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  • 9 November 2015 at 4:03 pm #3567
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Great concept. There are many more patients with HCV than moderators of forums. Our forum is clean due to the hard work of some great mods but you are completely right. There are so many patients with HCV than narrow minded, Pharma funded, mods.

    I love your work!

    PS: I’ve made you a mod here. Now for the Spiderman quote:

    “With great power comes great responsibility”

    YMMV

    9 November 2015 at 5:11 pm #3571
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Hi Doc,
    I am do my best to “clear the air” here in the U.S. about generic quality, suppliers and how to negotiate the whole series of steps from acquisition to the first dose. Many folks are intimidated by the process and brain washed by lawsuit-fearing doctors, big pharma and the government. I try to help them see it as a series of simple steps. It is working!
    People up here are starting to get affordable treatment directly from a trusted supplier-Mesochem.
    Thanks to you al!
    Mike

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    10 November 2015 at 1:48 pm #3606
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yesterday’s news Klhilde, but it will attract a lot of publicity – Pamela Anderson cured of Hep C:

    http://abcnews.go.com/Entertainment/pamela-anderson-shes-cured-hepatitis/story?id=35074396

    10 November 2015 at 1:51 pm #3608
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax

    Yay! The more people we have using generics, the more we can add pressure to big pharma to lower their price! Good idea!

    11 November 2015 at 5:25 am #3647
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    Ummmm…. that was unexpected. I’m still not back to work so have some free time. My work days are generally 12 hours/day.

    But I’ll try to be worthy.

    Still thinking on the best format to do this.

    But in the mean time I posted to the comments in the news story Joy linked to. Lasted less than two hours. Posted again and it was taken down almost immediately. Now the two posts to the ABC site, which although removed still showed up in my disqus account seem to have even disappeared from there! But they don’t appear to have blocked my disqus account in any other way.

    Edit: They’re back on my disqus account but with the red “removed” tag.

    Posted on the CBS version of the same story and post never appeared …. signed in using facebook.

    I’m gonna have to figure out what’s in the posts that’s getting them booted, as I’m sure CBS and ABC, using two different comment systems, are not collaborating to keep discussion of hep c generics off their comment threads.

    Edit: I did not use actual hyperlinks so that’s not what did it.

    11 November 2015 at 6:27 am #3648
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Some sites now remove dot type stuff also as they see it as circumventing their no links rules.

    Perhaps a warm congratulations to Pam (or whoever), a comment about how expensive the drugs are and how that places them outside the average joe’s reach and then just a further comment about some people in australia setting up a buyers club to purchase hep c drugs at better prices. So no direct or indirect links at all but provides enough information for people to google for themselves. Sow the seeds and some will grow. B)

    Edit: italics just to show the key words to include for a successful search, don’t use in your comment.

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    12 November 2015 at 5:20 am #3706
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    I’ve been a busy bee swarming all over the internet, posting on every comment board I can. In particular replying to comments from people who disclose they have Hep C, but unlike Pamela Anderson, not the $$$ to pay for treatment.

    Have completely blown my cover. But I really believe in what Greg and Dr James are doing.

    Gosh there’s a lot of trash out there.

    12 November 2015 at 6:53 am #3708
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    And so much misinformation:

    Hepatitis C can be contacted sexually, particularly among people who have an HIV infection or STD.

    http://www.techtimes.com/articles/105024/20151110/pamela-anderson-claims-she-is-cured-of-hepatitis-c.htm

    29 November 2015 at 9:13 pm #4836
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    Hep C cases on the rise in Bay County 28/11/15

    http://www.newsherald.com/article/20151128/NEWS/151129331

    29 November 2015 at 9:34 pm #4837
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    And now Tommy Lee is Cured

    http://classicrock.teamrock.com/news/2015-11-24/tommy-lee-cured-of-hep-c-say-pam

    http://www.huffingtonpost.com/entry/pamela-anderson-tommy-lee-cured-hepatitis-c_56533587e4b0258edb321b7b

    2 December 2015 at 12:35 am #4991
    daveritch
    • Topics: 0
    • Replies: 1
    • Total: 1
    • Novice
    • ★
    @daveritch
    klhilde wrote:

    We need to be getting the word out to the whole world.

    Hi folks,

    I am a research scientist based in France. I have been following the developments on this site for several weeks because I am very interested in viruses and their molecular structures. I have been really moved by what is going on here and I want to help raise awareness. I have just modified my e-mail signature as follows:

    …..

    My Name / My Professional Address
    (please take a moment to consider the gobal hepatitis C crisis. Visit http://fixhepc.com/blog.html)

    I hope this might help, even if it is only in a small way.

    Best wishes,

    Dave

    2 December 2015 at 4:09 am #5008
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Thank you for your support Dave, it’s very encouraging.

    To all the Hive Swarmers out there, the big news from the US Senate that Gilead is officially GREEDY, is a good opportunity to swarm the comments sections and/or share on facebook & twitter. Here are some links, but there should be many more in the coming days:

    http://www.dailynews.com/business/20151201/maker-of-1000-hepatitis-c-pill-cared-about-profit-not-patients-senate-report-says

    http://thehill.com/policy/healthcare/261661-bipartisan-senate-report-denounces-high-drug-price

    http://www.bloomberg.com/news/articles/2015-12-01/gilead-used-revenue-driven-pricing-on-hep-c-drug-senators-say

    http://www.reuters.com/article/2015/12/01/us-usa-healthcare-prices-idUSKBN0TK5HC20151201

    2 December 2015 at 4:13 am #5009
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    And another from Wall St Journal, with comments section:

    http://www.wsj.com/articles/gilead-knew-hepatitis-drug-price-was-high-senate-says-1449004771#livefyre-comment

    2 December 2015 at 4:25 am #5011
    Avatar photocrazy8
    • Topics: 0
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    • Total: 49
    • Recovery Champion
    • ★★★★
    @crazy8

    It took them 18 months of investigation to conclude that Gileads motives are driven by greed?, sheeyit, i came to that conclusion after a weeks surfing the net.

    Still, it will apply a bit more pressure and that cant be bad.

    GT 3, F3, Contracted 1993 Tx Naive
    V/L 1,267,000 AST 67 ALT 65 6/10/15
    commence Sof/Dac (Mesochem) 6/11/15
    AST ALT normal 24/11 *
    *V/L UNDETECTED 24/11*

    2 December 2015 at 4:51 am #5015
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Crazy8 wrote:

    It took them 18 months of investigation to conclude that Gileads motives are driven by greed?

    Yes, miserable isn’t it, and they didn’t even make suggestions as to the solution. How many more will die waiting for treatment before legislation is passed against such obscene greed?

    Meanwhile let’s inform as many as possible that safe, affordable generics are available NOW.

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