Who is the Furthest Away Generic Rebel, Stand and be Counted?

This topic has 30 replies, 16 voices, and was last updated 8 years, 4 months ago by Matt-Kenney-google.

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17 April 2016 at 1:29 am #15590
fretboard
- Topics: 10
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- Total: 174
- Guardian Angel
@fretboard
Hey I’m wondering if we could just kinda find out how many Generic Rebels there are? Please just enter whatever you want, but if you’re SVR from generics, whether from gp2u, Mesochem, Incepta, Greg Jefferys site or wherever. Just identify yourself as a Generic Rebel and the country you’re from. That’s right, I’m being nosy here and wondering who is from the farthest away country from Australia? Hope I said that right. This is just being started for discussion. Anyone?

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
17 April 2016 at 1:47 am #15591
kenbasman
- Topics: 11
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- Guardian Angel
@kenbasman
SVR 4. Canadian living in Mexico. I did 12 weeks of Lesovir-C made by Beximco labs out of Bangladesh. Happy to be labeled as a Generic Rebel on your list, fretboard. Actually I am a professional guitar player as well, but I guess that is for a different conversation we could have….

HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18
17 April 2016 at 2:44 am #15599
fretboard
- Topics: 10
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- Guardian Angel
@fretboard
kenbasman wrote:

SVR 4. Canadian living in Mexico. I did 12 weeks of Lesovir-C made by Beximco labs out of Bangladesh. Happy to be labeled as a Generic Rebel on your list, fretboard. Actually I am a professional guitar player as well, but I guess that is for a different conversation we could have….

Yeah, I’ve played professionally as well, not so much anymore. Glad you stopped by, hey what genotype were you anyways, just wondering? Now I gotta ask my friend google what is Lesovir, new one to me.

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
17 April 2016 at 4:32 am #15608
kenbasman
- Topics: 11
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- Guardian Angel
@kenbasman
Genotype 1a. Lesovir-C never got as popular as Twnvir (the other Bangladeshi generic harvoni) mostly, i think, because it comes in big ass plastic bottles with 7 pills per bottle so you end up travelling with 12 pretty big boxes to cover your whole treatment. Also, i think the people at Incepta (who make twinvir) are more user friendly when it comes to being helpful selling their meds.
I just happened to have a friend working at an NGO in Bangladesh who was coming home to the states for Xmas and offered to buy me my meds and bring them back with them. I think they chose Beximco Lesovir-C because Beximco is recognized by the FDA and they probably had some connection to the people there.

HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18
17 April 2016 at 4:39 am #15609
Greedfighter
- Topics: 28
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- Guardian Angel
@greedfighter
I think I have you all beat. Lake Hiawatha, NJ over 22 hours flight time Melbourne.
17 April 2016 at 7:03 am #15615
fretboard
- Topics: 10
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- Guardian Angel
@fretboard
Greedfighter wrote:

I think I have you all beat. Lake Hiawatha, NJ over 22 hours flight time Melbourne.

Could be for right now anyways, until I get my SVR, I’m from California.

kenbasman wrote:

I just happened to have a friend working at an NGO in Bangladesh who was coming home to the states for Xmas and offered to buy me my meds and bring them back with them.

Lucky you! Thank God for good friends! Yeah I found out that Lesovir-C is just a generic name for Ledipasvir, I should have known. WTG!!

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
17 April 2016 at 8:24 am #15617
Michael-Henry-facebook
- Topics: 9
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- Recovery Champion
@michael-henry-facebook
Does an Aussie going on a cruise with his generic meds to South Pacific make him a rebel

AUSTRALIAN
HCV Genotype 1a
2003 Relapsed Peg Interferon / Ribavirin
Pre treatment VL 2,000,000
ALT 65, AST 42, ALP 111, GGT 56
Bridging F3-4
Treatment -24 weeks – Sof , Led with 12 weeks Riba.
4 weeks VL <12 Detected ALP 89 , GGT 21 , ALT 17 , AST14
12 weeks VL Undetected ALP 96, GGT 22, ALT 20, AST 20
24 weeks VL Undetected ALP 83, GGT 20, ALT 21, AST 14
EOT 6th April 2016
SVR 5 weeks VL Undetected ALP 81, GGT 31, ALT 22, AST 20
17 April 2016 at 9:48 am #15623
fretboard
- Topics: 10
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- Guardian Angel
@fretboard
Michael-Henry-facebook wrote:

Does an Aussie going on a cruise with his generic meds to South Pacific make him a rebel

In this instance anyone who takes generic HepC drugs, and reaches SVR is considered a Generic Rebel. When it comes down to you, if you are SVR you are a Generic Rebel, stand and be counted! ~Cheers!!

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
17 April 2016 at 5:26 pm #15661
Dr James
- Topics: 264
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- Guardian Angel
@fixhepc
Here’s a map. It’s not entirely accurate as a number of people from problem import countries travelled for access but it gives you an idea.

YMMV
17 April 2016 at 5:31 pm #15662
Hit The Road Jack
- Topics: 4
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- Treatment Warrior
@hit-the-road-jack
That’s gives a great visual on the bigger picture

Thanks Dr James

Tx naive. GT3a
Female
Diagnosed 1996

Start 25/2/16
VL 62700
F0
hb 141
ALT 36
ALP 81

4 week test
VL UND
ALT 18
ALP 70

Additional 4 weeks Tx
Start 19.5.16
17 April 2016 at 8:37 pm #15684
kenbasman
- Topics: 11
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- Guardian Angel
@kenbasman
I guess that’s me standing all by myself in the middle of Mexico. Cool! Except for the fact that there are all kinds of hep c sufferers here and the only treatment available legally is Interferon and Ribavirin. I have been trying to get the word out here about other possibilities but so far nobody is listening….

HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18
17 April 2016 at 9:11 pm #15688
Dr James
- Topics: 264
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- Guardian Angel
@fixhepc
I guess that’s me standing all by myself in the middle of Mexico

Afraid not. The people are the REDEMPTION-1 group with their positions randomly moved +/- 1 degree of lat/long. You are an independent generic rebel.

Mexico is hard. The sanitary department does not like imports. It’s flowing into Mexico from north of the Rio Grande

This site’s traffic looks like this

With the British Virgin Islands the latest addition

YMMV
17 April 2016 at 11:23 pm #15689
Johnboy
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- Guardian Angel
@johnboy
Well, I can see myself and my mate up there in the Northern Territory. Two more SVR12s on the way soon. Love your work.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
17 April 2016 at 11:40 pm #15690
fretboard
- Topics: 10
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- Guardian Angel
@fretboard
”James-Freeman-facebook” wrote:

I guess that’s me standing all by myself in the middle of Mexico

Mexico is hard. The sanitary department does not like imports. It’s flowing into Mexico from north of the Rio Grande ]

Wow! That’s the pitts, Interferon and Ribavirin is such a brutal tx I didn’t know anyone was still using it. Pobrecitos! Much appreciated information Doc!

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
18 April 2016 at 5:10 am #15715
panamajo
- Topics: 5
- Replies: 22
- Total: 27
- Treatment Warrior
@panamajo
Canadian expat living in Panama. Geno 1a, F4. Just finished 24 weeks of Sov/Dac + Riba two weeks ago. Feeling great!
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