2016/01/salt-lake-city-more-cases-of-hepatitis.html

m

That’s a shocking report, nurses stealing IV drugs and refilling and reusing the syringes on patients. That is insanely reckless and irresponsible. They should be hung.
Some of the comments on that page reveal the ignorance of the public re HCV. Mention of sexual transmission which I understand is extremely rare, and lack of a cure. Not sure about the USA, but in Australia every news media has carried stories of the new DAAs and recent government scheme.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
7 January 2016 at 3:41 am in reply to: Joan Started treatment #8207
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Good that you’re having improvements and feeling positive. There’s a song from years ago “The Future’s So Bright, You Gotta Wear Shades” Seems apt.

For smileys, use “Reply” or “Reply Topic” and you will get a choice you can just click on. They don’t show when you use “Quick Reply”.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
6 January 2016 at 5:07 am in reply to: Drinking alcohol #8124
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
I think Google Translate just exploded.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
6 January 2016 at 4:56 am in reply to: Any Luck Receiving NHS Monitoring in the UK? #8121
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Thurl wrote:

I found my GP more receptive to my use of generics and he agreed to do a full blood test for me (ALT and AST came back normal – pretreatment both were raised) but said he didn’t have the authority to obtain a VL test for me.

My GP had no problem with ordering blood tests including VL pre-tx but wouldn’t prescribe and said further monitoring should be done by the prescribing doctor. He’s in a clinic that mainly sees families and old people so I may be one of his only HepC patients.
His main concern was the quality of the generics but was satisfied when I explained the testing/verification process.

Are you in Australia, Thurl? I think it would be helpful for everyone here to put their country in their signature so it’s easier to understand our individual situations. I’ll do mine now.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
6 January 2016 at 4:13 am in reply to: Supplements with evidence #8115
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
I’m very wary of statins. Some evidence points to accelerated ageing and other nasty unwanted effects.

http://articles.mercola.com/sites/articles/archive/2016/01/06/new-statin-recommendation.aspx

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
6 January 2016 at 3:37 am in reply to: Foods that interact with Sof/Led? #8107
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
There was a thread a few days ago which addressed some of the food interactions with one of the main metabolising enzymes.
http://fixhepc.com/forum/questions-and-answers/523-caffeine-codeine-noni-not-good-with-daclatasvir.html

In particular was an included link to this pertinent article which mentioned other foods to be cautious of or avoid –
http://www.ganfyd.org/index.php?title=Inhibitors_of_CYP3A4

I would love to hear from Dr James on foods while on treatment, and an FAQ would be most helpful.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
4 January 2016 at 2:11 am in reply to: Drug that costs $1200, and sells for $5 in India #7911
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
The distribution of wealth in the world and particularly the USA is disturbing. It could be described as inhumane. It is way worse than most people imagine –
Viral Video Shows the Extent of U.S. Wealth Inequality

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
4 January 2016 at 2:03 am in reply to: Improvements during and after HCV treatment #7909
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Incredible improvements. Nice!
Them cigarettes are a bitch. I quit heroin, methadone and paroxetine just with willpower, but with ciggies I have cut down vastly but just can’t make that final jump to none. Yet.
https://www.youtube.com/watch?v=65_-vNtWLLs

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
4 January 2016 at 1:52 am in reply to: A New Year in the State Belgium #7908
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Life wrote:

Natalie cole died? WTF??? I thought she was doing great?….

RIP Natalie. I shed a little tear listening to Unforgettable.

https://www.youtube.com/watch?v=MKCyUe4syc4

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
2 January 2016 at 5:39 pm in reply to: Hetero … Sof, Sof/Led Combo #7832
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
They have an address and phone number in Toronto, for what it’s worth. Which isn’t much really.
Is importing and reselling generics even legal in Canada?

Domain Name: HEPCCURE.NET
Registry Domain ID: 1986580316_DOMAIN_NET-VRSN
Registrar WHOIS Server: whois.tucows.com
Registrar URL: http://tucowsdomains.com
Updated Date: 2015-12-12T13:52:15Z
Creation Date: 2015-12-10T11:36:45Z
Registrar Registration Expiration Date: 2016-12-10T11:36:45Z
Registrar: TUCOWS, INC.
Registrar IANA ID: 69
Registrar Abuse Contact Email: domainabuse@tucows.com
Registrar Abuse Contact Phone: +1.4165350123
Reseller: Hover
Domain Status: clientTransferProhibited
Domain Status: clientUpdateProhibited
Registry Registrant ID:
Registrant Name: Contact Privacy Inc. Customer 0141928299
Registrant Organization: Contact Privacy Inc. Customer 0141928299
Registrant Street: 96 Mowat Ave
Registrant City: Toronto
Registrant State/Province: ON
Registrant Postal Code: M6K 3M1
Registrant Country: CA
Registrant Phone: +1.4165385457
Registrant Phone Ext:
Registrant Fax:
Registrant Fax Ext:
Registrant Email: hepccure.net@contactprivacy.com
Registry Admin ID:
Admin Name: Contact Privacy Inc. Customer 0141928299
Admin Organization: Contact Privacy Inc. Customer 0141928299
Admin Street: 96 Mowat Ave
Admin City: Toronto
Admin State/Province: ON
Admin Postal Code: M6K 3M1
Admin Country: CA
Admin Phone: +1.4165385457
Admin Phone Ext:
Admin Fax:
Admin Fax Ext:
Admin Email: hepccure.net@contactprivacy.com
Registry Tech ID:
Tech Name: Contact Privacy Inc. Customer 0141928299
Tech Organization: Contact Privacy Inc. Customer 0141928299
Tech Street: 96 Mowat Ave
Tech City: Toronto
Tech State/Province: ON
Tech Postal Code: M6K 3M1
Tech Country: CA
Tech Phone: +1.4165385457
Tech Phone Ext:
Tech Fax:
Tech Fax Ext:
Tech Email: hepccure.net@contactprivacy.com
Name Server: NS1.OFFSHORERACKS.COM
Name Server: NS2.OFFSHORERACKS.COM
DNSSEC: unsigned
URL of the ICANN WHOIS Data Problem Reporting System: http://wdprs.internic.net/
>>> Last update of WHOIS database: 2015-12-12T13:52:15Z <<< Registration Service Provider: Hover, help@hover.com
+1.8667316556
http://help.hover.com

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
2 January 2016 at 12:05 pm in reply to: Phoenix rises with help of Sof/Dac #7798
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
@GAJ Yeah I would definitely not recommend regular use. My experience is a couple of puffs at a mate’s place and having a good night’s sleep for a change.

Sorry if we’re hijacking your thread, Phoenix, but need to make it clear.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
2 January 2016 at 11:58 am in reply to: So who are the reliable Indian suppliers? #7797
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Suppliers are listed in the stickies in this Pharma’s market section.
Re Mylan –

Still looking for trustworthy retail sources.

http://fixhepc.com/forum/daa-access/455-mylan-sof-sof-led-combo.html

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
2 January 2016 at 9:41 am in reply to: Phoenix rises with help of Sof/Dac #7788
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Food for thought indeed. I love pawpaws and it’s a good season for them now, but they are mentioned on that page you linked.
I’d like to hear Dr James comment on this.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
2 January 2016 at 8:33 am in reply to: Phoenix rises with help of Sof/Dac #7783
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Phoenix wrote:

Being very careful with Dac interactions. Avoiding all vitamins, herbs, citrus fruits.

You may be being overly cautious here. Most vitamins and herbs can be helpful and I’m certainly not stopping my daily ones. I just checked the drug interactions site and the only one contraindicated (of the ones I checked) is St John’s Wort, with antacids and grapefruit as “potential”. Even cannabis is not contraindicated and I can vouch it helps with the common sleep deprivation many people here have reported, although I wouldn’t do it every day.
There is also a thread on this forum about B12 and it’s probability to increase the efficacy of DAAs.
Check here – http://www.hep-druginteractions.org/checker

Lotsa luck with your Tx!

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
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