Welcome, Guest
Username: Password: Remember me

TOPIC:

Ariel takes the Plunge 6 years 8 months ago #13349

  • Debs
  • Debs's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Posts: 251
  • Karma: 3
  • Thank you received: 437
Congrats on staying UND Ariel! :+1:
I have too! :)
Your feet look healthy also :lol: #duck #flower
Deb x
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13379

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Ty Debs
I just feel better and better
Best wellness since 2012
I'm stoked
All I can say is to anyone thinking still about buying the meds no matter if you're Aussie and haven't got PBS or from O/S just do it they work
I have added 9.5kgs to my once skeletal body, have a normal appetite for the first time in ages
I have less than a fortnight to EOT and I feel like a miracle :+1:
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: mgalbrai, Gaj, isaing4

Please Log in or Create an account to join the conversation.

Last edit: by Ariel.

Ariel takes the Plunge 6 years 8 months ago #13508

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Funny how you can hit a wall near EOT.

I have just been coping with that anxiety coming like a bat outta hell, left field.

Sat around since my last post thinking "what if I relapse...I did after that peginf disaster" Had a few sad things go down around me in my little world too. feeling suddenly like I am not as confident.
Wallowed a bit not knowing why...I think it is relapse anxiety, and with respect to other replapsers I apologise for the topic here, I know it is a fragile experience and traumatic because I have been there before.

I went to my local, Home feels good nearing EOT, I don't think I will venture far for the last remaining 8 days...

Thinking of all who are extending, or re-treating..sending loving ocean energy It has helped me no end...
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Attachments:
The following user(s) said Thank You: Joy, mgalbrai, Paul-Jarman-facebook, Gaj, isaing4

Please Log in or Create an account to join the conversation.

Last edit: by Ariel.

Ariel takes the Plunge 6 years 8 months ago #13509

Physical recovery is one thing but I think there is a definate convalescence period needed after we clear. Given we have lived with this illness for decades mostly it must have an effect on us mentally and spiritually as well.

I know near the EOT I was getting more confident and hopeful for the future, making plans for next year etc etc.

You have come a long way since you arrived on this site Ariel and it can only get better :)
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
The following user(s) said Thank You: DrJames, mgalbrai, Ariel, Gaj, isaing4

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13510

Ariel you live in such a beautiful place, home sounds good....no need to venture out until you feel better. Almost there :+1: #love :)
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13515

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Thankyou very much for the empathy friends.. it's enough. Good company to be in cheers :+1: #love #flower :+1:
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: Lynne-Francis-facebook, beaches

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13517

Hi Ariel,

I really hear you re the 'staying near home ' thing. I've been getting more and more like this over a period of time and now ending 1st tx it seems to be intensifying. I guess that will double after the next 12 weeks!

I guess we all get a bit of that, but can understand more so if you have previos experience of this, it must stir some old nemories of anxious times? but also, as previously tx naive I have this too. Thinking of those who did a few long peg/inf treatments - Phew!

Stay with what makes you feel most comfortable I reckon.

Sending #love from afar.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Ariel, beaches

Please Log in or Create an account to join the conversation.

Last edit: by LondonGirl. Reason: typos

Ariel takes the Plunge 6 years 8 months ago #13547

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084

Indeed
Home is sweet at the mo
I made it to Bells Beach for a day !!! Left home at 5am
That's plenty! I'm thinking crowds, noise, lots of activity are frazzle material on the meds near EOT gawd knows why?







However I scored some amazing pics
We all know this fellas dial haha!
8 more pills to take here
Pleased not to be extending yes LG had quite enough ty!
I'm interested that the anxiety is also intense on tx naive as well as peginf relapsers, we need more research.
Anyway here's a couple of pro surf pics
Thinking of all this Easter Break
Xx Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Attachments:
The following user(s) said Thank You: mgalbrai, Gaj, isaing4

Please Log in or Create an account to join the conversation.

Last edit: by Ariel.

Ariel takes the Plunge 6 years 8 months ago #13552

  • beaches
  • beaches's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Just being around the surf is awesome. Good for the spirit
I'm a clubby and spent patrol yesterday arvo on my own (well in the company of swimmers and waders competing for space with learner surfers, yikes!)
No casualties despite tricky conditions, lots of surf education.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13553

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082
Hey, great to see you made it down to something you so obviously enjoy Ariel! :cheer: :cheer: :cheer:


Crowds, noise....... frazzled on the meds? Phew, you mean it's not an age I'm going through? B)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13554

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Nah can't be age Gaj
We both know the secret fountain of youth is from living on our side haha!
I updated the pics from today for everyone's enjoyment
I must say Kelly was even signing autographs for groms which is unusual! He even spoke!
Seriously it was good to get over there good solid swell.
I may as well put up one more pic it was a solid day at Bells that's for sure. For International friends google Bells Beach Surf it's the oldest international surf comp and called "The Gathering of the Tribe"
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Attachments:

Please Log in or Create an account to join the conversation.

Last edit: by Ariel.

Ariel takes the Plunge 6 years 8 months ago #13555

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
You are right Beaches you clubbie you :)
Just being around the surf is so energising and the pro surfers are so nice. What a lucky sport we both share huh? I'm surfing way better since I started these meds btw my takeoffs are so much sharper
I rekn I was have moments of lapse and didn't realise until they went away! Sounds mad but I do feel strongly that I had tiny black outs maybe that's what is termed "brain fog" I have heard that connection with hepC
Well I am UND now so I jolly will do my damnest to stay that way
The ocean certainly helps
Ariel :) splashing you from freezing Vicco waters
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13556

  • beaches
  • beaches's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
Mrs Clubby Wanker that's me :D
23.5 degrees at Manly this morning. We start complaining when it dips below 20.
Going to Tonga this August to swim in the ocean with the humpbacks.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Ariel

Please Log in or Create an account to join the conversation.

Ariel takes the Plunge 6 years 8 months ago #13557

  • Ariel
  • Ariel's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Beaches I fly up and surf Manly!
I love surfing the Steyne :+1: it's a nasty place to wipeout though talk about holds you down :evil:
Tonga and humpbacks sounds so fantastic warm water too stunning experience
Plus no HepC ha!
I will be heading to Sydney then onto Brisvegas once this tx is done to see my girlfriends interstate can't wait it will be the first time I am not sick for years yew!
Tonga will be amazing :+1: #duck
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

Please Log in or Create an account to join the conversation.

Last edit: by Ariel.

Ariel takes the Plunge 6 years 8 months ago #13560

Tonga, Brisvegas, Humpbacks...
Life's a beach......
:) :) :)
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Ariel, beaches

Please Log in or Create an account to join the conversation.

Time to create page: 1.044 seconds

Copyright © 2015-2020 FixHepC

Back to Top