|
Welcome,
Guest
|
TOPIC:
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17349
Australian surfer Justin Allport rides a wave during the Cape Fear surfing tournament in heavy seas off Sydney's Cape Solander in Australia, June 6, 2016. Just by looking at the colour of the water indicates just how rough it would have been out there ... they are a lot braver than me! 1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected   , FBG 11.9  17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 (Accu-Chek Mobile & Omron Auto BP Monitor) |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17520
|
Congratulations to Beaches on reaching EOT today you go mermaid
   Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17524
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected , FBG 11.9 17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 (Accu-Chek Mobile & Omron Auto BP Monitor) |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17526
|
Nice one Beaches
SVR 24
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17533
|
Thanks Ariel, GT2, Tina and Pat1 for the good wishes.
EOT......wowie zowie, that's gone fast.  Some reflections, and I hope I'm not just preaching to the choir. If anyone is reading this and wondering if they should get treated, I say to you, just do it. Do it while you can. The door to generic treatment is open but big pharma is influential and greedy. The door won't stay open forever. Through luck and lots of front I got onto the branded meds (Gilead Harvoni) but truly was all set to go down the fixhepc / GP2U road. It's safe. Dr James has the generic meds tested before they are sent to you. You won't lose your money. There is evidence that the outcomes from generic and branded treatments are the same. For me the changes have been dramatic. Not only do I have more energy, I have more focus, drive and mental sharpness. I have less fear. My body runs more efficiently. Sleep quality is fantastic. I noticed these things very soon into the treatment. I had no idea if things would be different, no idea what to expect. The quality of life for the rest of my life will be so much better. A bit about my individual situation. Since being diagnosed I did as much as I could to stay as healthy as I could - eat right, do Yoga, stay fit, do weights, eat organic (as much as the budget allowed) take supplements for my cell health, also antioxidants. Fibroscan consistently F0, LFTs abnormal but not hugely so but VL reasonably high.Never touched interferon, riba etc I know that lots of people were sicker than me, but they are getting SVR12. Just do it folks, you have nothing to lose except a nasty disease. Peace out Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17563
|
Don't nuthin' scare our Awesome Aussie girl WAIT! Where's the fin??? HEY! That ain't no great white ....
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17564
|
Congrats on EOT, Beaches!
YeeHaw!!!! 
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17572
|
Great news Beaches. I've had a similar experience.....I feel soooooooooo much better. See you at SVR!!!
 G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17978
|
Well, bloods are back except for VL. Looking good I guess - pretty much the same as week 4, a bit better.
Bili is 10 down from 12 Gamma GT 18 down from 25 AST has stayed the same, 19 ALT 21 up ever so slightly from 19 not a big deal at all. Waiting game for the VL. Got all excited when the email showed up  Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #17995
|
Shoot! That ain't nuthin' girl. I once heard tell of a chick had a VL of 240,000 and AST's & ALT's woulda made anyone else wave the white flag. (I even heard rumor this sheila survived Peginf/riba treatment)
You got this b. Remember, 'b' don't jest stand fer beaches .... it stand for "brave" and that's YOU girl ... MK GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #18010
|
Looking Good Beaches.
Not long to go now ... the wait will be magnified by the suspense ... I know that you are silently confident ... and so you should be! 1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected , FBG 11.9 17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 (Accu-Chek Mobile & Omron Auto BP Monitor) |
|
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #18015
|
bAll this waiting hey Beaches! Maybe go out and do something you enjoy?
My very best wishes go with you,, Bloods looking great, Not long now GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Beaches Treatment - Harvoni (Aus PBS) 7 years 10 months ago #18017
|
Hang in there Beaches. It's looking sooo good and we know it works
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 |
|
Time to create page: 1.147 seconds
