Forum Replies Created

Viewing 15 posts - 16 through 30 (of 307 total)
1 2 3 … 19 20 21
  • Author
    Posts
  • 31 May 2018 at 2:12 am in reply to: Can someone answer my questions. Just finished mavyret #28091
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi James, and welcome!

    You have certainly come to the right place if you want to obtain generic Hep-C medication from a reliable source. But first, you really should find out what is causing the dark urine.

    Have you seen your GP recently? If you got the Mavyret on the NHS, there should be a GP or liver specialist who is giving you prescriptions for blood tests in order to follow your progress. If not, now is definitely the right time to go see your GP and ask for a viral load measurement. Hopefully, the viral load test should come back as “undetected”. But this one can take 7-10 days. The other tests should only take about a day, and could quickly indicate if there is an obvious medical explanation for the dark urine.

    In the short term, it is possible to have dark urine from certain foods or dehydration (like after heavy sport and/or long sauna). But this should only be temporary. Like it says in the packet with every medication – if symptoms persist, consult your doctor.

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    8 May 2018 at 7:46 am in reply to: Sof/Dac 2018 guidelines for treatment of G3 #27965
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi RSF,

    I had 12 wks of Sof/Doc for GT3, and it seemed to work: SVR at 16 wks. But about 18 months later I found that I had relapsed, so I was probably in the wrong end of the 90% at 24 wks category. Because I felt absolutely fine after 1 year, I did not bother getting a final VL test. With hindsight, this was a mistake.

    With all the success stories here, it now seems like overkill to do a lot of testing while on treatment, but doing 12, 24 and 48 week post-tx tests would still be wise…

    Oor Wullie

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    26 January 2018 at 12:53 am in reply to: GT3 Relapse and News from France #27321
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi James,

    Yes, a new genotype test has been ordered. I am guessing still GT3, but its a crazy world. Result expected in 2 to 3 working days.

    Thank you for the good advice. If necessary, I am hoping it might be possible to piggy-back a top generic treatment with the official one (which is very good but not to the tune of 24wks). I really want to kill the monster for good this time.

    But there is a further twist that I am not posting on-line. I have just sent a mail to Dr Debasis about that. Since you kindly offer, I will forward to you as well.

    Hope you enjoyed Paris!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    25 January 2018 at 2:53 am in reply to: Gaj #27313
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    One of the things that makes the FixHepC forum a special place is the quality of its moderators. Gaj was a force of kindness, wisdom, and good humour. He has gone, but he is not far away.

    The Ship, by Charles Henry Brent
    What is dying?
    I am standing on the seashore.
    A ship at my side spreads her white sails to the morning breeze
    and starts for the blue ocean.
    She is an object of beauty and strength and I stand and watch her
    until at length she hangs like a speck of white cloud
    just where the sea and sky come down to mingle
    with each other.
    Then someone at my side says: ‘There! She’s gone.’
    Gone where? Gone from my sight that is all.
    She is just as large in mast and hull and spar as she
    was when she left my side,
    and just as able to bear her load of living
    freight to the place of destination.
    Her diminished size is in me, not in her;
    and just at the moment when someone at my side says:
    ‘There! She’s gone,’
    there are others watching her coming,
    and voices ready to take up the glad shout
    ‘There she comes!’
    And that is dying.

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    24 January 2018 at 9:10 pm in reply to: GT3 Relapse and News from France #27308
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hello my old friends! Like Ariel said, long time between drinks! Anyway, thank you all for your support and good wishes. I really appreciate it!

    I am hoping that what remains is not a diverse population from a lifetime infection but a single strain of weak mutants that only just escaped being completely wiped out by the SOF+DAC, and which will soon be finally whacked by a different treatment, like it seemed to play out for Coral.

    Anyway, gotta go and paint my bucket yellow, so I wont looks so bad in comparison (crafty, eh?).

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    11 November 2017 at 2:02 pm in reply to: FixHepC T-shirts? #27006
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Thanks a lot James, your instructions worked perfectly! As you forewarned, vistaprint sets the red part orange after the logo is first uploaded. But this can be fixed by clicking on that part of the logo; you then get a pop-up menu which lets you change it to full red…

    Cheers,

    fixhepc_fix_vistaprint.png

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    22 July 2017 at 12:27 am in reply to: Investors Business Daily: How AbbVie Could Hammer Gilead … #26622
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    So, bonus points for Abbvie investors, then?

    Still, its a pity that curing the world of a major disease is still something the business world fails to understand…

    —-

    First there was prohibition and gangsters like Al Capone. Then the wise guys moved to Las Vegas and organised crime became legal.

    Now there is Big Pharma, and organised crime is even more legal and widespread.

    Bastard gangsters, all of them!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    3 July 2017 at 12:54 am in reply to: US considering a block on imporation of generics? #26520
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi James,

    Please permit me to propose a small correction:

    ”James-Freeman-facebook” wrote:

    Anybody who does not think this is the work of Big Pharma, and that the target drugs to block are not narcotics, just does not get how the world of Big Pharma actually works.

    Big Pharma are bastards, but never doubt the fact they are cunning bastards.

    I still like to believe that the rest of the world is Bigger than Big Pharma, and that in the war between facts and “alternative facts”, the good guys will win in the end, despite the millions of dollars that go into political lobbying.

    So thanks again to FixHepC for still plugging away on the basic truth that generic hepatitis C treatments work just as well as the branded version.

    A war of words is won one fact at a time. Thank you for giving the good guys some ammunition.

    … and for curing thousands of ordinary folk on the way. :)

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    1 July 2017 at 1:44 am in reply to: US considering a block on imporation of generics? #26516
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi GreedFighter,

    Probably it is just talk… No doubt the “Big Pharma” companies would love to have all the world’s government customs agencies working for them. But the reality is that no responsible government and no responsible customs agent would ever or should ever want to prevent an ordinary citizen from travelling with life-savings medicines on their person.

    Imagine the political and press outrage if some old grandpa or grandma (like most of the people on FixHepC) had their heart pills or hepatitis pills confiscated at the border? What they heck are our tough customs agents playing at? They should be protecting our borders against terrorists, not sick people.

    So if it is OK and accepted that ordinary citizens can travel from country A to country B with their personal medications, what’s the big difference between that and getting a small quantity of life-saving medicine delivered by post?

    By the same argument, there should be a major political and press outrage if ever a personal quantity of essential medicines is blocked by the postal or courier services. Mostly in the european union countries, this is officially allowed and no problem. Some european countries officially disallow personal imports, but unofficially turn a blind eye . As far as I understand it, the USA kind of falls in the last category. It depends on who you ask. So the best strategy seems not to ask for permissions and just do it,

    In short, what the heck is wrong with importing your medication from a different country anyway? If you trust the source, just do it!

    The burden of proof should be on Big Pharma to *prove* that medicines made in India or Bangladesh, etc., don’t work. Not the other way around. But on that point, all they have to offer is fear and propaganda. So until there is hard evidence to the contrary… I rest my case!

    Cheers,

    Vororo

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    9 June 2017 at 12:45 am in reply to: new Cochrane review – Hepatitis C: the key questions answered #26358
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Mnem,

    This seems like a very strange review from the Cochrane group, which is usually well respected for medical myth-busting.

    For anyone interested, here is a link to the Guardian article:

    https://www.theguardian.com/society/2017/jun/08/miracle-hepatitis-c-drugs-costing-30k-per-patient-may-have-no-clinical-effect

    Here is a link to the abstract of the paper:

    http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD012143.pub2/full

    As far as I can understand, the conclusion of this paper is that patients with hepatitis C will not die straight away if they take a placebo or a modern DAA and get a Sustained Virological Response, and therefore, there is no proof that DAAs will prevent people who are sick from dying. Duh….

    Well, since we all know that hepatitis C is a slow killer, this is probably not completely false. But if you ask a dumb question, you will get a dumb answer… And then somebody else will mis-quote it to arrive at an even dumber headline.

    Speaking as someone who is cured of hep-C (and who now feels a heck of a lot better than when I had it) I would recommend to file and forget all this under the “dumb science” folder. Or maybe nominate it for a prize here?

    Past Ig Winners

    Please check out that last one (Perception Prize) about investigating if things look different when bending over and looking through your legs :)

    Cheers,

    Edit:

    OK, I just went and stood on my head for two minutes. The conclusion of the paper should really be “compared to taking a placebo, there is no measurable life-threatening risk in taking DAAs”…

    So just do it, and get yourself cured!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    1 April 2017 at 12:20 am in reply to: Why it’s not a good idea to wait for treatment #25726
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    I was F0/F1 with no chance of treatment under the NHS. Even though I was “only” F0/F1 and so I was not going to die immediately, I knew I was sick. As well as the classic fatigue, I had all sorts of other little ailments – eczema, itching, alcohol intolerance, fungal infections and suspected lichen planus on the skin, unexplained eye infections, work colleagues often remarking that I looked “tired” (euphemism for “look like shit”;)…

    All that is gone now.

    Hepatitis C affects different people in different ways. Sometimes it takes a long time to really start feeling the symptoms, but in the end the bastard virus can really start to bite.

    The cure is here today. Don’t delay. Get yourself treated right away.

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    1 April 2017 at 12:02 am in reply to: G3 Dacla/Sofosbivir from Mylan in India #25725
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Neil,

    It is good to know that even if your Dr is “officially” not allowed to do anything, he is still supporting you on the generic path. You will not regret it, and there is a very high probability that your Dr will be astonished by the results.

    One more patient cured. One more Dr convinced.

    Its progress Jim….

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    23 March 2017 at 2:18 am in reply to: Drinking has no impact on Hep C cure rates with the new DAAs #25662
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hey Re-roll, was all that one year ago already!?

    Shoot, we had some fun while we were getting cured :evil:

    ‘course, we’re all perfectly serious in normal life… ;)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    22 March 2017 at 1:13 am in reply to: How manny GT3’s on this forum are cured? #25650
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Fli,

    I was GT3, and got myself treated with Sof+Dac from fixHepc back in November 2015. [Million thanks again to Dr Freeman!].

    I have reported quite a lot on alcohol consumption during sofosbuvir-based treatment. You can use the forum “Search” feature to look back on previous posts about this from me and several others.

    Basically, I drank alcohol moderately (more than you report) all the way through treatment and I am now still HCV free. Here is my report from 9 months ago:

    http://fixhepc.com/forum/experts-corner/1088-drinking-alcohol-post-svr.html?start=30#18184

    OK, it was a scientific experiment with N=1 (one person), so not statistically significant. But I was so convinced it was the bug and not the booze that was messing up my liver, I went ahead and did it just to try show that alcohol consumption is a false argument to deny treatment. End result, alcohol had absolutely no effect on patient outcome (N=1, but I am sure I am not the only one).

    For a healthy person, 24 units per week is not excessive. For everyone with Hep-C, the health priority should be to kill the bastard bug first. Then look to the booze if you still have a health problem.

    Cheers,

    Oor Wullie (AST=26, ALT=22, GGT=24, VL=0, ethanol > 28)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    3 March 2017 at 11:43 pm in reply to: Another success story for Darvoni from Bangladesh #25490
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    ”James-Freeman-facebook” wrote:

    It’s worth remembering that the Hepatitis Trust in the UK does have a generics page (and indeed was amongst the first to have one)

    http://www.hepctrust.org.uk/information/treatment/buying-hepatitis-c-drugs-online

    And their CEO Charles Gore treated with PEG/Riba back in the bad old days:

    http://www.worldhepatitisalliance.org/story/2015-04/charles-gore

    So although taking money from pharma introduces the question of what impact it may have had, the trust seems to have been navigating an honourable path.

    Yes, I was not questioning whether the Hepatitis C Trust were acting honourably or not. I think they did the right thing, and especially if the court case was crowd-funded. Since the Trust could not take Gilead to court, they had no choice but to go after the NHS. Even though they lost the case, it still served to get the issue onto the TV and into peoples living rooms.

    Most importantly, the case led to a BBC TV program which says that it is legal for individuals to import personal medication to the UK – and that Darvoni from Bangladesh works!

    Here’s a link to the full report that was shown on BBC 2.

    http://www.bbc.co.uk/programmes/p04vdlgh

    Let’s hope this give more people the confidence to just go and do it themselves as well!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

  • Author
    Posts
Viewing 15 posts - 16 through 30 (of 307 total)
1 2 3 … 19 20 21