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  • 16 January 2016 at 7:53 pm #9456
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Well I received my meds sof/dac yesterday and was gonna wait till next week to start but have changed my mind and will start tonight. I am not sure if my gastro dr is willing to order f/u labs yet cuz I have had only one appointment with him (which took 2.5months to get) so not sure what his attitude will be. I have had labs done within the last 2months and am going to use those as my baseline. All my levels were normal which I attribute to a healthy diet. My VL was fairly low so I believe I can kick this crapt out of me soon hopefully. I figure if gastro dr refuses to do f/u with me then I have 4weeks to find someone that will. My GP may be willing, but will go through gastro dr first.
    I was recently diagnosed in October through routine physical with labs but have no clue as to how long I have had this. I am an RN and have been for over 34years and have dealt with lots of blood and IV starts and lab draws in my profession over the years but cannot think of anytime that I have accidentally stuck myself. So have racked my brain trying to figure out how I aquired HCV. But gave up on that and began my obsession of finding a way to acquire meds needed , especially since I figured out very quickly! that I would never be approved by my insurance since I was way too healthy. Well in less than 1 month I have already been denied X2 by my insurance.
    I found this wonderful place and will be indebted to all of you forever. So I got my appointment with GP2U and ordered meds through Kingswood. I liked the fact that several others here have used them with success and also that they test and capsulate the API’s.
    So my journey begins today :) A day that I will never forget esp since it’s my son’s birthday today. A good day indeed!
    Thanks everyone and I will post f/u as I proceed #love

    ,

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    16 January 2016 at 8:06 pm #9457
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Good for you!!!
    Surely your GP will order the bloodwork until you are UND and at 12 weeks post tx. My GI used the tests from 3 months before tx for my baseline, so it looks like you are good to go.
    Good luck!
    Mike

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    16 January 2016 at 8:11 pm #9459
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Thanks Mike. Looks like I got it in wrong category oh well I’ll blame it on brain fog :cheer:
    Maybe one of the moderators can move in over to pt stories for me

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    16 January 2016 at 8:33 pm #9464
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Also, I asked my doc to give me a paper copy of my last Harvoni script and asked her to include “400 mg sofosbuvir and 90mg ledipasvir” on it.
    She did.
    I didn’t need it, but I imagine it would be sufficient to buy generics.
    M

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    16 January 2016 at 8:39 pm #9465
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Depending who you decide to aquire meds from. I know Kingswood requires an Australian script. So an appointment with GP2U is required in order to obtain an Australian script

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    16 January 2016 at 9:07 pm #9468
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Ah, let your fingers do the walking.
    I like that!

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    17 January 2016 at 2:44 am #9489
    Avatar photoJaz
    • Topics: 2
    • Replies: 81
    • Total: 83
    • Guardian Angel
    • ★★★★★
    @jaz

    Wishing you a smooth and uneventful Tx with an undetected result along the way :)

    3a F0 TX Naive
    Started Tx 12/12/2015 Kingswood Sof/Dac

    Pre Tx – ALT 71 AST 40 V/L 9 million
    Day 11 – ALT 12 AST 15
    4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
    6 week – UND
    12 week EOT – UND
    SVR4
    SVR12

    17 January 2016 at 5:40 am #9497
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Welcome and Good Luck CC2B! Many of us here have started Tx this month. I’m also on Sof/Dac, G3a, 16 weeks Tx.
    May your journey lead to great health and healing :)

    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    19 January 2016 at 8:40 am #9761
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Spoke with the nurse at the GI office today and she seemed a little surprised when I told her I had started tx with generics and wanted to know if I had a script and how I had obtained it. So I gave her a brief explanation and she seemed to think there would be no problem with f/u labs and to call back just before 4weeks of tx so they could order the necessary labs. :)
    Otherwise I am on day #3 with no sides that I can tell. I am off to work tonight for the first time since starting and I work the overnight shift,so hoping not to be more tired than usual :unsure:
    Thanks for all the well wishes #love

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    19 January 2016 at 1:45 pm #9792
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey CC2B – The very best wishes from me too :)
    Here’s to the very best results and an easy journey.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    19 January 2016 at 2:54 pm #9811
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great to hear you’ve joined the January tx list too, CC!

    Most of us seem to have few sides, hard to believe its working sometimes heh. Very positive that you’re able to get monitored with no hassle as well.

    All the best for your treatment journey and look forward to a great result :)

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    19 January 2016 at 3:24 pm #9813
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    “All Aboard!!”
    “Next stop Undetected!”
    “Destination SVR City”
    “Sorry, no side effects served on this trip.”

    Mike

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    10 February 2016 at 8:31 am #11674
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Hi guys, haven’t posted on here (my tx thread) in a while, just getting on with life :) really feeling like I have lots more energy and sleeping ok. This Friday will be day#28 for me so stopped by GI office yesterday to pick up lab orders for my 4 week labs. This was the first time I actually talked to the GI nurse in person since Dec way before I told them I had started tx with generics. I was very happy to see how supportive she was. She wanted more information on how I went about obtaining the generics. She told me that she had already mentioned to a couple of their HCV patients that she was unable to get their insurance to cover tx that they had another patient (me) who they were following who had imported the DAA’s. So I gave her copies of some of the information from the fixhepc and GP2U websites. Made me feel good that they were so receptive and hopefully it can help someone else to SVR that may not be aware that this option is available.
    So since I am taking my meds in the evening,my plan is to go in on Saturday and have my 4 week labs done. Will update when I get those results.
    CC

    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    10 February 2016 at 8:41 am #11675
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    Awesome. Looking forward to your results!!

    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    11 February 2016 at 6:03 am #11720
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Hey CC,
    If you haven’t already, you might consider sharing some of your tale at our U.S. Branch at Delphi.

    http://forums.delphiforums.com/generichcvtx

    You may already have done it. Things are getting hectic and its hard for me to keep up.

    Good viro bashing!
    Mike

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

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